Civic Intelligence

Myasthenia Gravis Foundation of America Inc

990 • Fiscal year 2017 • EIN 13-5672224

Jan 01, 2017 to Dec 31, 2017 • Filed on Jul 03, 2018

Organization ProfileWWW.MYASTHENIA.ORG

View Organization Page

355 Lexington Avenue 15th FloorNew York, NY 10017

(800) 541-5454

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

40th percentile

0.09x

Higher debt load relative to assets than 40% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Liabilities / Revenue

64th percentile

0.33x

Higher debt load relative to revenue than 64% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Net Margin

51st percentile

3.3%

Higher net margin than 51% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Top Officer Pay

20th percentile

$0

Higher top officer pay than 20% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Asset Growth

67th percentile

9.8%

Faster asset growth than 67% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Revenue Growth

10th percentile

-25%

Faster revenue growth than 10% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$8,396,106

Up $751,883 (+9.8%) from 2016

Net Assets

Up

$7,645,668

Up $560,636 (+7.9%) from 2016

Liabilities

Up

$750,438

Up $191,247 (+34%) from 2016

Revenue And Expenses
Liabilities / Revenue64th percentileNet Margin51st percentile

Revenue

Down

$2,254,165

Down $733,856 (-25%) from 2016

Expenses

Up

$2,180,761

Up $265,333 (+14%) from 2016

Net Income

Down

$73,404

Down $999,189 (-93%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth67th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $5,837,057Liabilities 2010: $300,284Net Assets 2010: $5,536,7732010Assets 2011: $5,236,901Liabilities 2011: $265,468Net Assets 2011: $4,971,4332011Assets 2012: $5,772,122Liabilities 2012: $110,578Net Assets 2012: $5,661,5442012Assets 2013: $6,943,903Liabilities 2013: $335,689Net Assets 2013: $6,608,2142013Assets 2014: $6,896,684Liabilities 2014: $418,283Net Assets 2014: $6,478,4012014Assets 2015: $6,421,112Liabilities 2015: $552,538Net Assets 2015: $5,868,5742015Assets 2016: $7,644,223Liabilities 2016: $559,191Net Assets 2016: $7,085,0322016Assets 2017: $8,396,106Liabilities 2017: $750,438Net Assets 2017: $7,645,6682017Assets 2018: $8,146,592Liabilities 2018: $807,663Net Assets 2018: $7,338,9292018Assets 2019: $9,512,374Liabilities 2019: $971,734Net Assets 2019: $8,540,6402019Assets 2020: $10,606,667Liabilities 2020: $872,613Net Assets 2020: $9,734,0542020Assets 2021: $12,076,757Liabilities 2021: $1,218,018Net Assets 2021: $10,858,7392021Assets 2022: $11,363,951Liabilities 2022: $1,331,128Net Assets 2022: $10,032,8232022Assets 2023: $12,011,651Liabilities 2023: $1,400,541Net Assets 2023: $10,611,1102023Assets 2024: $13,552,735Liabilities 2024: $1,848,495Net Assets 2024: $11,704,2402024

Highlighted filing

2017

Assets$8,396,106
Liabilities$750,438
Net Assets$7,645,668
Open 2017 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $793,9532010Expenses 2011: $1,048,6142011Expenses 2012: $1,192,0292012Revenue 2013: $1,606,551Expenses 2013: $1,320,451Net Income 2013: $286,1002013Revenue 2014: $1,504,726Expenses 2014: $1,658,734Net Income 2014: -$154,0082014Revenue 2015: $1,641,546Expenses 2015: $1,645,388Net Income 2015: -$3,8422015Revenue 2016: $2,988,021Expenses 2016: $1,915,428Net Income 2016: $1,072,5932016Revenue 2017: $2,254,165Expenses 2017: $2,180,761Net Income 2017: $73,4042017Revenue 2018: $2,585,457Expenses 2018: $1,955,857Net Income 2018: $629,6002018Revenue 2019: $2,579,572Expenses 2019: $2,266,013Net Income 2019: $313,5592019Revenue 2020: $3,577,214Expenses 2020: $2,477,510Net Income 2020: $1,099,7042020Revenue 2021: $3,840,681Expenses 2021: $3,008,153Net Income 2021: $832,5282021Revenue 2022: $4,388,529Expenses 2022: $3,790,735Net Income 2022: $597,7942022Revenue 2023: $3,555,325Expenses 2023: $3,580,103Net Income 2023: -$24,7782023Revenue 2024: $5,670,792Expenses 2024: $5,078,413Net Income 2024: $592,3792024

Highlighted filing

2017

Revenue$2,254,165
Expenses$2,180,761
Net Income$73,404
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jul 3, 2018
Return Version
2017v2.2
Gross Receipts
$2,833,649
Mission and Program Overview

Mission

Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,660,890$6,949,826▲ $288,936
Cash and Non-Interest-Bearing Accounts$670,709$1,179,133▲ $508,424
Pledges and Grants Receivable$38,000$161,500▲ $123,500
Land, Buildings, and Equipment, Net$71,586$87,042▲ $15,456
Prepaid Expenses and Deferred Charges$203,038$18,605▼ $184,433
Total Assets$7,644,223$8,396,106▲ $751,883
Liabilities
Accounts Payable and Accrued Expenses$236,182$425,084▲ $188,902
Grants Payable$319,167$325,354▲ $6,187
Deferred Revenue$3,842--
Total Liabilities$559,191$750,438▲ $191,247
Net Assets / Fund Balance
Permanently Rstr Net Assets$3,834,447$3,834,447→ $0
Unrestricted Net Assets$1,906,653$2,085,220▲ $178,567
Temporarily Rstr Net Assets$1,343,932$1,726,001▲ $382,069
Total Net Assets Fund Balance$7,085,032$7,645,668▲ $560,636
Total Liabilities and Net Assets / Fund Balance$7,644,223$8,396,106▲ $751,883

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$86,167$157,295$243,462
Equipment$875$507$1,382

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$4,244,669-▲ $816,522-$4,846,974
2016$4,098,295-▲ $368,874-$4,244,669
2015$4,612,685-▼ $278,447-$4,098,295
2014$4,640,456-▲ $186,808-$4,612,685
2013$4,128,992-▲ $711,645-$4,640,456
Compensation and Service Providers
Top Officer Pay20th percentile

Board Members and Trustees

NameTitle
Edward T WalshChairperson
Susan KlingerVice Chair
Allan Weiss MdDirector
Celia Meyer RnDirector
Charlene Hafer-mackoDirector
Jeffrey PilgrimDirector
Jennifer Faucett CoteDirector
Jurgen Venitz Md PhdDirector
Katherine Ruzhansky MdDirector
Marilyn RicciDirector
Michael LifshitzDirector
Robert L Ruff Md PhdDirector
Steven J HawcoDirector
Tommy SantoraDirector
Nancy LawChief Executive
Beth UlbrichChief Financial Officer
Marcia Lorimer Rn Msn CpnExec Cmtee Officer
Suzanne Ruff PhdSecretary
Denise RossiTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Kellen CompanyProgram Staffing365 LEXINGTON AVE 15TH FLOOR, New York, NY 10017$306,304
Ew GroupFundraising & Awareness629 5TH AVE BLDG 3 SUITE 115, Pelham, NY 10017$250,000
Nancy Law Consulting LLCChief Executive46587 INDIAN BRUSH CT, Parker, CO 80138$131,000
Mueller & Co LLPFinancial Management1707 N RANDALL RD SUITE 200, Elgin, IL 60123$115,338
Revenue and Support

Revenue Composition

Contributions and Grants
$1,521,521
Program Service Revenue
$278,602
Investment Income
$668,157
Other Revenue
$-214,115
All Other Contributions
$676,146
Change in Net Assets
$73,404

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,254,165
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$639,473
Total Revenue per Audited Statements
$2,893,638
Total Revenue per Form 990
$2,254,165
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,622,707
Professional Fundraising Fees$289,760
Grants and Similar Amounts Paid$268,294
Total Fundraising Expense$207,843
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$404,572$11,414$13,482$429,468
Fees for Services Professional Fundraising--$289,760$289,760
Grants to Domestic Orgs$267,020--$267,020
Conferences and Meetings$230,068$16,005-$246,073
Fees for Services Accounting-$115,338-$115,338
Fees for Service Investment Mgmnt Fees-$65,936-$65,936
Office Expenses$7,984$30,348$12,057$50,389
Fees for Services Other$25,267$19,804$4,620$49,691
Depreciation Depletion$36,182$277$385$36,844
Travel$22,436$3,679$4,635$30,750
Information Technology$13,721$131$7,791$21,643
Insurance-$16,881-$16,881
Other Expenses$5,481$9,360$4,526$5,481
Grants to Domestic Individuals$1,274--$1,274
All Other Expenses$187,500-$-187,500-
Total Functional Expenses$187,500$0$62,500$250,000

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,333,002
Total Expenses per Form 990$2,180,761
Expenses per Audited Statements$2,180,760
Expenses Not Reported on Form 990$152,242
Expenses Not Reported on Financial Statements$1
Other Expense Adjustments$1
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of California Davis Office of Research Sponsored ProgramsDavis, CA501(c)(3)Medical Research$25,000
University of Texas Department of Microbiology and ImmunologyGalveston, TX501(c)(3)Medical Research$25,000
Duke Clinical Research Institute Bryan Research BuildingDurham, NC501(c)(3)Medical Research$22,020
University of PennsylvaniaPhiladelphia, PA501(c)(3)Medical Research-
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$289,760
Fundraising Direct Expenses$218,178
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Mg Walk$845,375-$218,178-
Total Events$845,375-$218,178$-218,178
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Robert l ruff and suzanne ruff have a family relationship.”

Form 990, Part VI, Section A, Line 3

“The day to day management of the organization has been delegated to a management company. The duties of the management company include but are not limited to planning and executing financial operations and supervising the exempt operations. All of the management company duties are reviewed and monitored by the board. The management company is kellen company in new york, ny.”

Form 990, Part VI, Section B, Line 11B

“A draft of the form 990 is first reviewed by the chief executive and then provided to the treasurer and finance committee for review and comment. The form 990 is then made available to each member of the board of directors prior to submission to internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“Board members prepare an annual disclosure statement. Any conflicts of interest that are reported are brought to the attention of the audit committee which reports all significant issues to the board chair and chief executive. Necessary actions are taken to mitigate any conflict of interest situations.”

Form 990, Part VI, Section B, Line 15

“Contracts for top management consultants are reviewed and approved by the executive committee using comparability data.”

Form 990, Part VI, Section C, Line 19

“A request for public document may be received in person, by phone, by mail or by email. The request would be received by the management company which would forward the request to the chief executive who would respond to the request within two weeks. Form 990 is available to the public via the organization's website.”

Filing and Contact Details

Filer

Filer Name
Myasthenia Gravis Foundation
EIN
13-5672224
Phone
8005415454
Address
355 LEXINGTON AVENUE 15TH FLOOR, NEW YORK, NY 10017

Signing Officer

Name
Denise Rossi
Title
Treasurer
Phone
8005415454
Signed
2018-07-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Edward T Walsh
Formed
1952
Legal Domicile
Ny
Voting Board Members
14
Independent Board Members
13
Employees
0
Volunteers
1,700

Preparer

Firm
Mueller & Co Llp
Address
1707 N RANDALL RD STE 200, ELGIN, IL 60123
Preparer
Beth Ulbrich
Phone
8478888600
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“There has been no change in the audit oversight process.”

Financial Statement Notes

PART V, LINE 4:

“To provide medical research to find a cure for myasthenia gravis.”

PART X, LINE 2:

“The foundation has been determined to be exempt from income tax under section 501(c)(3) of the internal revenue code as a publicly supported not-for-profit voluntary health agency, and accordingly, no provision has been made for either federal or state income taxes. In addition, the foundation had been determined by the internal revenue service not to be a private foundation within the meaning of section 501(c)(3) of the code. The foundation has evaluated its tax positions taken for all open tax years. Currently, the 2014, 2015, and 2016 tax years are open and subject to examination by the internal revenue service; however, the foundation is not currently under audit nor has the foundation been contacted by any of these jurisdictions. Based on the evaluation of the foundation's tax positions, management believes all positions taken would be upheld under an examination; therefore, no provision for the effects of uncertain tax positions has been recorded for the years ended december 31, 2017 and 2016.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising event expenses 218,178. Investment management fees -65,936.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising event expenses 218,178. Investment management fees -65,936.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“ROUNDING 1.”

Raw XML AppendixShowing 400 of 796 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0COMMITTED TO FINDING A CURE FOR MYASTHENIA GRAVIS AND CLOSELY RELATED DISORDERS, IMPROVING TREATMENT OPTIONS, AND PROVIDING INFORMATION AND SUPPORT TO PEOPLE WITH MYASTHENIA GRAVIS THROUGH RESEARCH, EDUCATION, COMMUNITY PROGRAMS AND ADVOCACY.
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IRS990/Form990PartVIISectionAGrp/PersonNm0ALLAN WEISS MD
IRS990/Form990PartVIISectionAGrp/PersonNm1CHARLENE HAFER-MACKO
IRS990/Form990PartVIISectionAGrp/PersonNm2DENISE ROSSI
IRS990/Form990PartVIISectionAGrp/PersonNm3EDWARD T WALSH
IRS990/Form990PartVIISectionAGrp/PersonNm4JEFFREY PILGRIM
IRS990/Form990PartVIISectionAGrp/PersonNm5JENNIFER FAUCETT COTE
IRS990/Form990PartVIISectionAGrp/PersonNm6JURGEN VENITZ MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm7ROBERT L RUFF MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN J HAWCO
IRS990/Form990PartVIISectionAGrp/PersonNm9SUSAN KLINGER
IRS990/Form990PartVIISectionAGrp/PersonNm10SUZANNE RUFF PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11TOMMY SANTORA
IRS990/Form990PartVIISectionAGrp/PersonNm12MICHAEL LIFSHITZ
IRS990/Form990PartVIISectionAGrp/PersonNm13MARILYN RICCI
IRS990/Form990PartVIISectionAGrp/PersonNm14CELIA MEYER RN
IRS990/Form990PartVIISectionAGrp/PersonNm15KATHERINE RUZHANSKY MD
IRS990/Form990PartVIISectionAGrp/PersonNm16NANCY LAW
IRS990/Form990PartVIISectionAGrp/PersonNm17BETH ULBRICH
IRS990/Form990PartVIISectionAGrp/PersonNm18MARCIA LORIMER RN MSN CPN
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIRPERSON
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF EXECUTIVE
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18EXEC CMTEE OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01952
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IRS990/FSAuditedInd01
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IRS990/FundraisingDirectExpensesAmt0218178
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0488694
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantAmt0268294
IRS990/GrantsPayableGrp/BOYAmt0319167
IRS990/GrantsPayableGrp/EOYAmt0325354
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt01274
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt01274
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0267020
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IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0850000
IRS990/GrossReceiptsAmt02833649
IRS990/GrossSalesOfInventoryAmt01153
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IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt013
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IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt07791
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0131
IRS990/InformationTechnologyGrp/ProgramServicesAmt013721
IRS990/InformationTechnologyGrp/TotalAmt021643
IRS990/InsuranceGrp/ManagementAndGeneralAmt016881
IRS990/InsuranceGrp/TotalAmt016881
IRS990/InvestmentIncomeGrp/ExclusionAmt0179463
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0179463
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt06660890
IRS990/InvestmentsPubTradedSecGrp/EOYAmt06949826
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
IRS990/LandBldgEquipAccumDeprecAmt0157802
IRS990/LandBldgEquipBasisNetGrp/BOYAmt071586
IRS990/LandBldgEquipBasisNetGrp/EOYAmt087042
IRS990/LandBldgEquipCostOrOtherBssAmt0244844
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0361306
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0COMMITTED TO FINDING A CURE FOR MYASTHENIA GRAVIS AND CLOSELY RELATED DISORDERS, IMPROVING TREATMENT OPTIONS, AND PROVIDING INFORMATION AND SUPPORT TO PEOPLE WITH MYASTHENIA GRAVIS THROUGH RESEARCH, EDUCATION, COMMUNITY PROGRAMS AND ADVOCACY.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt07085032
IRS990/NetAssetsOrFundBalancesEOYAmt07645668
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt0488694
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0488694
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-218178
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-218178
IRS990/NetIncomeOrLossGrp/ExclusionAmt01153
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt01153
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0487232
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt012057
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt030348
IRS990/OfficeExpensesGrp/ProgramServicesAmt07984
IRS990/OfficeExpensesGrp/TotalAmt050389
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0CONTRACTED RESEARCH SER
IRS990/OtherExpensesGrp/Desc1PRINT, EBROCHURES AND P
IRS990/OtherExpensesGrp/Desc2REGISTRATIONS & OTHER
IRS990/OtherExpensesGrp/Desc3LOCAL PROGRAMMING
IRS990/OtherExpensesGrp/FundraisingAmt058087
IRS990/OtherExpensesGrp/FundraisingAmt14526
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt07487
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt19360
IRS990/OtherExpensesGrp/ProgramServicesAmt0377073
IRS990/OtherExpensesGrp/ProgramServicesAmt197048
IRS990/OtherExpensesGrp/ProgramServicesAmt2632
IRS990/OtherExpensesGrp/ProgramServicesAmt35481
IRS990/OtherExpensesGrp/TotalAmt0377073
IRS990/OtherExpensesGrp/TotalAmt1162622
IRS990/OtherExpensesGrp/TotalAmt214518
IRS990/OtherExpensesGrp/TotalAmt35481
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
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IRS990/OtherRevenueTotalAmt02910
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
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IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt03834447
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt038000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0161500
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0203038
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IRS990/PrincipalOfficerNm0EDWARD T WALSH
IRS990/ProfessionalFundraisingInd01
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IRS990/ProgramServiceRevenueGrp/Desc1CONFERENCE REGISTRATIO
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IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt130533
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0248069
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt130533
IRS990/ProgSrvcAccomActy2Grp/Desc0AWARENESS AND ADVOCACY: MGFA PROVIDES OVER 20 EDUCATIONAL BROCHURES ON TOPICS IMPORTANT TO PEOPLE LIVING WITH MG, FREE OF CHARGE TO PATIENTS AND THE PUBLIC. IN ADDITION, MGFA PROVIDES MANUALS AND INFORMATION FOR HEALTH CARE PROFESSIONALS. THE MGFA CONDUCTS AN ANNUAL AWARENESS CAMPAIGN, CENTERED ON JUNE AS THE MG AWARENESS MONTH, REACHING OUT TO PEOPLE THROUGH OUR SUPPORT GROUPS, AN AWARENESS TOOLKIT FOR ALL WHO ARE INTERESTED IN RAISING AWARENESS OF MG IN THEIR COMMUNITIES, PRESS RELEASES, POSTERS AND PROMOTION IN SOCIAL MEDIA. THE MG WALK ALSO SERVES AS A VEHICLE TO GROW AWARENESS AND LINK PATIENTS AND FAMILIES IN MORE THAN 35 COMMUNITIES NATIONWIDE. MGFA MAINTAINS AN EXTENSIVE WEBSITE WITH EDUCATIONAL CONTENT AND NEWS AS WELL AS FACEBOOK PAGE TO PROMOTE AWARENESS AND THE ORGANIZATION'S EDUCATIONAL MISSION. ANNUALLY, A PATIENT EDUCATION CONFERENCE IS PRODUCED IN VARIOUS LOCALES AROUND THE U.S. WITH A FULL PROGRAM OF SPEAKERS, WORKSHOPS AND EXHIBITORS OVER 2 DAYS. THE FOCUS ON MG NEWSLETTER COVERS PATIENT STORIES, ORGANIZATIONAL ACTIVITIES, COMMUNITY AND SUPPORT GROUP ACTIVITIES, AND RESEARCH UPDATES AND IS SENT TO 25,000 PLUS PEOPLE TWICE A YEAR.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0354900
IRS990/ProgSrvcAccomActy3Grp/Desc0INFORMATION, EDUCATION, AND SUPPORT: MGFA PROVIDES MATERIAL, INFORMATION AND REFERRAL, AND EDUCATION AND SUPPORT PROGRAMS TO HELP PEOPLE MANAGE THE CHALLENGES OF LIVING WITH MYASTHENIA GRAVIS. MGFA IS A UNIFIED ORGANIZATION THAT SUPPORTS THE DELIVERY OF PROGRAMS AND SERVICE THROUGH CENTRAL MANAGEMENT OF A NETWORK OF MORE THAN 50 COMMUNITY GROUPS NATIONWIDE. MANUALS, TOOLS, ORIENTATION, NETWORKING AND TRAINING SESSIONS FOR GROUP LEADERS ARE FACILITATED BY THE HOME OFFICE. A DATABASE OF MEMBERS IS MAINTAINED, WITH A NEW TOOL IMPLEMENTED TO ALLOW FOR BETTER IDENTIFICATION OF MEMBERS AND THEIR NEEDS. THE FOUNDATION MAINTAINS A WEB RESOURCE JUST FOR COMMUNITY AND SUPPORT GROUP LEADERS. FOUNDATION STAFF RESPOND DAILY TO TELEPHONE AND EMAIL INQUIRIES FOR THOSE SEEKING INFORMATION ABOUT MG AND CONNECTION TO COMMUNITY RESOURCES. EDUCATIONAL WEBINARS ARE PROVIDED SEVERAL TIMES A YEAR. MGFA HAS A HIGHLY ENGAGED MEDICAL AND SCIENTIFIC ADVISORY BOARD AND NURSES ADVISORY BOARD, POPULATED BY TOP MG EXPERTS WHO SUPPORT THE ORGANIZATION THROUGH REVIEW OF ALL MATERIALS AND INFORMATION OF A MEDICAL NATURE, AND WHO SERVE AS SPEAKERS AND SPOKESPERSONS FOR MGFA AS NEEDED.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0312694
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt030533
IRS990/ProgSrvcAccomActyOtherGrp/Desc0MGFA REACHES OUT TO THE MG COMMUNITY THROUGH SOCIAL MEDIA VEHICLES SUCH AS FACEBOOK AND TWITTER WHEN THERE IS BREAKING NEWS. THE ORGANIZATION HAS ALSO DEVELOPED TOOLS AND STRATEGIES TO HELP WITH HEALTH INSURANCE DENIALS FOR MG TREATMENTS AND THERAPIES, AND THROUGH AN ADVOCACY COMMITTEE, PARTNERSHIP WITH OTHER ORGANIZATIONS AND A GRASSROOTS NETWORK, SUPPORTS LEGISLATION AND ISSUES IMPORTANT TO THE MG COMMUNITY.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0137490
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02671377
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0262500
IRS990/PYInvestmentIncomeAmt0356338
IRS990/PYOtherExpensesAmt01402928
IRS990/PYOtherRevenueAmt0-201406
IRS990/PYProgramServiceRevenueAmt0161712
IRS990/PYRevenuesLessExpensesAmt01072593
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt01915428
IRS990/PYTotalProfFndrsngExpnsAmt0250000
IRS990/PYTotalRevenueAmt02988021
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt073404

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,396,106
Liabilities
$750,438
Net assets
$7,645,668
Revenue
$2,254,165
Expenses
$2,180,761
Net income
$73,404
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$13.6$1.85$11.7$5.67$5.08$0.59
2023Detailed filing. Detailed filing data is available for this year.$12.0$1.40$10.6$3.56$3.58$0.02
2022Detailed filing. Detailed filing data is available for this year.$11.4$1.33$10.0$4.39$3.79$0.60
2021Detailed filing. Detailed filing data is available for this year.$12.1$1.22$10.9$3.84$3.01$0.83
2020Detailed filing. Detailed filing data is available for this year.$10.6$0.87$9.73$3.58$2.48$1.10
2019Detailed filing. Detailed filing data is available for this year.$9.51$0.97$8.54$2.58$2.27$0.31
2018Detailed filing. Detailed filing data is available for this year.$8.15$0.81$7.34$2.59$1.96$0.63
2017Detailed filing. Detailed filing data is available for this year.$8.40$0.75$7.65$2.25$2.18$0.07
2016Detailed filing. Detailed filing data is available for this year.$7.64$0.56$7.09$2.99$1.92$1.07
2015Summary only. Only limited summary data is available for this year.$6.42$0.55$5.87$1.64$1.65$0.00
2014Detailed filing. Detailed filing data is available for this year.$6.90$0.42$6.48$1.50$1.66$0.15
2013Detailed filing. Detailed filing data is available for this year.$6.94$0.34$6.61$1.61$1.32$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.77$0.11$5.66$1.19
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$0.27$4.97$1.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.84$0.30$5.54$0.79