Civic Intelligence

National Multiple Sclerosis Society

EIN 13-5661935 • 501(c)3 • New York, NY

Profile

We will cure ms while empowering people affected by ms to live their best lives.diversity, equity and inclusionthe society has prioritized diversity, equity and inclusion. To ensure its presence, the following statement is read before all meetings to ground staff in our work. The national multiple sclerosis society is a movement by and for all people affected by ms. Our voices and actions reflect diversity, equity, and inclusion. We welcome and value diverse perspectives. We actively seek out and embrace differences. We want everyone to feel respected and be empowered to bring their whole selves to ensure we make the best decisions to achieve our mission.

733 Third AvenueNew York, NY 10017-3211

www.nationalmssociety.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

62nd percentile

0.41x

Higher debt load relative to assets than 62% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2023

Liabilities / Revenue

54th percentile

0.50x

Higher debt load relative to revenue than 54% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2023

Net Margin

11th percentile

-16%

Higher net margin than 11% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2023

Top Officer Pay

48th percentile

$489,504

Higher top officer pay than 48% of similar nonprofits.

Top officer pay equals 0.3% of source-year revenue.

501(c)3 • $100M-$250M nonprofits • Source year 2021

Asset Growth

23rd percentile

-0.7%

Faster asset growth than 23% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Annualized from 2022 to 2023

Revenue Growth

13th percentile

-13%

Faster revenue growth than 13% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Annualized from 2022 to 2023

Assets

Up

$201,117,763

Up $16,888,249 (+9.2%) from 2023

Liabilities

Down

$73,624,690

Down $1,065,975 (-1.4%) from 2023

Net Assets

Up

$127,493,073

Up $17,954,224 (+16%) from 2023

Revenue

Up

$171,750,637

Up $22,299,391 (+15%) from 2023

Expenses

Down

$169,076,414

Down $3,809,443 (-2.2%) from 2023

Net Income

Up

$2,674,223

Up $26,108,834 (+111%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300M$200M$100M$0Assets 2010: $71,339,386Liabilities 2010: $43,536,948Net Assets 2010: $27,802,4382010Assets 2011: $76,020,323Liabilities 2011: $51,558,467Net Assets 2011: $24,461,8562011Assets 2012: $78,420,407Liabilities 2012: $53,280,149Net Assets 2012: $25,140,2582012Assets 2013: $87,051,124Liabilities 2013: $59,776,103Net Assets 2013: $27,275,0212013Assets 2014: $104,343,829Liabilities 2014: $71,929,154Net Assets 2014: $32,414,6752014Assets 2015: $120,813,206Liabilities 2015: $94,409,691Net Assets 2015: $26,403,5152015Assets 2016: $110,314,180Liabilities 2016: $86,285,441Net Assets 2016: $24,028,7392016Assets 2017: $155,990,278Liabilities 2017: $73,547,574Net Assets 2017: $82,442,7042017Assets 2018: $174,750,836Liabilities 2018: $70,305,489Net Assets 2018: $104,445,3472018Assets 2019: $184,662,971Liabilities 2019: $66,108,264Net Assets 2019: $118,554,7072019Assets 2020: $173,433,035Liabilities 2020: $57,601,368Net Assets 2020: $115,831,6672020Assets 2021: $201,483,349Liabilities 2021: $67,259,714Net Assets 2021: $134,223,6352021Assets 2022: $185,523,085Liabilities 2022: $61,129,294Net Assets 2022: $124,393,7912022Assets 2023: $184,229,514Liabilities 2023: $74,690,665Net Assets 2023: $109,538,8492023Assets 2024: $201,117,763Liabilities 2024: $73,624,690Net Assets 2024: $127,493,0732024

Highlighted filing

2024

Assets$201,117,763
Liabilities$73,624,690
Net Assets$127,493,073

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$200M$100M$0-$100MExpenses 2010: $92,583,6032010Expenses 2011: $98,147,3012011Expenses 2012: $101,141,5382012Expenses 2013: $104,291,4012013Revenue 2014: $115,972,436Expenses 2014: $108,828,463Net Income 2014: $7,143,9732014Revenue 2015: $113,580,591Expenses 2015: $117,323,083Net Income 2015: -$3,742,4922015Revenue 2016: $108,435,816Expenses 2016: $117,517,772Net Income 2016: -$9,081,9562016Revenue 2017: $181,247,871Expenses 2017: $185,525,045Net Income 2017: -$4,277,1742017Revenue 2018: $196,550,538Expenses 2018: $176,098,613Net Income 2018: $20,451,9252018Revenue 2019: $196,889,837Expenses 2019: $181,293,702Net Income 2019: $15,596,1352019Revenue 2020: $155,230,514Expenses 2020: $158,593,669Net Income 2020: -$3,363,1552020Revenue 2021: $146,424,652Expenses 2021: $138,426,378Net Income 2021: $7,998,2742021Revenue 2022: $171,945,464Expenses 2022: $159,668,291Net Income 2022: $12,277,1732022Revenue 2023: $149,451,246Expenses 2023: $172,885,857Net Income 2023: -$23,434,6112023Revenue 2024: $171,750,637Expenses 2024: $169,076,414Net Income 2024: $2,674,2232024

Highlighted filing

2024

Revenue$171,750,637
Expenses$169,076,414
Net Income$2,674,223

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$201$73.6$127$172$169$2.67
2023Detailed filing. Detailed filing data is available for this year.$184$74.7$110$149$173$23.4
2022Detailed filing. Detailed filing data is available for this year.$186$61.1$124$172$160$12.3
2021Detailed filing. Detailed filing data is available for this year.$201$67.3$134$146$138$8.00
2020Detailed filing. Detailed filing data is available for this year.$173$57.6$116$155$159$3.36
2019Detailed filing. Detailed filing data is available for this year.$185$66.1$119$197$181$15.6
2018Summary only. Only limited summary data is available for this year.$175$70.3$104$197$176$20.5
2017Detailed filing. Detailed filing data is available for this year.$156$73.5$82.4$181$186$4.28
2016Detailed filing. Detailed filing data is available for this year.$110$86.3$24.0$108$118$9.08
2015Detailed filing. Detailed filing data is available for this year.$121$94.4$26.4$114$117$3.74
2014Detailed filing. Detailed filing data is available for this year.$104$71.9$32.4$116$109$7.14
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$87.1$59.8$27.3$104
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$78.4$53.3$25.1$101
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$76.0$51.6$24.5$98.1
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$71.3$43.5$27.8$92.6
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
May 21, 2025
Return Version
2023v6.0
Gross Receipts
$213,116,583
Mission and Program Overview

Mission

PEOPLE AFFECTED BY MS CAN LIVE THEIR BEST LIVES AS WE STOP MS IN ITS TRACKS, RESTORE WHAT HAS BEEN LOST AND END MS FOREVER. Effective 10/1/16, the Society consolidated the 36 chapters and the national headquarters into a single entity under one EIN. See Sch. O.

We will cure ms while empowering people affected by ms to live their best lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$97,185,609$111,852,609▲ $14,667,000
Savings and Temporary Cash Investments$45,147,637$22,733,586▼ $22,414,051
Pledges and Grants Receivable$16,179,235$10,993,676▼ $5,185,559
Prepaid Expenses and Deferred Charges$4,743,599$6,471,020▲ $1,727,421
Land, Buildings, and Equipment, Net$3,025,924$3,885,974▲ $860,050
Accounts Receivable$426,663$343,656▼ $83,007
Investments Other Securities$153,584$154,480▲ $896
Total Assets$184,229,514$201,117,763▲ $16,888,249
Other Assets Total$17,367,263$44,682,762▲ $27,315,499
Liabilities
Grants Payable$24,307,666$24,049,274▼ $258,392
Escrow Account Liability$13,687,461$14,564,199▲ $876,738
Accounts Payable and Accrued Expenses$14,683,244$14,142,448▼ $540,796
Other Liabilities$15,589,321$12,244,687▼ $3,344,634
Deferred Revenue$6,422,973$8,624,082▲ $2,201,109
Total Liabilities$74,690,665$73,624,690▼ $1,065,975
Net Assets / Fund Balance
Net Assets With Donor Restrictions$50,521,843$73,075,073▲ $22,553,230
Net Assets Without Donor Restrictions$59,017,006$54,418,000▼ $4,599,006
Total Net Assets Fund Balance$109,538,849$127,493,073▲ $17,954,224
Total Liabilities and Net Assets / Fund Balance$184,229,514$201,117,763▲ $16,888,249

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,969,135$2,158,301$5,127,436
Other Land Buildings$8,300$2,775,492$2,783,792
Leasehold Improvements$908,539$619,253$1,527,792
Other Assets Org$5,934,086--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$19,860,478-▲ $4,561,084$703,347$23,657,330
2022$18,296,930$5,000▲ $2,600,261$1,011,097$19,860,478
2021$23,355,758$553▼ $4,254,137$734,562$18,296,930
2020$20,280,605$211,969▲ $5,090,737$2,182,798$23,355,758
2019$21,446,141$291,990▼ $870,352$193,288$20,280,605
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tami Caesar Thru 122023Chief Operating OfficerFT$393,122$345,242$738,364
Cynthia ZagieboyloPresident & CEO (thru 07/2024)FT$630,435$14,958$645,393
Timothy CoetzeePresident & CEO (as of 07/2024)FT$385,380$63,156$448,536
Lisa Goldfarb Thru 052024Chief Ppl, Vol & Comm Eng OfficerFT$391,879$15,991$407,870
Bari TalenteEvp, Advocacy & Healthcare AccessFT$271,742$64,698$336,440
Cynthia BertrandoChief Financial OfficerFT$275,591$52,587$328,178
Jennifer LeeEvp, DevelopmentFT$292,165$34,237$326,402
Phyllis Robsham Thru 072024Evp, Community LeadershipFT$277,045$30,177$307,222
Whitnie GladdenGeneral CounselFT$270,835$25,810$296,645
Ron Zwerin Thru 062024Evp, Mkt, Brand & CommunicationsFT$230,421$54,341$284,762
Ronda KrierEvp, TechnologyFT$217,874$61,568$279,442
Bruce BeboEvp, ResearchFT$233,185$37,795$270,980
Rebecca FehligEvp, Operations (thru 07/2024)FT$222,208$10,783$232,991
Karen MarinerEvp, Programs & SupportFT$194,331$22,048$216,379
Misty Flowers as of 062024Evp, Finance & OperationsFT$163,811$47,585$211,396
Graham McreynoldsFormer Avp, Global Initiatives-$122,590$8,220$130,810

Board Members and Trustees

NameTitle
Peter PorrinoChair
Bonnie HigginsVice Chair
Caroline WhitacreVice Chair
Dana M FooteVice Chair
Andy HarrisDirector
Chris CampbellDirector
David M RottkampDirector
Ian HarrisDirector
Jami StewartDirector
Kassaundra EscaleraDirector
Linda McaleerDirector
Mark LivingstonDirector
Michele DinnDirector
Peter GalliganDirector
Rick McdermottDirector
Robert ShinDirector
Russell ParkerDirector
Shyam GidumalDirector
Timothy HuskeyDirector
Tobi RogowskyDirector
Wendi WasikDirector
William HolleyDirector
Andrea LindsleyDirector (as of 11/2023)
Don FracchiaDirector (as of 11/2023)
Helen MyersDirector (as of 11/2023)
Jamie LarsenDirector (as of 11/2023)
Nancy SicotteDirector (as of 11/2023)
Chet PorembskiDirector (thru 11/2023)
Elizabeth PageDirector (thru 11/2023)
Malcolm P Wattman EsqDirector (thru 11/2023)
Michael BogdonoffDirector (thru 11/2023)
Richard KnutsonDirector (thru 11/2023)
William T MonahanDirector (thru 11/2023)
Diana TwadellSecretary
Hafiz ChandiwalaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Merkle INCSee Schedule O7001 COLUMBIA GATEWAY DRIVE, Columbia, MD 21046$9,988,394
Slalom INCIt Professional Services255 S KING ST STE 1800, Seattle, WA 98104$3,424,178
Global Cloud LtdIt/processing Services30 WEST THIRD STREET, Cincinnati, OH 45202$1,568,667
Provident Contruction INCConstruction12424 E WEAVER PLACE, Centennial, CO 80111$849,159
Intecrowd LLCIt Professional Services8927 HYPOLUXO ROAD STE A4-330, Lake Worth, FL 33467$754,004
Revenue and Support

Revenue Composition

Contributions and Grants
$164,094,474
Program Service Revenue
$0
Investment Income
$6,657,527
Other Revenue
$998,636
All Other Contributions
$83,818,823
Change in Net Assets
$2,674,223

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded222$2,511,664Fair Market Value (FMV)
Total Noncash Contributions222$2,511,664-

Audited Revenue Reconciliation

Revenue per Audited Statements
$171,458,028
Revenue Not Reported on Financial Statements
$292,609
Revenue Not Reported on Form 990
$25,366,313
Total Revenue per Audited Statements
$196,824,341
Total Revenue per Form 990
$171,750,637
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$94,295,974
Other Expenses$42,178,454
Total Fundraising Expense$33,798,958
Grants and Similar Amounts Paid$30,200,989
Professional Fundraising Fees$2,400,997

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$48,511,984$7,870,726$11,851,200$68,233,910
Grants to Domestic Orgs$23,849,553--$23,849,553
Other Employee Benefits$10,152,013$1,647,092$2,480,080$14,279,185
Information Technology$6,962,681$1,012,090$1,848,889$9,823,660
Fees for Services Other$4,504,109$39,549$1,483,649$6,027,307
Occupancy$3,978,077$694,219$1,121,948$5,794,244
Payroll Taxes$3,866,345$627,287$944,526$5,438,158
Current Officers, Directors, Trustees, and Key Employees$2,964,189$480,919$724,135$4,169,243
Office Expenses$96,582$71,601$3,271,261$3,439,444
Foreign Grants$3,378,735--$3,378,735
Advertising$841,901$120,281$2,399,500$3,361,682
Grants to Domestic Individuals$2,972,701--$2,972,701
Fees for Services Professional Fundraising--$2,400,997$2,400,997
Pension Plan Contributions$1,546,691$250,940$377,847$2,175,478
Conferences and Meetings$1,306,081$41,859$206,280$1,554,220
Insurance$900,715$157,284$254,108$1,312,107
Depreciation Depletion$704,427$122,587$198,406$1,025,420
Travel$420,837$35,583$430,781$887,201
Fees for Services Legal-$620,418-$620,418
All Other Expenses$385,920$70,501$58,794$515,215
Fees for Service Investment Mgmnt Fees-$292,609-$292,609
Fees for Services Accounting-$179,230-$179,230
Fees for Services Lobbying$72,567--$72,567
Fees for Services Management-$65,444-$65,444
Other Expenses$18,169$30,359$10,328$58,856
Total Functional Expenses$608,713$668,475$3,799,900$5,077,088

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$178,870,117
Total Expenses per Form 990$169,076,414
Expenses per Audited Statements$168,783,805
Expenses Not Reported on Form 990$10,086,312
Expenses Not Reported on Financial Statements$292,609
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cleveland Clinic FoundationCleveland, OH501(c)(3)Research$1,360,586
University of UtahSalt Lake City, UTGovResearch$1,285,905
University of California San FranciscoSan Francisco, CAGovResearch$1,170,335
Columbia UniversityNew York, NY501(c)(3)Research$1,160,387
Johns Hopkins UniversityBaltimore, MD501(c)(3)Research$1,149,283
Yale UniversityNew Haven, CT501(c)(3)Research$883,888
Stanford UniversityPalo Alto, CA501(c)(3)Research$741,761
University of Colorado DenverAurora, COGovResearch$721,158
BRIGHAM & WOMEN'S HOSPITALBoston, MA501(c)(3)Research$714,496
Weill Cornell Medical CollegeNew York, NY501(c)(3)Research$564,561
University of PennsylvaniaPhiladelphia, PAGovResearch$537,646
Empire Discovery Institute IncRochester, NY501(c)(3)Research$506,837
University of Illinois at ChicagoChicago, ILGovResearch$482,342
Accelerated Cure Project for MsWaltham, MA501(c)(3)Research$479,172
Kessler Foundation Research CenterEast Hanover, NJ501(c)(3)Research$434,893
University of WashingtonSeattle, WAGovResearch$432,194
Clene Nanomedicine IncSalt Lake City, UTN/aResearch$427,031
Oregon Health & Science UniversityPortland, OR501(c)(3)Research$418,299
Wayne State UniversityDetroit, MIGovResearch$398,074
Regents of the University of MichiganAnn Arbor, MIGovResearch$384,235
University of California RiversideRiverside, CAGovResearch$368,803
The Population Council IncNew York, NY501(c)(3)Research$330,000
NAT'L INST OF HEALTHNAT'L INST OF NEUROLOGICAL DISORDERS & STROKEBethesda, MD501(c)(3)Research$312,447
Virginia Commonwealth UniversityRichmond, VAGovResearch$286,929
The University of Texas Southwestern Medical CenterDallas, TX501(c)(3)Research$281,202
Washington UniversitySt Louis, MOGovResearch$277,019
Colorado State UniversityFort Collins, COGovResearch$256,508
Dignity HealthPhoenix, AZ501(c)(3)Research$254,668
The Mgh Institute of Health ProfessionsCharlestown, MA501(c)(3)Research$240,276
University of MassachusettsBoston, MAGovResearch$239,799
University of California San DiegoLa Jolla, CAGovResearch$229,954
University of Notre Dame Du LacNotre Dame, IN501(c)(3)Research$222,933
Case Western Reserve UniversityCleveland, OH501(c)(3)Research$210,335
University of Southern CaliforniaLos Angeles, CAGovResearch$206,731
The University of IowaIowa City, IAGovResearch$205,596
Childrens Hospital Medical CenterCincinnati, OH501(c)(3)Research$200,000
Henry Ford Health SystemDetroit, MI501(c)(3)Research$199,450
Cedars Sinai Medical CenterLos Angeles, CA501(c)(3)Research$197,327
State of MarylandBaltimore, MDGovResearch$195,240
Icahn School of Medicine at Mount SinaiNew York, NY501(c)(3)Clinical$191,875
Regents of the University of MichiganAnn Arbor, MIGovClinical$191,875
Benaroya Research InstituteSeattle, WA501(c)(3)Research$190,819
Johns Hopkins UniversityBaltimore, MD501(c)(3)Clinical$186,925
University of Kansas Medical Center Research Institute IncKansas City, KS501(c)(3)Research$186,719
Washington UniversitySt Louis, MOGovClinical$176,963
Cleveland Clinic FoundationCleveland, OH501(c)(3)Clinical$163,219
Icahn School of Medicine at Mount SinaiNew York, NY501(c)(3)Research$151,875
American Brain FoundationMinneapolis, MN501(c)(3)Research$150,000
Mcking Consulting CorpFairfax, VAN/aResearch$146,377
Mount Sinai Rehabilitation Hospital IncHartford, CT501(c)(3)Research$141,562
Loyola University of ChicagoChicago, IL501(c)(3)Research$137,500
New York University Langone Medical CenterNew York, NY501(c)(3)Research$130,763
Georgetown UniversityWashington, DC501(c)(3)Research$123,046
Neurogenesis Bio IncRochester, NYN/aResearch$120,000
Rehabilition Institute of ChicagoChicago, IL501(c)(3)Research$118,643
BRIGHAM & WOMEN'S HOSPITALBoston, MA501(c)(3)Clinical$116,875
Oregon Health & Science UniversityPortland, OR501(c)(3)Clinical$116,875
University of RochesterRochester, NY501(c)(3)Clinical$116,875
Massachusetts General HospitalBoston, MA501(c)(3)Research$114,259
Emory UniversityAtlanta, GA501(c)(3)Research$112,671
Vanderbilt University Medical CenterNashville, TN501(c)(3)Clinical$112,500
Versiti Wisconsin IncMilwaukee, WI501(c)(3)Research$110,000
Childrens Hospital CorporationBoston, MA501(c)(3)Research$98,432
Virginia Commonwealth UniversityRichmond, VAGovClinical$97,900
University of Southern CaliforniaLos Angeles, CAGovClinical$96,250
University of Colorado DenverAurora, COGovClinical$93,750
Columbia UniversityNew York, NY501(c)(3)Clinical$85,606
University of FloridaGainesville, FLGovResearch$65,923
Massachusetts General HospitalBoston, MA501(c)(3)Clinical$56,250
Northwestern UniversityEvanston, IL501(c)(3)Clinical$56,250
The University of South Florida Board of TrusteesTampa, FL501(c)(3)Clinical$56,250
University of California San DiegoLa Jolla, CAGovClinical$56,250
The Curators of the University of MissouriSt Louis, MOGovResearch$53,955
University of California BerkeleyBerkeley, CAGovResearch$41,490
The Ohio State UniversityColumbus, OHGovResearch$39,587
Vanderbilt University Medical CenterNashville, TN501(c)(3)Research$30,568
University of California San FranciscoSan Francisco, CAGovClinical$29,219
University of AlabamaBirmingham, ALGovClinical$28,149
Emory UniversityAtlanta, GA501(c)(3)Clinical$18,750
New York University Langone Medical CenterNew York, NY501(c)(3)Clinical$18,750
The Ohio State UniversityColumbus, OHGovClinical$18,750
University of Texas at AustinAustin, TXGovClinical$18,750
University of WashingtonSeattle, WAGovClinical$18,750
University of North Carolina at Chapel HillChapel Hill, NCGovResearch$17,124
Trustees of Dartmouth CollegeHanover, NH501(c)(3)Research$16,916
University of Massachusetts Chan Medical SchoolWorcester, MAGovResearch$16,916

International Summary

Offices
0
Employees
25
Spending
$3,378,735

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grantmaking-014$1,787,068
East Asia and the PacificGrantmaking-05$1,051,271
North AmericaGrantmaking-06$540,396
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$23,465,772
Fundraising Gross Income$23,465,772
Professional Fundraising Fees$2,400,997
Gaming Gross Income$74,985
Gaming Direct Expenses$5,432

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Bike Ms (50)$51,813,064$13,261,975$7,621,496$5,640,479
Walk Ms (218)$33,645,011$5,950,469$3,367,110$2,583,359
Total Events$103,383,411$23,465,772$23,465,772$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liabilities$10,551,044
Due to Annuitants$1,308,174
Other Liabilities$385,469
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

Classes of members or stockholders the voting members of the society serve on the delegate assembly and are comprised of chairs of the boards of trustees and governance and community engagement committee chairs from each of the 31 chapters of the national ms society, the national board of directors, and the ceo advisory committee chairs.

Form 990, Part VI, Section A, Line 7A

Election of members and their rights all members of the board of directors are elected by the delegate assembly, which is comprised of voting members of the organization, as outlined in the bylaws. The delegate assembly is comprised of (1) the directors of the society; (2) the chair of the board of trustees for each chapter of the society; (3) the chair of each chapter's community engagement committee; (4) the chair of each chapter's governance committee; and (5) the chair of each ceo advisory committee.

Form 990, Part VI, Section A, Line 7B

Decisions subject to approval of members the delegate assembly elects the governing body, approves any by-law changes and approves the society's strategic plan.

Form 990, Part VI, Section B, Line 11B

Organization's process to review form 990 the form 990 and accompanying schedules are prepared by an external independent accounting firm in conjunction with management. It is then provided to the audit committee members for review, comments, corrections, and edits. A meeting of the audit committee is held to discuss any edits, approve the revised form 990, and approve distribution to the society board of directors. The society board is given a two-week period to review and comment on form 990 before the return is filed with the internal revenue service.

Form 990, Part VI, Section B, Line 12C

Enforcement of conflicts policy each director must complete a conflict of interest questionnaire prior to becoming a director and annually thereafter. Each officer, key person or covered individual must complete a conflict of interest questionaire when assuming the relevant position and annually thereafter. All information in completed questionnaires or subsequent disclosures shall be compiled and reported by management to the board of directors. A list of individuals and organizations identified as related parties through the annual disclosure process ("related party list") shall be assembled and provided to employees of the society or other individuals who have authority to sign contracts, enter into transactions, or sign checks on behalf of the society. Such individuals shall be responsible for reviewing the related party list before entering into a transaction or signing a check to confirm whether it is a potential related party transaction. In addition, to proactively identify potential conflicts, we inquire the board at the start of each board meeting. If a potential related party transaction is identified, information regarding the proposed transaction must be provided to the evp, general counsel, for review. Such individual shall be responsible for confirming whether the proposed transaction is a related party transaction and may consult with outside legal counsel to assist with this review.

Form 990, Part VI, Section B, Line 15A

Compensation process the compensation committee is comprised of at least three (3) independent board members, including the board chair. On an annual basis, the committee is provided with comparable salary information and data for executive positions at other voluntary healthcare agencies of similar size and national influence. This information is used to evaluate the performance of and determine any compensation changes for the president and ceo as well as ensure the equitability of society officers. Results of the president and ceo's compensation are reviewed with the board during executive session. Form 990, part vi, line 17 & schedule g, part i, line 3 the society is registered or licensed to solicit in the following states and jurisdictions: al, ak, ar, ca, co, ct, d.c., fl, ga, hi, il, ks, ky, la, me, md, ma, mi, mn, ms, mo, nv, nh, nj, nm, ny, nc, nd, oh, ok, or, pa, ri, sc, tn, ut, va, wa, wv, wi.

Form 990, Part VI, Section C, Line 19

Governing documents disclosure explanation the society's irs form 990, irs form 990-t and audited financial statements are available at www.nationalmssociety.org, and on the charity navigator website. The society's governing documents, record retention and conflict of interest policy are available upon request. Form 990, part vii/schedule j tim coetzee was promoted to ceo as of july 2024. The calendar year 2023 compensation reflected on both part vii and schedule j corresponds to his previous role as chief advocacy, services & science officer. Misty flowers was promoted to evp, finance and operations as of june 2024. The calendar year 2023 compensation reflected on both part vii and schedule j corresponds to her previous role as vp, financial planning and enterprise analytics. Form 990, part vii-b, the professional services from independent contractor, merkle inc. Merkle inc. Supports the society by developing strategies, segmentation plans, and tactical approaches for its direct marketing initiatives. These efforts encompass fundraising and stewardship through various channels such as direct mail, email, and web asset campaigns. Beyond strategic planning, merkle also manages the execution of the society's comprehensive direct marketing program, encompassing over twenty-one acquisition campaigns each year, monthly renewal campaigns, monthly email communications, and ongoing acknowledgment and tax receipting of donor gifts.

Filing and Contact Details

Filer

Filer Name
National Multiple Sclerosis Society
EIN
13-5661935
Phone
8553721331
Address
733 THIRD AVENUE, NEW YORK, NY 10017-3211

Signing Officer

Name
Cindy Bertrando
Title
Chief Financial Officer
Phone
2677655102
Signed
2025-05-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Timothy Coetzee
Formed
1946
Legal Domicile
Ny
Voting Board Members
30
Independent Board Members
29
Employees
1,035
Volunteers
34,000

Preparer

Firm
Grant Thornton Advisors LLC
Address
757 THIRD AVENUE 3RD FLOOR, NEW YORK, NY 10017-2013
Preparer
Daniel Romano
Phone
2125990100
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Change in fair value of beneficial interest in trust 379,089. Change in value of split-interest agreements -75,183.

Financial Statement Notes

PART IV, LINE 2B:

Escrow liability arrangement explanation the society is the lead agency and a managing member of the progressive ms alliance, along with associanzione italiana sclerosi multipla (italy), ms australia, multiple sclerosis international federation, ms society (united kingdom), and the multiple sclerosis society of canada. The alliance is open to ms organizations from around the world and it is continually seeking new member organizations from the global ms community. The alliance made a joint commitment to accelerate the development of treatment for progressive ms. The alliance has three priority objectives which include: understand, prevent and reverse progression, speed up and improve clinical trials, and improve well-being through proven therapeutic approaches. Our focus and mission remain clear: to accelerate the development of effective treatments for people with multiple sclerosis worldwide. The alliance invests in research that advances our understanding of progressive ms, identifies potential new treatments, and creates tools to speed up and improve clinical trials. As a managing member, the society contributed $14,331,769 through fiscal 2024 and has committed $558,036 over the next year, conditional on various factors. In addition, as the lead agency, the society maintains custody of the pooled funds contributed from other alliance members. The disbursement of funds for progressive ms research initiatives is approved by the executive committee, made up of the ceos of the managing member organizations. The society received a total of $2,912,489 during the year ending september 30, 2024 from alliance members, which will be held until such time the funds are approved for expenditure. As of september 30, 2024, the society recorded unspent donated funds, consisting of both society and other alliance members' monies, totaling $14,564,199, as a liability.

PART V, LINE 4:

Intended uses of endowment fund the endowment assets are invested in a manner intended to preserve their value consistent with such donor stipulations, minimize the effect of high economic volatility and/or low investment return and provide funding for the programs specified by the donors, including the marilyn hilton ms achievement center, direct financial assistance, research, and other general services, programs and operations.

PART X, LINE 2:

Fin 48 footnote guidance in "accounting for uncertainty in income taxes" under the asc of the fasb clarifies the accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement. This standard provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is more likely than not to be sustained if the position were to be challenged by a taxing authority. The standard also provides guidance on measurement, classification, interest and penalties, and disclosure. The society has processes presently in place to ensure the maintenance of its tax-exempt status; to identify and report unrelated income; to determine its filing and tax obligations in jurisdictions for which it has nexus; and, to identify and evaluate other matters that may be considered tax positions. The society has determined that there are no material uncertain tax positions that require recognition or disclosure in the consolidated financial statements. For the year ending september 30, 2024, the society recorded $8,600 as a provision for income taxes from unrelated business income activities which is reflected within accounts payable and accrued liabilities on the accompanying consolidated statement of financial position.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Change in fair value of beneficial interest in trust 379,089. Change in value of split-interest agreements -75,183.

Raw XML AppendixShowing 400 of 2,610 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt500.00
IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd0X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd25X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd27X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd28X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd29X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd31X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd33X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd36X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd3X
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IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
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IRS990/Form990PartVIISectionAGrp/OfficerInd3X
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IRS990/Form990PartVIISectionAGrp/OfficerInd5X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt163156
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt498815
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt504931
IRS990/Form990PartVIISectionAGrp/PersonNm0CYNTHIA ZAGIEBOYLO
IRS990/Form990PartVIISectionAGrp/PersonNm1TIMOTHY COETZEE
IRS990/Form990PartVIISectionAGrp/PersonNm2PETER PORRINO
IRS990/Form990PartVIISectionAGrp/PersonNm3DANA M FOOTE
IRS990/Form990PartVIISectionAGrp/PersonNm4BONNIE HIGGINS
IRS990/Form990PartVIISectionAGrp/PersonNm5CAROLINE WHITACRE
IRS990/Form990PartVIISectionAGrp/PersonNm6DIANA TWADELL
IRS990/Form990PartVIISectionAGrp/PersonNm7HAFIZ CHANDIWALA
IRS990/Form990PartVIISectionAGrp/PersonNm8MICHAEL BOGDONOFF
IRS990/Form990PartVIISectionAGrp/PersonNm9CHRIS CAMPBELL
IRS990/Form990PartVIISectionAGrp/PersonNm10MICHELE DINN
IRS990/Form990PartVIISectionAGrp/PersonNm11KASSAUNDRA ESCALERA
IRS990/Form990PartVIISectionAGrp/PersonNm12DON FRACCHIA
IRS990/Form990PartVIISectionAGrp/PersonNm13PETER GALLIGAN
IRS990/Form990PartVIISectionAGrp/PersonNm14SHYAM GIDUMAL
IRS990/Form990PartVIISectionAGrp/PersonNm15ANDY HARRIS
IRS990/Form990PartVIISectionAGrp/PersonNm16IAN HARRIS
IRS990/Form990PartVIISectionAGrp/PersonNm17WILLIAM HOLLEY
IRS990/Form990PartVIISectionAGrp/PersonNm18TIMOTHY HUSKEY
IRS990/Form990PartVIISectionAGrp/PersonNm19RICHARD KNUTSON
IRS990/Form990PartVIISectionAGrp/PersonNm20JAMIE LARSEN
IRS990/Form990PartVIISectionAGrp/PersonNm21ANDREA LINDSLEY
IRS990/Form990PartVIISectionAGrp/PersonNm22MARK LIVINGSTON
IRS990/Form990PartVIISectionAGrp/PersonNm23LINDA MCALEER
IRS990/Form990PartVIISectionAGrp/PersonNm24RICK MCDERMOTT
IRS990/Form990PartVIISectionAGrp/PersonNm25WILLIAM T MONAHAN
IRS990/Form990PartVIISectionAGrp/PersonNm26HELEN MYERS
IRS990/Form990PartVIISectionAGrp/PersonNm27ELIZABETH PAGE
IRS990/Form990PartVIISectionAGrp/PersonNm28RUSSELL PARKER
IRS990/Form990PartVIISectionAGrp/PersonNm29CHET POREMBSKI
IRS990/Form990PartVIISectionAGrp/PersonNm30TOBI ROGOWSKY
IRS990/Form990PartVIISectionAGrp/PersonNm31DAVID M ROTTKAMP
IRS990/Form990PartVIISectionAGrp/PersonNm32ROBERT SHIN
IRS990/Form990PartVIISectionAGrp/PersonNm33NANCY SICOTTE
IRS990/Form990PartVIISectionAGrp/PersonNm34JAMI STEWART
IRS990/Form990PartVIISectionAGrp/PersonNm35WENDI WASIK
IRS990/Form990PartVIISectionAGrp/PersonNm36MALCOLM P WATTMAN ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm37CYNTHIA BERTRANDO
IRS990/Form990PartVIISectionAGrp/PersonNm38LISA GOLDFARB THRU 052024
IRS990/Form990PartVIISectionAGrp/PersonNm39TAMI CAESAR THRU 122023
IRS990/Form990PartVIISectionAGrp/PersonNm40JENNIFER LEE
IRS990/Form990PartVIISectionAGrp/PersonNm41BRUCE BEBO
IRS990/Form990PartVIISectionAGrp/PersonNm42RONDA KRIER
IRS990/Form990PartVIISectionAGrp/PersonNm43KAREN MARINER

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