Alzheimers Disease and Related Disorders Association Inc.

“Governing body: the board of directors of the alzheimers association is the organization's governing body. The board has delegated authority to its standing and other business committees as described in article vii of the organizational bylaws. The following excerpt from the association's bylaws discuss committees of the board of directors. Committees of directors: all committee meetings shall be open to attendance by all directors except in executive session. Only committee members may vote on committee matters. The board of directors shall have the following standing committees: executive, finance, governance and nominating, compensation, audit and mission outcomes. Executive committee: the executive committee shall manage the business and property of the association in between meetings of the board of directors; provided, that the executive committee shall not take any action which is contrary to policies of the association as adopted by the board of directors. The executive committee shall have such additional powers as may be provided by law or resolution of the board of directors. The executive committee shall report to the board of directors at each meeting of the board of directors and report executive committee actions in a timely manner in between board of directors meetings. At each of its annual meetings, the board of directors by duly adopted resolution shall elect an executive committee consisting of no fewer than seven nor more than fifteen directors. The chair, chair elect, vice chairs, secretary, treasurer, chairs of the standing committees, and the chair of the medical and scientific advisory group, shall be members of the executive committee. The chair of the board of directors shall be the chair of the executive committee. The executive committee may hold regular meetings monthly or as it may otherwise determine, at such place and at such times and upon such notice as it may determine. Special meetings of the executive committee may be called at any time by the chair or by any three of its members, by notice delivered personally or by mail, telephone, electronic mail or facsimile at least seven days (or at least 48 hours in the case of telephonic meetings) prior to the meeting. A majority of the currently serving members of the executive committee shall constitute a quorum for all purposes. Finance committee: the finance committee shall consist of at least five directors and shall be chaired by the treasurer. The finance committee shall oversee and review all financial reports, accounting activities and investment decisions of the association and also shall prepare a projected budget for each fiscal year to be presented to the board of directors for approval. The finance committee shall oversee and make recommendations to the board of directors with respect to the financial operation of alzheimers association 401(k) savings plan and the appointment of fiduciaries with respect thereto. Governance and nominating committee: at each of its annual meetings, the board of directors by duly adopted resolution shall elect a governance and nominating committee consisting of no fewer than seven nor more than fifteen individuals currently serving as a director. At least one-third of the governance and nominating committee shall be directors having chapter experience. The governance and nominating committee shall assist the board in ensuring the successful governance of the association through board assessment, recruitment, nominations, orientation and development. The governance and nominating committee shall nominate candidates for directors, officers and members of the executive committee. The governance and nominating committee may nominate candidates for honorary director and any advisory or honorary councils, groups or committees and approve the candidates for medical and scientific advisory group membership. The governance and nominating committee also shall provide input to the chair on the selection of vice cha”

“Conflict of interest policy monitoring & enforcement the alzheimer's association conflict of interest policy is described in article xii, section 2 of the organizational bylaws. The responsibility for disclosing any known or reasonably foreseeable actual or potential conflicts of interest shall be disclosed to the board of directors or its committee designee by the interested person whose interests are or may appear to be in conflict with the association. All interested persons are required to file with the association a disclosure statement prior to such individual commencing his or her service with the association and at such time and in such manner as may be provided in guidelines adopted by the board of directors. All interested persons serving the association shall file disclosure statements, from time to time, as may be required by the board of directors, the bylaws article xii, section 2 or any other board policy, and in no event less often than annually. Interested persons shall disclose any conflict and shall not vote on a matter and further if requested by the chair or resolution of the board shall leave the room in which the board or committee is meeting and shall not participate in any deliberation or decision regarding the matter under consideration. The minutes shall reflect that the conflict of interest was disclosed and the interested person did not participate in any discussion of the matter and did not vote on the matter in person or by proxy. When any such conflict of interest is relevant to a matter requiring action by the board of directors or any committee of the board, the interested person shall disclose such conflict to the board of directors or such committee and shall not vote on the matter. Further the interested person or representative having a conflict if requested by the chair or resolution of the board shall leave the room in which the board or the committee is meeting and shall not participate in any deliberation or decision regarding the matter under consideration. When there is a doubt as to whether a conflict of interest exists, the matter shall be resolved by a vote of the board of directors or the committee, as the case may be, excluding the interested person concerning whom the doubt has arisen. Copies of the association bylaws article, including the conflict of interest policy and any related ethical policy or guidelines as from time to time adopted or amended by the board of directors, shall be presented to all interested persons serving the association at the time of any such adoption or amendment and in no event less often than annually; and to all individuals seeking to serve the association as an interested person prior to requesting any such individual to execute a conflict of interest disclosure statement.”

“Process for determining compensation compensation is established for the ceo by the compensation committee and the executive committee after a thorough salary/market review conducted by outside compensation consultants. For the ceo position, the gathering of relevant comparability data from independent sources occurred in 2019. The process was conducted in a manner intended to qualify for the rebuttable presumption of reasonableness under the intermediate sanctions rules. As to the members of the senior management team other than the ceo, annually updated market data is also provided by the outside compensation consultant, so that the updated market data can be used in setting reasonable compensation for each member of the senior management team. Each year the compensation committee evaluates the ceo's performance through a robust assessment process which includes collection, interviews and performance evaluation comparing results to goals. The committee and chair of the board use this data to determine incentive compensation eligibility. The senior staff has a comprehensive performance evaluation and compensation review done at the end of each fiscal year. These include a self-assessment and evaluation by the ceo. Updated market data for use in setting reasonable compensation is provided by a national compensation consulting firm to the compensation committee for confirmation of reasonableness using a process designed to qualify for the rebuttable presumption of reasonableness (including contemporaneous documentation in the committee's minutes). For fiscal year 2020, the salary and total compensation package of the ceo was benchmarked by sullivan cotter. Compensation is contemporaneously documented in the compensation committee minutes.”

“How documents are made available to the public the organization makes its form 990 available to the general public by posting on the website at www.alz.org and upon request. The organization makes its form 1023 available to the general public upon request. Form 990, part vi, line 19 how documents are made available to the public the organization's audited financial statements are made available to the general public by posting on the organization's website at www.alz.org and upon request. The organization makes its governing documents and conflict of interest policy available to the general public upon request.”

“Organization's mission, continued the alzheimer's association leads the way to end alzheimer's and all other dementia - by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. The vision of the alzheimer's association is a world without alzheimer's and all other dementia. The alzheimer's association is a valued resource for caregivers and those living with the disease, offering information, education and support. Approximately 262 offices across the u.s. Are doing business as the alzheimer's association and various names as a collection of 75 chapters working to accomplish the mission. The organization is headquartered in chicago, and has a public policy office in washington, d.c. The alzheimer's association provides 24/7 constituent support in over 200 languages through the use of a professional language line 365 days a year (1-800-272-3900) as well as on our website, alz.org*. As the leading voluntary health organization in care, support and research, currently, the association is investing over $208 million in 590 active best-of-field projects in 31 countries. As a leader in the field, the alzheimer's association fosters collaboration of the scientific community by hosting the largest international conference focusing on alzheimer's disease research in the world. In addition, the alzheimer's association advocates for the needs and rights of people with alzheimer's, their families and caregivers, speaking up to help encourage congress to take action in the fight against this disease, (including through an annual advocacy forum in washington, d.c.) and leads advocacy efforts in every state. Concern about alzheimer's disease and awareness about the association are critical to accelerating progress. The alzheimer's association strives to make more people aware of the services available for those facing this disease and the benefits of early detection. (more than 5 million alzheimer's association constituents have signed up to educate, advocate, donate, and participate to move this cause forward). A donor-supported organization, the alzheimer's association allocates its funds in an ethical and responsible manner that exceeds the rigorous standards of america's most experienced charity evaluator, the better business bureau wise giving alliance. The association is qualified to use the "bbb torch logoa national charity seal ("seal"). * these are names that are trademarks to alzheimer's association.”

“Other program services advocacy - as alzheimer's disease threatens to bankrupt families, businesses and our healthcare system, scientists are moving closer to finding better treatments that could alter the course of the disease. The alzheimer's association advocates for public policies aimed at advancing research toward better therapies, detection, methods of risk reduction and ultimately a cure, as well as for better care and resources, and health and long-term coverage to ensure high quality cost effective care for people with alzheimer's disease and their families. More than 600,000 grass roots alzheimer's association advocates speak up for the needs and rights of people with alzheimer's and their families, and encourage congress to increase funding for research and care. Advocacy activities also include collaborating with other organizations to improve quality care and raise awareness of key issues. Care, support and risk reduction - the alzheimer's association* provides an array of information and support services designed specifically for individuals with alzheimer's disease, their families, friends and caregivers. In order to meet the diverse needs of individuals affected by alzheimer's disease, the association's programs and services are offered in person, by phone and online. In chapters throughout the country, constituents can attend education programs and support groups, receive personalized care consultation, engage in early stage programs, and enroll in support programs. In order to meet the needs of constituents who rely on the web for information and support, the association offers a robust caregiver center. Within the caregiver center, families and caregivers can access alzheimer's navigator*, an innovative tool to help caregivers and people with dementia evaluate their needs, create a customized action plan and link to information, support and local resources for individuals living with alzheimer's. Also available through the caregiver center, for individuals looking for support from others living in similar situations is alzconnected*, an on-line community that includes multiple forums for diverse audiences. Through the association's helpline, available 24 hours a day, 7 days a week, 365 days a year, individuals with alzheimer's disease, their families and caregivers can talk to a specialist to receive information and basic education about the disease; and guidance for more complicated or urgent situations, with masters-level counselors who are available to constituents, any time, day or night. Additionally, calls can be handled in over 200 different languages through the use of a professional language line. Annually, the helpline receives approximately 275,000 calls. The association's website (www.alz.org*) receives more than 21 million visits a year. Online programs include: self-service education programs, an online community, an interactive brain tour (available in 15 languages), access to comprehensive disease information, portals in spanish, chinese, vietnamese, japanese, and korean; a virtual library, a safety center, and a section developed specifically for people living with alzheimer's, with input from people in the early stages of alzheimer's disease and their care partners. In addition, live chat with the helpline team is available through the website. Through the association's early stage initiative, individuals in the early stages of the disease can participate in education programs, support groups and social engagement programs. Additionally, the association convenes an early stage advisory group whose members raise awareness, advocate for the cause, and provide guidance and review of programs and services. The alzheimer's association has launched an initiative to work with health systems, long-term care facilities, and community-based dementia providers with evidence-based information and quality improvement programming to enhance how these systems provide care and support services. Unique pro”

“Other change in net assets or fund balance change in perpetual trust $(514,280) change in split interest $(542,513) bad debt expense $(4,538,460) ------------ total $(5,595,253)”

“Effective july 1, 2016, one chapter dissolved and 46 chapters merged with the association to create a united alzheimers association. Total assets acquired from the 47 chapters were approximately $152,004,000 and net assets acquired were approximately $130,859,000. The association oversees the operations and activities for 75 chapters to facilitate strategic alignment, deliver on the overarching association-wide strategic objectives and priority activities, and to ensure coverage for all geographic territories.”