Civic Intelligence

Als United Greater New York Inc

EIN 13-3616680 • 501(c)3 • New York, NY

Profile

The mission of als united greater new york is to support & empower the als community through a collaborative approach to fostering bold research initiatives, advancing national & state advocacy, & providing comprehensive care to individuals & families affected by als.

42 Broadway 1724New York, NY 10004

www.als-ny.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

62nd percentile

0.23x

Higher debt load relative to assets than 62% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

68th percentile

0.35x

Higher debt load relative to revenue than 68% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

17th percentile

-13%

Higher net margin than 17% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

80th percentile

$229,698

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 5.1% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

21st percentile

-4.4%

Faster asset growth than 21% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Revenue Growth

24th percentile

-7.8%

Faster revenue growth than 24% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Down

$6,641,980

Down $309,135 (-4.4%) from 2024

Liabilities

Up

$1,553,852

Up $246,028 (+19%) from 2024

Net Assets

Down

$5,088,128

Down $555,163 (-9.8%) from 2024

Operations
Liabilities / Revenue68th percentileNet Margin17th percentile

Revenue

Down

$4,470,387

Down $376,674 (-7.8%) from 2024

Expenses

Down

$5,067,113

Down $112,563 (-2.2%) from 2024

Net Income

Down

-$596,726

Down $264,111 (-79%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth21st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2012: $2,003,851Liabilities 2012: $75,374Net Assets 2012: $1,928,4772012Assets 2013: $2,257,691Liabilities 2013: $67,947Net Assets 2013: $2,189,7442013Assets 2014: $2,520,264Liabilities 2014: $283,530Net Assets 2014: $2,236,7342014Assets 2015: $7,457,306Liabilities 2015: $8,097Net Assets 2015: $7,449,2092015Assets 2016: $8,298,971Liabilities 2016: $22,439Net Assets 2016: $8,276,5322016Assets 2017: $8,553,147Liabilities 2017: $96,844Net Assets 2017: $8,456,3032017Assets 2019: $7,150,253Liabilities 2019: $505,921Net Assets 2019: $6,644,3322019Assets 2020: $6,275,284Liabilities 2020: $171,250Net Assets 2020: $6,104,0342020Assets 2021: $6,074,348Liabilities 2021: $266,944Net Assets 2021: $5,807,4042021Assets 2022: $7,108,895Liabilities 2022: $380,725Net Assets 2022: $6,728,1702022Assets 2023: $7,505,334Liabilities 2023: $1,569,729Net Assets 2023: $5,935,6052023Assets 2024: $6,951,115Liabilities 2024: $1,307,824Net Assets 2024: $5,643,2912024Assets 2025: $6,641,980Liabilities 2025: $1,553,852Net Assets 2025: $5,088,1282025

Highlighted filing

2025

Assets$6,641,980
Liabilities$1,553,852
Net Assets$5,088,128
Open 2025 Filing

Operations Trend

Revenue Growth24th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $2,427,415Expenses 2012: $2,607,931Net Income 2012: -$180,5162012Revenue 2013: $3,141,543Expenses 2013: $2,880,276Net Income 2013: $261,2672013Revenue 2014: $3,347,403Expenses 2014: $3,300,413Net Income 2014: $46,9902014Revenue 2015: $10,229,054Expenses 2015: $5,016,579Net Income 2015: $5,212,4752015Revenue 2016: $5,684,667Expenses 2016: $4,690,124Net Income 2016: $994,5432016Revenue 2017: $5,145,580Expenses 2017: $5,132,118Net Income 2017: $13,4622017Revenue 2019: $4,226,325Expenses 2019: $5,330,995Net Income 2019: -$1,104,6702019Revenue 2020: $4,364,755Expenses 2020: $5,202,080Net Income 2020: -$837,3252020Revenue 2021: $3,502,489Expenses 2021: $3,961,735Net Income 2021: -$459,2462021Revenue 2022: $5,803,291Expenses 2022: $4,768,654Net Income 2022: $1,034,6372022Revenue 2023: $4,837,719Expenses 2023: $5,193,328Net Income 2023: -$355,6092023Revenue 2024: $4,847,061Expenses 2024: $5,179,676Net Income 2024: -$332,6152024Revenue 2025: $4,470,387Expenses 2025: $5,067,113Net Income 2025: -$596,7262025

Highlighted filing

2025

Revenue$4,470,387
Expenses$5,067,113
Net Income-$596,726
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$6,641,980
Liabilities
$1,553,852
Net assets
$5,088,128
Revenue
$4,470,387
Expenses
$5,067,113
Net income
-$596,726
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.64$1.55$5.09$4.47$5.07$0.60
2024Detailed filing. Detailed filing data is available for this year.$6.95$1.31$5.64$4.85$5.18$0.33
2023Detailed filing. Detailed filing data is available for this year.$7.51$1.57$5.94$4.84$5.19$0.36
2022Detailed filing. Detailed filing data is available for this year.$7.11$0.38$6.73$5.80$4.77$1.03
2021Detailed filing. Detailed filing data is available for this year.$6.07$0.27$5.81$3.50$3.96$0.46
2020Detailed filing. Detailed filing data is available for this year.$6.28$0.17$6.10$4.36$5.20$0.84
2019Detailed filing. Detailed filing data is available for this year.$7.15$0.51$6.64$4.23$5.33$1.10
2017Summary only. Only limited summary data is available for this year.$8.55$0.10$8.46$5.15$5.13$0.01
2016Summary only. Only limited summary data is available for this year.$8.30$0.02$8.28$5.68$4.69$0.99
2015Summary only. Only limited summary data is available for this year.$7.46$0.01$7.45$10.2$5.02$5.21
2014Summary only. Only limited summary data is available for this year.$2.52$0.28$2.24$3.35$3.30$0.05
2013Summary only. Only limited summary data is available for this year.$2.26$0.07$2.19$3.14$2.88$0.26
2012Summary only. Only limited summary data is available for this year.$2.00$0.08$1.93$2.43$2.61$0.18
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Feb 1, 2024 to Jan 31, 2025
Signed
Sep 16, 2025
Return Version
2024v5.2
Gross Receipts
$6,702,817
Mission and Program Overview

Mission

The mission of als united greater new york is to support & empower the als community through a collaborative approach to fostering bold research initiatives, advancing national & state advocacy, & providing comprehensive care to individuals & families affected by als.

Discover treatments & a cure for als, & serve, advocate for, & empower people affected by als.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,239,144$2,958,488▼ $280,656
Cash and Non-Interest-Bearing Accounts$884,215$1,289,203▲ $404,988
Pledges and Grants Receivable$684,448$747,762▲ $63,314
Savings and Temporary Cash Investments$865,474$641,570▼ $223,904
Prepaid Expenses and Deferred Charges$148,332$133,451▼ $14,881
Land, Buildings, and Equipment, Net$28,649$20,352▼ $8,297
Total Assets$6,951,115$6,641,980▼ $309,135
Other Assets Total$1,100,853$851,154▼ $249,699
Liabilities
Other Liabilities$1,235,705$945,179▼ $290,526
Accounts Payable and Accrued Expenses$72,119$608,673▲ $536,554
Total Liabilities$1,307,824$1,553,852▲ $246,028
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,578,077$5,088,128▼ $489,949
Net Assets With Donor Restrictions$65,214$0▼ $65,214
Total Net Assets Fund Balance$5,643,291$5,088,128▼ $555,163
Total Liabilities and Net Assets / Fund Balance$6,951,115$6,641,980▼ $309,135

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$1,336,787$1,336,787
Leasehold Improvements$15,031$10,313$25,344
Other Land Buildings$5,321$19,763$25,084
Other Assets Org$28,458--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2025$3,456,550-▲ $262,107$735,214$2,983,443
2024$3,700,369$100,000▲ $226,181$570,000$3,456,550
2023$4,804,323$753,212▼ $326,551$1,530,615$3,700,369
2022$4,740,658$1,132,953▲ $71,743$1,141,031$4,804,323
2021$4,220,638$789,393▲ $356,512$625,885$4,740,658
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kristen CocomanPresident & CEOFT$222,572$7,126$229,698
Regina AckleyVice President & COOFT$160,391$17,001$177,392
Jordana NewlerDirector of FundraisingFT$121,501$15,834$137,335
Vivian BanksDirector of Ind. & Inst. GivingFT$118,762$15,752$134,514
Debra SchlossbergChief Care Svcs OfficerPT$116,409$3,789$120,198
Michelle MckenzieCare Svcs CoordinatorFT$105,759$4,333$110,092

Board Members and Trustees

NameTitle
Allen Popowitz EsqChairman
Lennard KatzVice Chair
Alan LevineDirector
Alice ClaarDirector
Amanda GluckDirector
David LubarsDirector
Dorine GordonDirector
Eric BernikerDirector
Joshua RandDirector
Kevin Glassman MdDirector
Lee BrodskyDirector
Matthew PerlineDirector
Nirali Shah EsqDirector
Peter RosenbergerDirector
Robert TuchmanDirector
Wendy J Schriber EsqDirector
Nancy MiringoffSecretary
W Marc LaneTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,408,121
Program Service Revenue
$0
Investment Income
$223,878
Other Revenue
$-1,161,612
All Other Contributions
$2,099,089
Change in Net Assets
$-596,726

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded12$111,908Fair Market Value (FMV)
Total Noncash Contributions12$111,908-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,470,387
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$41,563
Total Revenue per Audited Statements
$4,511,950
Total Revenue per Form 990
$4,470,387
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,430,916
Other Expenses$2,376,512
Total Fundraising Expense$457,910
Grants and Similar Amounts Paid$259,685
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,247,823$133,287$199,778$1,580,888
Current Officers, Directors, Trustees, and Key Employees$330,665$35,321$52,939$418,925
Grants to Domestic Individuals$259,685--$259,685
Other Employee Benefits$165,845$17,714$26,552$210,111
Office Expenses$107,980$67,781$31,840$207,601
Payroll Taxes$139,596$14,911$22,349$176,856
Occupancy$32,193-$114,315$146,508
Conferences and Meetings$45,967--$45,967
Pension Plan Contributions$34,837$3,721$5,578$44,136
Fees for Services Lobbying$42,450--$42,450
Fees for Services Accounting-$40,500-$40,500
Insurance-$18,051-$18,051
Depreciation Depletion$6,000$2,297-$8,297
Other Expenses$3,612-$4,430$3,612
Payments to Affiliates$805$86$129$1,020
Fees for Services Legal-$825-$825
Travel-$95-$95
Total Functional Expenses$4,274,614$334,589$457,910$5,067,113

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$5,067,113
Total Expenses per Audited Statements$5,067,113
Total Expenses per Form 990$5,067,113
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,450,522
Fundraising Gross Income$288,910
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk$1,514,890-$511,118-
Sports Dinner$544,594$83,166$431,097$-347,931
Total Events$2,931,957$288,910$1,450,522$-1,161,612
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$945,179
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board chairman allen j. Popowitz, esq. And board member joshua rand are brothers-in-law.”

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by the als-gny's public accountants and reviewed by the chief financial officer. The form 990 is provided to the full board prior to filing with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“On an annual basis, all officers and directors, as well as key employees are required to review and sign a conflict of interest policy. They are reminded at that time that they must notify the als-gny management at any time throughout the year if they feel there is even a question of a conflict of interest.”

Form 990, Part VI, Section B, Line 15

“The independent members of the board review and approve all compensation packages for other officers and key employees. Before any package is offered, salaries for similarly titled employees at other organizations are researched.”

Form 990, Part VI, Section C, Line 19

“The als-gny makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. The als-gny also makes the financial statements and the form 990 available via the website at www.als-ny.org.”

Filing and Contact Details

Filer

Filer Name
Als United Greater New York Inc
EIN
13-3616680
Phone
2126191400
Address
42 BROADWAY 1724, NEW YORK, NY 10004

Signing Officer

Name
Kristen Cocoman
Title
President & CEO
Phone
2126191400
Signed
2025-09-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristen Cocoman
Formed
1990
Legal Domicile
Ny
Voting Board Members
18
Independent Board Members
18
Employees
28
Volunteers
150

Preparer

Firm
CONDON O'MEARA MCGINTY & DONNELLY LLP
Address
ONE BATTERY PARK PLAZA 7TH FL, NEW YORK, NY 10004
Preparer
Alexander Lazzaruolo
Phone
2126617777
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“Board designated funds: the challenge, ramey and capital management funds at vanguard are board designated accounts. The challenge fund was created after 2014's ice bucket challenge with a spend-down plan between 5 and 7 years. The ramey fund was set up with a $1.6 million bequest and will be used entirely for patient services. The capital management fund was set up with some of the chapter's excess reserve funds to help the chapter to be able to take advantage of important research and patient services program funding opportunities when they arise.”

Raw XML AppendixShowing 400 of 740 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.
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IRS990/Desc0CARE SERVICES: ALS UNITED GREATER NEW YORK PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, LOWER AND MID-HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ORGANIZATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.
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IRS990/MissionDesc0TO SUPPORT & EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCING NATIONAL AND STATE ADVOCACY, & PROVIDING COMPREHENSIVE CARE TO INDIVIDUALS & FAMILIES AFFECTED BY ALS.
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IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH: ALS UNITED GREATER NEW YORK HAS FUNDED CLOSE TO $17 MILLION IN ALS-SPECIFIC RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE ORGANIZATION IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.
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IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC AWARENESS AND EDUCATION: ALS UNITED GREATER NEW YORK WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ORGANIZATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ORGANIZATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 63,000 VIEWERS VISIT OUR WEBSITE ANNUALLY TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, X AND LINKEDIN REACH 18,500 FOLLOWERS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY: ALS UNITED GREATER NEW YORK WORKS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS IN ORDER TO DRIVE THEM TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ORGANIZATION HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ORGANIZATION CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIRECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.
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