Liabilities / Assets
43rd percentile
Higher debt load relative to assets than 43% of similar nonprofits.
990 • Fiscal year 2019 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
43rd percentile
Higher debt load relative to assets than 43% of similar nonprofits.
Liabilities / Revenue
50th percentile
Higher debt load relative to revenue than 50% of similar nonprofits.
Net Margin
75th percentile
Higher net margin than 75% of similar nonprofits.
Top Officer Pay
80th percentile
Higher top officer pay than 80% of similar nonprofits.
Top officer pay equals 17.7% of source-year revenue.
Asset Growth
74th percentile
Faster asset growth than 74% of similar nonprofits.
Revenue Growth
44th percentile
Faster revenue growth than 44% of similar nonprofits.
Assets
Up$991,330
Up $141,316 (+17%) from 2018
Net Assets
Up$978,111
Up $140,189 (+17%) from 2018
Liabilities
Up$13,219
Up $1,127 (+9.3%) from 2018
Revenue
Up$442,869
Up $5,996 (+1.4%) from 2018
Expenses
Down$359,417
Down $196,630 (-35%) from 2018
Net Income
Up$83,452
Up $202,626 (+170%) from 2018
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $442,365 | $550,613 | ▲ $108,248 |
| Savings and Temporary Cash Investments | $330,586 | $251,042 | ▼ $79,544 |
| Cash and Non-Interest-Bearing Accounts | $54,539 | $149,138 | ▲ $94,599 |
| Accounts Receivable | $20,256 | $39,626 | ▲ $19,370 |
| Land, Buildings, and Equipment, Net | $1,823 | $466 | ▼ $1,357 |
| Prepaid Expenses and Deferred Charges | $445 | $445 | → $0 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $850,014 | $991,330 | ▲ $141,316 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $12,092 | $13,219 | ▲ $1,127 |
| Total Liabilities | $12,092 | $13,219 | ▲ $1,127 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $837,922 | $978,111 | ▲ $140,189 |
| Total Net Assets Fund Balance | $837,922 | $978,111 | ▲ $140,189 |
| Total Liabilities and Net Assets / Fund Balance | $850,014 | $991,330 | ▲ $141,316 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $3,019 | $3,019 |
| Other Land Buildings | $466 | $1,283 | $1,749 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2019 | $382,146 | - | ▲ $65,302 | - | $444,765 |
| 2018 | - | $408,615 | ▼ $24,623 | - | $382,146 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Bruce Cowan | Executive Director | FT | $78,400 | $78,400 |
| Name | Title |
|---|---|
| Marc Krieger | President |
| Carla Gage | Board Member |
| Estelle Randolph | Board Member |
| Frederick Shaw | Board Member |
| Jeffrey Toromoreno | Board Member |
| Jonathan Schorr | Board Member |
| Mary Contadino | Board Member |
| Suzy Ballantyne | Board Member |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $201,616 |
| Other Expenses | $157,801 |
| Total Fundraising Expense | $111,259 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $41,270 | $9,171 | $41,270 | $91,711 |
| Current Officers, Directors, Trustees, and Key Employees | $35,280 | $7,840 | $35,280 | $78,400 |
| Payments to Affiliates | $72,472 | - | - | $72,472 |
| Fees for Services Other | $4,418 | $11,812 | $2,626 | $18,856 |
| Occupancy | $7,583 | $1,685 | $7,583 | $16,851 |
| Other Employee Benefits | $7,002 | $1,556 | $7,001 | $15,559 |
| Advertising | $9,070 | $4,794 | $1,252 | $15,116 |
| Payroll Taxes | $6,182 | $1,374 | $6,182 | $13,738 |
| Conferences and Meetings | $5,925 | $1,645 | $5,875 | $13,445 |
| All Other Expenses | $617 | $2,759 | $463 | $3,839 |
| Pension Plan Contributions | $993 | $221 | $994 | $2,208 |
| Other Expenses | $957 | $212 | $957 | $2,126 |
| Depreciation Depletion | - | $1,357 | - | $1,357 |
| Insurance | $565 | $125 | $565 | $1,255 |
| Office Expenses | $249 | $354 | $249 | $852 |
| Travel | - | $92 | - | $92 |
| Total Functional Expenses | $202,948 | $45,210 | $111,259 | $359,417 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $359,417 |
| Total Expenses per Audited Statements | $359,417 |
| Total Expenses per Form 990 | $359,417 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $305,011 |
| Fundraising Direct Expenses | $58,153 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $305,011 | $305,011 | $58,153 | $246,858 |
| Total Events | $305,011 | $305,011 | $58,153 | $246,858 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 12092 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 13219 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 20256 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 39626 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1252 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 4794 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 9070 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 15116 |
| IRS990/AllOtherContributionsAmt | 0 | 178862 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 463 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2759 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 617 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3839 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | bruce cowan |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 54539 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 149138 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 35280 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 7840 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 35280 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 78400 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 5875 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1645 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 5925 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 13445 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 178862 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 12865 |
| IRS990/CYOtherExpensesAmt | 0 | 157801 |
| IRS990/CYOtherRevenueAmt | 0 | 246858 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 4284 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 83452 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 201616 |
| IRS990/CYTotalExpensesAmt | 0 | 359417 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 111259 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 442869 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1357 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1357 |
| IRS990/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 115116 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2626 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 11812 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 4418 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 18856 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JONATHAN SCHORR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFFREY TOROMORENO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | SUZY BALLANTYNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 78400 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Board Member |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 58153 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 305011 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 380 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 113094 |
| IRS990/GrossReceiptsAmt | 0 | 613736 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 565 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 125 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 565 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1255 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | -4372 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 12485 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 12485 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 442365 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 550613 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4302 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 1823 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 466 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 112714 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 837922 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 978111 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 380 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 380 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 246858 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 246858 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 61109 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 837922 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 978111 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7583 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1685 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7583 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16851 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 249 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 354 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 249 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 852 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 7001 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1556 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7002 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 15559 |
| IRS990/OtherExpensesGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/OtherExpensesGrp/Desc | 1 | SUPPORT GROUPS |
| IRS990/OtherExpensesGrp/Desc | 2 | EQUIPMENT RENTAL |
| IRS990/OtherExpensesGrp/Desc | 3 | UTILITIES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 962 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 957 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 213 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 212 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 6290 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 3113 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 962 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 957 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 6290 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3113 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2137 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2126 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 41270 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9171 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 41270 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 91711 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 72472 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 72472 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 6182 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1374 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6182 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 13738 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 994 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 221 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 993 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 2208 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 445 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 445 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4284 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 4284 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 72472 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 15360 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 169183 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 2000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 7093 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 233852 |
| IRS990/PYOtherRevenueAmt | 0 | 236857 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 23740 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -119174 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 320195 |
| IRS990/PYTotalExpensesAmt | 0 | 556047 |
| IRS990/PYTotalRevenueAmt | 0 | 436873 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 83452 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 4284 |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 330586 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 251042 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 178862 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 169183 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 145674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 172521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 163946 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 830186 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 12485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 7291 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 13239 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13712 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 12596 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 59323 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 309295 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 315598 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 376902 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 409429 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 449163 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1860387 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 12485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 7291 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 13239 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 13712 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 12596 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 59323 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.02160 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02070 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 283 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 35 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 167 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 485 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.
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