Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
990 • Fiscal year 2022 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Liabilities / Revenue
60th percentile
Higher debt load relative to revenue than 60% of similar nonprofits.
Net Margin
78th percentile
Higher net margin than 78% of similar nonprofits.
Top Officer Pay
56th percentile
Higher top officer pay than 56% of similar nonprofits.
Top officer pay equals 4.3% of source-year revenue.
Asset Growth
24th percentile
Faster asset growth than 24% of similar nonprofits.
Revenue Growth
20th percentile
Faster revenue growth than 20% of similar nonprofits.
Assets
Down$893,042
Down $81,182 (-8.3%) from 2021
Net Assets
Down$879,641
Down $54,124 (-5.8%) from 2021
Liabilities
Down$13,401
Down $27,058 (-67%) from 2021
Revenue
Down$254,697
Down $60,210 (-19%) from 2021
Expenses
Down$182,278
Down $182,759 (-50%) from 2021
Net Income
Up$72,419
Up $122,549 (+244%) from 2021
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $780,673 | $691,814 | ▼ $88,859 |
| Cash and Non-Interest-Bearing Accounts | $48,750 | $146,806 | ▲ $98,056 |
| Savings and Temporary Cash Investments | $117,440 | $53,338 | ▼ $64,102 |
| Accounts Receivable | $26,916 | $639 | ▼ $26,277 |
| Prepaid Expenses and Deferred Charges | $445 | $445 | → $0 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $974,224 | $893,042 | ▼ $81,182 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Unsecured Notes Loans Payable | $34,427 | - | - |
| Accounts Payable and Accrued Expenses | $6,032 | $13,401 | ▲ $7,369 |
| Total Liabilities | $40,459 | $13,401 | ▼ $27,058 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $933,765 | $875,441 | ▼ $58,324 |
| Net Assets With Donor Restrictions | - | $4,200 | - |
| Total Net Assets Fund Balance | $933,765 | $879,641 | ▼ $54,124 |
| Total Liabilities and Net Assets / Fund Balance | $974,224 | $893,042 | ▼ $81,182 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $3,019 | $3,019 |
| Other Land Buildings | - | $1,749 | $1,749 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2022 | $579,998 | - | ▼ $93,035 | - | $483,584 |
| 2021 | $498,143 | - | ▲ $85,319 | - | $579,998 |
| 2020 | $444,765 | - | ▲ $56,227 | - | $498,143 |
| 2019 | $382,146 | - | ▲ $65,302 | - | $444,765 |
| 2018 | - | $408,615 | ▼ $24,623 | - | $382,146 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Carla Gage | Interim Executi | PT | $10,975 | $10,975 |
| Name | Title |
|---|---|
| Marc Krieger | President |
| Amy Gietzen | Board Member |
| Frederick Shaw | Board Member |
| Jonathan Schorr | Board Member |
| Mary Contadino | Board Member |
| Estelle Randolph | Ex Officio Mbr |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $133,224 |
| Total Fundraising Expense | $68,450 |
| Other Expenses | $49,054 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $41,805 | $9,290 | $41,804 | $92,899 |
| Other Employee Benefits | $7,974 | $1,772 | $7,975 | $17,721 |
| Fees for Services Other | $1,911 | $13,368 | $1,911 | $17,190 |
| Occupancy | $7,089 | $1,575 | $7,089 | $15,753 |
| Current Officers, Directors, Trustees, and Key Employees | - | $10,975 | - | $10,975 |
| Payroll Taxes | $3,824 | $850 | $3,824 | $8,498 |
| Pension Plan Contributions | $1,409 | $313 | $1,409 | $3,131 |
| All Other Expenses | $318 | $1,092 | - | $1,410 |
| Other Expenses | $46 | $1,036 | $681 | $1,082 |
| Travel | - | $663 | - | $663 |
| Insurance | $268 | $59 | $267 | $594 |
| Office Expenses | $35 | $299 | $35 | $369 |
| Conferences and Meetings | $152 | $34 | $152 | $338 |
| Total Functional Expenses | $68,650 | $45,178 | $68,450 | $182,278 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $134,363 |
| Fundraising Direct Expenses | $29,291 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $134,363 | $134,363 | $29,291 | $105,072 |
| Total Events | $134,363 | $134,363 | $29,291 | $105,072 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
“In 2022, the foundation ceased paying an annual assessment and restricted research pledge award to scleroderma foundation-national.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 6032 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 13401 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 26916 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 639 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 95698 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1092 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 318 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1410 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | CARLA GAGE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 48750 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 146806 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 10975 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 10975 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 152 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 34 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 152 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 338 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 130125 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 18571 |
| IRS990/CYOtherExpensesAmt | 0 | 49054 |
| IRS990/CYOtherRevenueAmt | 0 | 106001 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 72419 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 133224 |
| IRS990/CYTotalExpensesAmt | 0 | 182278 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 68450 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 254697 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 4200 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 67906 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1911 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 13368 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1911 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 17190 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JONATHAN SCHORR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | AMY GIETZEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 10975 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | INTERIM EXECUTI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | EX OFFICIO MBR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Board Member |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 29291 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 134363 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 5192 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GovernmentGrantsAmt | 0 | 34427 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 179485 |
| IRS990/GrossReceiptsAmt | 0 | 458281 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 267 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 59 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 268 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 594 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | -4903 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13379 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13379 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 780673 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 691814 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4768 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 174293 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 933765 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 879641 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 5192 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 5192 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 105072 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 105072 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -121640 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 933765 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 875441 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7089 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1575 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7089 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 15753 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 35 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 299 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 35 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 369 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 7975 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1772 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7974 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 17721 |
| IRS990/OtherExpensesGrp/Desc | 0 | UTILITIES |
| IRS990/OtherExpensesGrp/Desc | 1 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 2 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3303 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 681 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 734 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2412 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 706 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1036 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 3303 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 516 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 46 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7340 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2928 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1387 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1082 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 452000 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MERCHANDISE |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 929 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 929 |
| IRS990/OtherRevenueTotalAmt | 0 | 929 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 41804 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9290 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 41805 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 92899 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3824 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 850 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 3824 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 8498 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1409 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 313 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 1409 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 3131 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 445 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 445 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 744 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 151004 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 34352 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 167760 |
| IRS990/PYOtherRevenueAmt | 0 | 129551 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -50130 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 197277 |
| IRS990/PYTotalExpensesAmt | 0 | 365037 |
| IRS990/PYTotalRevenueAmt | 0 | 314907 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 72419 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 117440 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 53338 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 95698 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 151004 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 153907 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 178862 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 169183 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 748654 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 13379 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 13656 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 11485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 12485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 7291 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 58296 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 135292 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 134190 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 148970 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 309295 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 315598 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1043345 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 13379 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 13656 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 11485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 12485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 7291 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 58296 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.03030 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02670 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 34427 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 37147 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 283 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 71857 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.93230 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.95610 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 1791999 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 230990 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 285194 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 302877 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 488157 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 484781 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 1791999 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 278796 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 298850 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 351509 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 500642 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 492355 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 1922152 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.