National Mps Society Inc

“Steve holland, vice chairman and amy holland, director have a family relationship. Scott hopkins, director and lynn hopkins, treasurer have a family relationship. Each of these family relationships constitutes one director vote out of 12 director votes.”

“National mps society's by-laws were amended april 20,2024”

“As a not-for-profit corporation, we have members.”

“Prior to filing the return, electronic copies of form 990 are sent to all members of the executive committee as well as to all members of the governing body for their review. After the form 990 has been reviewed, all members of the governing body will discuss and approve the irs form 990.”

“The conflict of interest policy is a self-compliance process. All officers, directors, and employees sign the conflict of interest policy on an annual basis.”

“In determining the compensation for the ceo/president, the governance committee performs an annual review. Following the governance committee review, the executive committee and board of directors review and deliberate regarding the compensation.”

“In determining the compensation for the other officers and key employees, the ceo/president performs an annual review. Following the ceo's review, the governance committee and board of directors review and deliberate regarding compensation.”

“Maryland, maine, michigan, minnesota, mississippi, north carolina, north dakota, new hampshire, new jersey, new mexico, nevada, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, utah, virginia, washington, wisconsin, west virginia”

“Donations are listed in the online publication quarterly. The budget is published shortly after it is approved. The organization's annual report is mailed to members and donors once a year, and the irs form 990 is available on the website. The organization's by-laws are available online. Information is also available on the charity navigator website. Documents are also available upon request.”

“The national mps society provides comprehensive support to families affected by mps and ml through its family support and pathways programs. At the time of diagnosis and beyond, licensed social workers engage families through in-home visits and ongoing guidance, helping them navigate the complex challenges of living with a rare disease. The society also offers critical financial assistance, including funding for medical equipment, educational and bereavement scholarships, extended hospital stays, medical travel, and conference participation. These services ensure families receive compassionate, practical support. In the crossing paths program expands equitable access to education, clinical studies, and critical resources for families affected by mps and ml in underserved inner-city and rural communities. Through outreach, partnerships, and tailored support, the program bridges geographic and socioeconomic barriers, ensuring families have the knowledge and opportunities to participate in clinical research and receive specialized care.”

“Fundraising expenses netted with revenue 38,754 fundraising expenses netted with revenue -38,754”