Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
990 • Fiscal year 2017 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Liabilities / Revenue
64th percentile
Higher debt load relative to revenue than 64% of similar nonprofits.
Net Margin
6th percentile
Higher net margin than 6% of similar nonprofits.
Top Officer Pay
60th percentile
Higher top officer pay than 60% of similar nonprofits.
Top officer pay equals 17.7% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
24th percentile
Faster revenue growth than 24% of similar nonprofits.
Assets
Down$1,081,343
Down $152,706 (-12%) from 2016
Net Assets
Down$986,814
Down $232,251 (-19%) from 2016
Liabilities
Up$94,529
Up $79,545 (+531%) from 2016
Revenue
Down$462,472
Down $31,532 (-6.4%) from 2016
Expenses
Up$693,855
Up $26,935 (+4.0%) from 2016
Net Income
Down-$231,383
Down $58,467 (-34%) from 2016
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $686,198 | $800,369 | ▲ $114,171 |
| Investments Other Securities | $453,257 | $208,422 | ▼ $244,835 |
| Cash and Non-Interest-Bearing Accounts | $77,116 | $42,108 | ▼ $35,008 |
| Accounts Receivable | $12,943 | $27,265 | ▲ $14,322 |
| Land, Buildings, and Equipment, Net | $4,535 | $3,179 | ▼ $1,356 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $1,234,049 | $1,081,343 | ▼ $152,706 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $14,984 | $94,529 | ▲ $79,545 |
| Total Liabilities | $14,984 | $94,529 | ▲ $79,545 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,219,065 | $976,614 | ▼ $242,451 |
| Temporarily Rstr Net Assets | - | $10,200 | - |
| Total Net Assets Fund Balance | $1,219,065 | $986,814 | ▼ $232,251 |
| Total Liabilities and Net Assets / Fund Balance | $1,234,049 | $1,081,343 | ▼ $152,706 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $2,013 | $1,006 | $3,019 |
| Other Land Buildings | $1,166 | $583 | $1,749 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Bruce Cowan | Executive Director | FT | $81,731 | $81,731 |
| Jay Peak | Former Executive Director | FT | $6,111 | $6,111 |
| Name | Title |
|---|---|
| Marc Krieger | President |
| Carla Gage | Board Member |
| Estelle Randolph | Board Member |
| Frederick Shaw | Board Member |
| Jeffrey Toromoreno | Board Member |
| Mary Contadino | Board Member |
| Maryann Caliri | Board Member |
| Suzy Ballantyne | Board Member |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $326,720 |
| Other Expenses | $214,935 |
| Total Fundraising Expense | $169,374 |
| Grants and Similar Amounts Paid | $152,200 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $82,929 | $18,429 | $82,929 | $184,287 |
| Grants to Domestic Orgs | $150,000 | - | - | $150,000 |
| Payments to Affiliates | $91,507 | - | - | $91,507 |
| Current Officers, Directors, Trustees, and Key Employees | $39,529 | $8,784 | $39,529 | $87,842 |
| Other Employee Benefits | $12,087 | $2,687 | $12,087 | $26,861 |
| Fees for Services Other | $7,650 | $13,476 | $2,759 | $23,885 |
| Payroll Taxes | $10,308 | $2,291 | $10,308 | $22,907 |
| Advertising | $13,886 | $3,794 | $1,440 | $19,120 |
| Occupancy | $7,682 | $1,707 | $7,683 | $17,072 |
| Travel | $8,198 | $2,478 | - | $10,676 |
| Conferences and Meetings | $4,749 | $855 | $3,561 | $9,165 |
| All Other Expenses | $4,087 | $1,916 | $1,528 | $7,531 |
| Pension Plan Contributions | $2,171 | $482 | $2,170 | $4,823 |
| Insurance | $1,584 | $352 | $1,584 | $3,520 |
| Office Expenses | $1,215 | $993 | $1,007 | $3,215 |
| Other Expenses | $201 | $2,519 | $7 | $2,727 |
| Grants to Domestic Individuals | $2,200 | - | - | $2,200 |
| Depreciation Depletion | - | $1,356 | - | $1,356 |
| Total Functional Expenses | $458,598 | $65,883 | $169,374 | $693,855 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $693,855 |
| Total Expenses per Audited Statements | $693,855 |
| Total Expenses per Form 990 | $693,855 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Scleroderma Foundation Inc | Danvers, MA | 501(c)(3) | Donation Restricted to Research | $75,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $367,046 |
| Fundraising Direct Expenses | $73,343 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $367,046 | $367,046 | $73,343 | $293,703 |
| Total Events | $367,046 | $367,046 | $73,343 | $293,703 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 14984 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 94529 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 12943 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 27265 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1440 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 3794 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 13886 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 19120 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 145674 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1528 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1916 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 4087 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7531 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | bruce cowan |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 77116 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 42108 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 39529 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 8784 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 39529 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 87842 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 3561 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 855 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 4749 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 9165 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 145674 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 152200 |
| IRS990/CYInvestmentIncomeAmt | 0 | 13239 |
| IRS990/CYOtherExpensesAmt | 0 | 214935 |
| IRS990/CYOtherRevenueAmt | 0 | 293703 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 9856 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -231383 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 326720 |
| IRS990/CYTotalExpensesAmt | 0 | 693855 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 169374 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 462472 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1356 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1356 |
| IRS990/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 9 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 241507 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2759 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 13476 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 7650 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 23885 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JEFFREY TOROMORENO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARYANN CALIRI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SUZY BALLANTYNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JAY PEAK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 6111 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 81731 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | FORMER EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 73343 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 367046 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 2200 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 2200 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 150000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 150000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 535815 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1584 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 352 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1584 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3520 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13239 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13239 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 453257 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 208422 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 1589 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 4535 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 3179 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1219065 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 986814 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 293703 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 293703 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -868 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7683 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1707 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7682 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 17072 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1007 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 993 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1215 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3215 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 12087 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2687 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 12087 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 26861 |
| IRS990/OtherExpensesGrp/Desc | 0 | Postage and Shipping |
| IRS990/OtherExpensesGrp/Desc | 1 | EDUCATIONAL FORUMS |
| IRS990/OtherExpensesGrp/Desc | 2 | UTILITIES |
| IRS990/OtherExpensesGrp/Desc | 3 | Bank FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 1018 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1764 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 7 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3373 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 391 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2519 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 7535 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 9316 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1764 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 201 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 11926 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 9316 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3919 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2727 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 82929 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 18429 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 82929 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 184287 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 91507 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 91507 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 10308 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2291 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 10308 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 22907 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 2170 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 482 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2171 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 4823 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 9856 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 9856 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 193889 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 9856 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 23202 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 172521 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 62300 |
| IRS990/PYInvestmentIncomeAmt | 0 | 13712 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 277177 |
| IRS990/PYOtherRevenueAmt | 0 | 292189 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 15582 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -172916 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 327443 |
| IRS990/PYTotalExpensesAmt | 0 | 666920 |
| IRS990/PYTotalRevenueAmt | 0 | 494004 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -231383 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 686198 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 800369 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 145674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 172521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 163946 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 163912 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 180092 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 826145 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 13239 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 13712 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 12596 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 12605 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 13706 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 65858 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 376902 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 409429 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 449163 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 443230 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 505428 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 2184152 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 13239 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 13712 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.
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