Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
990 • Fiscal year 2020 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
Liabilities / Revenue
45th percentile
Higher debt load relative to revenue than 45% of similar nonprofits.
Net Margin
14th percentile
Higher net margin than 14% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 21.8% of source-year revenue.
Asset Growth
21st percentile
Faster asset growth than 21% of similar nonprofits.
Revenue Growth
24th percentile
Faster revenue growth than 24% of similar nonprofits.
Assets
Down$951,447
Down $39,883 (-4.0%) from 2019
Net Assets
Down$939,632
Down $38,479 (-3.9%) from 2019
Liabilities
Down$11,815
Down $1,404 (-11%) from 2019
Revenue
Down$339,573
Down $103,296 (-23%) from 2019
Expenses
Up$426,086
Up $66,669 (+19%) from 2019
Net Income
Down-$86,513
Down $169,965 (-204%) from 2019
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $550,613 | $544,749 | ▼ $5,864 |
| Savings and Temporary Cash Investments | $251,042 | $330,591 | ▲ $79,549 |
| Cash and Non-Interest-Bearing Accounts | $149,138 | $39,699 | ▼ $109,439 |
| Accounts Receivable | $39,626 | $35,847 | ▼ $3,779 |
| Prepaid Expenses and Deferred Charges | $445 | $445 | → $0 |
| Land, Buildings, and Equipment, Net | $466 | $116 | ▼ $350 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $991,330 | $951,447 | ▼ $39,883 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $13,219 | $11,815 | ▼ $1,404 |
| Total Liabilities | $13,219 | $11,815 | ▼ $1,404 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $978,111 | $939,632 | ▼ $38,479 |
| Total Net Assets Fund Balance | $978,111 | $939,632 | ▼ $38,479 |
| Total Liabilities and Net Assets / Fund Balance | $991,330 | $951,447 | ▼ $39,883 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $3,019 | $3,019 |
| Other Land Buildings | $116 | $1,633 | $1,749 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2020 | $444,765 | - | ▲ $56,227 | - | $498,143 |
| 2019 | $382,146 | - | ▲ $65,302 | - | $444,765 |
| 2018 | - | $408,615 | ▼ $24,623 | - | $382,146 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Bruce Cowan | Executive Director | FT | $74,000 | $74,000 |
| Name | Title |
|---|---|
| Marc Krieger | President |
| Amy Gietzen | Board Member |
| Carla Gage | Board Member |
| Estelle Randolph | Board Member |
| Frederick Shaw | Board Member |
| Jeffrey Toromoreno | Board Member |
| Jonathan Schorr | Board Member |
| Mary Contadino | Board Member |
| Suzy Ballantyne | Board Member |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $228,061 |
| Salaries, Compensation, and Employee Benefits | $198,025 |
| Total Fundraising Expense | $102,155 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Payments to Affiliates | $171,073 | - | - | $171,073 |
| Other Salaries and Wages | $41,015 | $9,114 | $41,018 | $91,147 |
| Current Officers, Directors, Trustees, and Key Employees | $33,300 | $7,400 | $33,300 | $74,000 |
| Other Employee Benefits | $7,494 | $1,665 | $7,494 | $16,653 |
| Occupancy | $7,100 | $1,577 | $7,100 | $15,777 |
| Fees for Services Other | $2,763 | $9,751 | $2,308 | $14,822 |
| Payroll Taxes | $6,651 | $1,478 | $6,650 | $14,779 |
| All Other Expenses | $2,155 | $4,073 | $1,154 | $7,382 |
| Other Expenses | $122 | $2,376 | $1,144 | $2,498 |
| Office Expenses | $325 | $1,241 | $325 | $1,891 |
| Insurance | $651 | $145 | $650 | $1,446 |
| Pension Plan Contributions | $651 | $145 | $650 | $1,446 |
| Conferences and Meetings | $310 | $691 | $265 | $1,266 |
| Depreciation Depletion | - | $350 | - | $350 |
| Total Functional Expenses | $281,421 | $42,510 | $102,155 | $426,086 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $147,005 |
| Fundraising Direct Expenses | $10,981 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $147,005 | $147,005 | $10,981 | $136,024 |
| Total Events | $147,005 | $147,005 | $10,981 | $136,024 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 13219 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 11815 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 39626 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 35847 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 153907 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1154 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4073 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 2155 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7382 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | bruce cowan |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 149138 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 39699 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 33300 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 7400 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 33300 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 74000 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 265 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 691 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 310 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1266 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 190822 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 10762 |
| IRS990/CYOtherExpensesAmt | 0 | 228061 |
| IRS990/CYOtherRevenueAmt | 0 | 137989 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -86513 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 198025 |
| IRS990/CYTotalExpensesAmt | 0 | 426086 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 102155 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 339573 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 350 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 350 |
| IRS990/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 171073 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2308 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 9751 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 2763 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 14822 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JONATHAN SCHORR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFFREY TOROMORENO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | AMY GIETZEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | SUZY BALLANTYNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 74000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Board Member |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 10981 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 147005 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -723 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GovernmentGrantsAmt | 0 | 36915 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 123841 |
| IRS990/GrossReceiptsAmt | 0 | 475118 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 650 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 145 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 651 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1446 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | -4362 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 11485 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 11485 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 550613 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 544749 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4652 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 466 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 116 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 124564 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 978111 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 939632 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -723 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -723 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 136024 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 136024 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 52396 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 978111 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 939632 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7100 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1577 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7100 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 15777 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 325 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1241 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 325 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 1891 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 7494 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1665 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7494 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 16653 |
| IRS990/OtherExpensesGrp/Desc | 0 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 1 | EDUCATIONAL FORUMS |
| IRS990/OtherExpensesGrp/Desc | 2 | UTILITIES |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 97 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1144 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2250 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 254 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2376 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 2991 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 3676 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1144 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 122 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 5338 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3676 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2542 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2498 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 452000 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MERCHANDISE |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1965 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1965 |
| IRS990/OtherRevenueTotalAmt | 0 | 1965 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 41018 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9114 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 41015 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 91147 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 171073 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 171073 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 6650 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1478 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6651 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 14779 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 650 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 145 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 651 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 1446 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 445 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 445 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 103681 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 6667 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 178862 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 12865 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 157801 |
| IRS990/PYOtherRevenueAmt | 0 | 246858 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 4284 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 83452 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 201616 |
| IRS990/PYTotalExpensesAmt | 0 | 359417 |
| IRS990/PYTotalRevenueAmt | 0 | 442869 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -86513 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 251042 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 330591 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 153907 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 178862 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 169183 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 145674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 172521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 820147 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 11485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 12485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 7291 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13239 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 13712 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 58212 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 148970 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 309295 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 315598 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 376902 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 409429 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1560194 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 11485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 12485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 7291 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 13239 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 13712 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 58212 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.02350 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02160 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.
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