Liabilities / Assets
26th percentile
Higher debt load relative to assets than 26% of similar nonprofits.
990 • Fiscal year 2016 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
26th percentile
Higher debt load relative to assets than 26% of similar nonprofits.
Liabilities / Revenue
29th percentile
Higher debt load relative to revenue than 29% of similar nonprofits.
Net Margin
10th percentile
Higher net margin than 10% of similar nonprofits.
Top Officer Pay
60th percentile
Higher top officer pay than 60% of similar nonprofits.
Top officer pay equals 16.4% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
28th percentile
Faster revenue growth than 28% of similar nonprofits.
Assets
Down$1,234,049
Down $183,597 (-13%) from 2015
Net Assets
Down$1,219,065
Down $171,759 (-12%) from 2015
Liabilities
Down$14,984
Down $11,838 (-44%) from 2015
Revenue
Down$494,004
Down $37,017 (-7.0%) from 2015
Expenses
Up$666,920
Up $61,215 (+10%) from 2015
Net Income
Down-$172,916
Down $98,232 (-132%) from 2015
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $693,918 | $686,198 | ▼ $7,720 |
| Investments Other Securities | $601,717 | $453,257 | ▼ $148,460 |
| Cash and Non-Interest-Bearing Accounts | $105,481 | $77,116 | ▼ $28,365 |
| Accounts Receivable | $16,504 | $12,943 | ▼ $3,561 |
| Land, Buildings, and Equipment, Net | - | $4,535 | - |
| Prepaid Expenses and Deferred Charges | $26 | $0 | ▼ $26 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $1,417,646 | $1,234,049 | ▼ $183,597 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $26,822 | $14,984 | ▼ $11,838 |
| Total Liabilities | $26,822 | $14,984 | ▼ $11,838 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,390,824 | $1,219,065 | ▼ $171,759 |
| Total Net Assets Fund Balance | $1,390,824 | $1,219,065 | ▼ $171,759 |
| Total Liabilities and Net Assets / Fund Balance | $1,417,646 | $1,234,049 | ▼ $183,597 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $3,019 | - | $3,019 |
| Other Land Buildings | $1,516 | $233 | $1,749 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Jay Peak | Executive Director | FT | $81,122 | $81,122 |
| Name | Title |
|---|---|
| Bruce Cowan | President |
| Marc Krieger | Vice President |
| Carla Gage | Board Member |
| Debra Signorelli | Board Member |
| Estelle Randolph | Board Member |
| Frederick Shaw | Board Member |
| Jeffrey Toromoreno | Board Member |
| Mary Contadino | Board Member |
| Suzy Ballantyne | Board Member |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $327,443 |
| Other Expenses | $277,177 |
| Total Fundraising Expense | $175,282 |
| Grants and Similar Amounts Paid | $62,300 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $92,879 | $20,640 | $92,879 | $206,398 |
| Payments to Affiliates | $109,133 | - | - | $109,133 |
| Current Officers, Directors, Trustees, and Key Employees | $36,505 | $8,112 | $36,505 | $81,122 |
| Grants to Domestic Orgs | $60,300 | - | - | $60,300 |
| Fees for Services Other | $8,936 | $14,999 | $3,216 | $27,151 |
| Advertising | $14,401 | $8,451 | $2,272 | $25,124 |
| Payroll Taxes | $10,620 | $2,360 | $10,621 | $23,601 |
| Occupancy | $7,508 | $1,668 | $7,508 | $16,684 |
| Travel | $12,278 | $2,105 | - | $14,383 |
| Conferences and Meetings | $6,416 | $1,829 | $5,723 | $13,968 |
| Other Employee Benefits | $4,739 | $1,054 | $4,739 | $10,532 |
| Office Expenses | $1,580 | $5,678 | $2,427 | $9,685 |
| All Other Expenses | $5,258 | $2,559 | $994 | $8,811 |
| Pension Plan Contributions | $2,606 | $579 | $2,605 | $5,790 |
| Other Expenses | $12 | $3,689 | $109 | $3,810 |
| Insurance | $1,328 | $294 | $1,328 | $2,950 |
| Grants to Domestic Individuals | $2,000 | - | - | $2,000 |
| Depreciation Depletion | - | $233 | - | $233 |
| Total Functional Expenses | $414,318 | $77,320 | $175,282 | $666,920 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $666,920 |
| Total Expenses per Audited Statements | $666,920 |
| Total Expenses per Form 990 | $666,920 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Scleroderma Foundation Inc | Danvers, MA | 501(c)(3) | Donation Restricted to Research | $60,300 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $393,847 |
| Fundraising Direct Expenses | $101,693 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $380,019 | $380,019 | $95,021 | $284,998 |
| Annual Raffle | $11,828 | $11,828 | $6,672 | $5,156 |
| Total Events | $391,847 | $391,847 | $101,693 | $290,154 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 26822 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 14984 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 16504 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 12943 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 2272 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 8451 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 14401 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 25124 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 172521 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 994 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2559 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 5258 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 8811 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | bruce cowan |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 105481 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 77116 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 36505 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 8112 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 36505 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 81122 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 5723 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1829 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 6416 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 13968 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 172521 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 62300 |
| IRS990/CYInvestmentIncomeAmt | 0 | 13712 |
| IRS990/CYOtherExpensesAmt | 0 | 277177 |
| IRS990/CYOtherRevenueAmt | 0 | 292189 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 15582 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -172916 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 327443 |
| IRS990/CYTotalExpensesAmt | 0 | 666920 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 175282 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 494004 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 233 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 233 |
| IRS990/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 12 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 205684 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 3216 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 14999 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 8936 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 27151 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DEBRA SIGNORELLI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEFFREY TOROMORENO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SUZY BALLANTYNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JAY PEAK |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 81122 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 101693 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 393847 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 2000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 2000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 60300 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 60300 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 595697 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1328 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 294 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1328 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2950 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13712 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13712 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 601717 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 453257 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 8 |
| IRS990/IRPDocumentW2GCnt | 0 | 2 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 233 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 4535 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1390824 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1219065 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 292154 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 292154 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 1157 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7508 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1668 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7508 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16684 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2427 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5678 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1580 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 9685 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4739 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1054 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4739 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 10532 |
| IRS990/OtherExpensesGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/OtherExpensesGrp/Desc | 1 | Postage and Shipping |
| IRS990/OtherExpensesGrp/Desc | 2 | UTILITIES |
| IRS990/OtherExpensesGrp/Desc | 3 | Bank FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2349 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 2007 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 109 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2625 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 445 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 3689 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 24800 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11012 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2007 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 12 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 24800 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 15986 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4459 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 3810 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | miscellaneous |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 35 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 35 |
| IRS990/OtherRevenueTotalAmt | 0 | 35 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 92879 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 20640 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 92879 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 206398 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 109133 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 109133 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 10621 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2360 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 10620 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23601 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 2605 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 579 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2606 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 5790 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 26 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 15582 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 15582 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 169433 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 39201 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 163946 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 53675 |
| IRS990/PYInvestmentIncomeAmt | 0 | 12596 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 259562 |
| IRS990/PYOtherRevenueAmt | 0 | 342691 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 11788 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -74684 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 292468 |
| IRS990/PYTotalExpensesAmt | 0 | 605705 |
| IRS990/PYTotalRevenueAmt | 0 | 531021 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -172916 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 15582 |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 693918 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 686198 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 172521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 163946 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 163912 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 180092 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 160457 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 840928 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 13712 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 12596 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 12605 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13706 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 16389 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 69008 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 409429 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 449163 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 443230 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 505428 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.
Similar nonprofits based on the same Siviq industry and scale cohort. 2016 filings • 501(c)3 • $1M-$5M nonprofits
Carrollton, TX
View Organization501(c)3
Revenue vs current organization
66% lowerAssets vs current organization
About the sameBozeman, MT
View Organization501(c)3
Revenue vs current organization
99% lowerAssets vs current organization
About the sameLouisville, KY
View Organization501(c)3
Revenue vs current organization
149% higherAssets vs current organization
100% lowerWaldorf, MD
View Organization501(c)3
Revenue vs current organization
98% lowerAssets vs current organization
About the same