Civic Intelligence

Cornelia De Lange Syndrome Foundation

EIN 06-1057497 • 501(c)3 • Avon, CT

Profile

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

30 Tower Lane 400Avon, CT 06001

www.cdlsusa.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.03x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

51st percentile

0.08x

Higher debt load relative to revenue than 51% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

33rd percentile

-2.6%

Higher net margin than 33% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

47th percentile

2.7%

Faster asset growth than 47% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

62nd percentile

15%

Faster revenue growth than 62% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$3,356,963

Up $89,464 (+2.7%) from 2023

Liabilities

Down

$88,523

Down $75,242 (-46%) from 2023

Net Assets

Up

$3,268,440

Up $164,706 (+5.3%) from 2023

Operations
Liabilities / Revenue51st percentileNet Margin33rd percentile

Revenue

Up

$1,085,462

Up $139,856 (+15%) from 2023

Expenses

Up

$1,114,037

Up $120,978 (+12%) from 2023

Net Income

Up

-$28,575

Up $18,878 (+40%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth47th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $946,676Liabilities 2011: $26,046Net Assets 2011: $920,6302011Assets 2012: $886,638Liabilities 2012: $19,228Net Assets 2012: $867,4102012Assets 2013: $1,058,387Liabilities 2013: $16,828Net Assets 2013: $1,041,5592013Assets 2014: $1,237,230Liabilities 2014: $40,604Net Assets 2014: $1,196,6262014Assets 2015: $1,282,675Liabilities 2015: $23,533Net Assets 2015: $1,259,1422015Assets 2016: $1,233,935Liabilities 2016: $27,067Net Assets 2016: $1,206,8682016Assets 2017: $1,225,708Liabilities 2017: $22,526Net Assets 2017: $1,203,1822017Assets 2018: $999,632Liabilities 2018: $24,511Net Assets 2018: $975,1212018Assets 2019: $2,448,230Liabilities 2019: $17,777Net Assets 2019: $2,430,4532019Assets 2020: $2,826,787Liabilities 2020: $66,372Net Assets 2020: $2,760,4152020Assets 2021: $3,378,142Liabilities 2021: $67,055Net Assets 2021: $3,311,0872021Assets 2022: $3,082,093Liabilities 2022: $202,297Net Assets 2022: $2,879,7962022Assets 2023: $3,267,499Liabilities 2023: $163,765Net Assets 2023: $3,103,7342023Assets 2024: $3,356,963Liabilities 2024: $88,523Net Assets 2024: $3,268,4402024

Highlighted filing

2024

Assets$3,356,963
Liabilities$88,523
Net Assets$3,268,440
Open 2024 Filing

Operations Trend

Revenue Growth62nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2011: $860,7042011Expenses 2012: $968,5632012Revenue 2013: $905,367Expenses 2013: $791,543Net Income 2013: $113,8242013Revenue 2014: $1,147,755Expenses 2014: $974,527Net Income 2014: $173,2282014Revenue 2015: $840,918Expenses 2015: $749,945Net Income 2015: $90,9732015Revenue 2016: $929,428Expenses 2016: $1,030,548Net Income 2016: -$101,1202016Revenue 2017: $962,849Expenses 2017: $954,105Net Income 2017: $8,7442017Revenue 2018: $1,031,258Expenses 2018: $1,187,690Net Income 2018: -$156,4322018Revenue 2019: $2,289,148Expenses 2019: $954,784Net Income 2019: $1,334,3642019Revenue 2020: $1,004,423Expenses 2020: $932,863Net Income 2020: $71,5602020Revenue 2021: $1,245,385Expenses 2021: $921,430Net Income 2021: $323,9552021Revenue 2022: $1,084,533Expenses 2022: $1,079,254Net Income 2022: $5,2792022Revenue 2023: $945,606Expenses 2023: $993,059Net Income 2023: -$47,4532023Revenue 2024: $1,085,462Expenses 2024: $1,114,037Net Income 2024: -$28,5752024

Highlighted filing

2024

Revenue$1,085,462
Expenses$1,114,037
Net Income-$28,575
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$3,356,963
Liabilities
$88,523
Net assets
$3,268,440
Revenue
$1,085,462
Expenses
$1,114,037
Net income
-$28,575
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.36$0.09$3.27$1.09$1.11$0.03
2023Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$3.27$0.16$3.10$0.95$0.99$0.05
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$0.20$2.88$1.08$1.08$0.01
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.38$0.07$3.31$1.25$0.92$0.32
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.83$0.07$2.76$1.00$0.93$0.07
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.45$0.02$2.43$2.29$0.95$1.33
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.00$0.02$0.98$1.03$1.19$0.16
2017Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.23$0.02$1.20$0.96$0.95$0.01
2016Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.23$0.03$1.21$0.93$1.03$0.10
2015Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.28$0.02$1.26$0.84$0.75$0.09
2014Detailed filing. Detailed filing data is available for this year.$1.24$0.04$1.20$1.15$0.97$0.17
2013Detailed filing. Detailed filing data is available for this year.$1.06$0.02$1.04$0.91$0.79$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.02$0.87$0.97
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.95$0.03$0.92$0.86
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 10, 2025
Return Version
2024v5.2
Gross Receipts
$1,156,581
Mission and Program Overview

Mission

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,386,032$2,602,105▲ $216,073
Savings and Temporary Cash Investments$334,221$393,652▲ $59,431
Cash and Non-Interest-Bearing Accounts$250,879$179,310▼ $71,569
Pledges and Grants Receivable$168,959$125,000▼ $43,959
Prepaid Expenses and Deferred Charges$21,258$10,927▼ $10,331
Inventories for Sale or Use$2,507$3,793▲ $1,286
Land, Buildings, and Equipment, Net$6,999$3,250▼ $3,749
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Total Assets$3,267,499$3,356,963▲ $89,464
Other Assets Total$96,644$38,926▼ $57,718
Liabilities
Accounts Payable and Accrued Expenses$64,075$46,257▼ $17,818
Other Liabilities$99,690$42,266▼ $57,424
Total Liabilities$163,765$88,523▼ $75,242
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,857,181$3,080,492▲ $223,311
Net Assets With Donor Restrictions$246,553$187,948▼ $58,605
Total Net Assets Fund Balance$3,103,734$3,268,440▲ $164,706
Total Liabilities and Net Assets / Fund Balance$3,267,499$3,356,963▲ $89,464

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$3,250$70,070$73,320
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Morrisette RoysterExecutive DirectorFT$131,250$131,250
Antonie Kline MDMD Director-$15,075$15,075

Board Members and Trustees

NameTitle
Paul VillaniPresident
Mike FeehanVice President
Arthur LanderDirector
Mary Ann EhlertDirector
Rob RodriguezDirector
Steve SnodsmithDirector
Tricia WiseDirector
Yvonne AlstonDirector
Nicholas JacksonSecretary
Eric JohnsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$856,146
Program Service Revenue
$40,895
Investment Income
$71,984
Other Revenue
$116,437
All Other Contributions
$588,288
Change in Net Assets
$-28,575

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,085,462
Revenue Not Reported on Form 990
$243,504
Total Revenue per Audited Statements
$1,328,966
Total Revenue per Form 990
$1,085,462
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$743,254
Other Expenses$370,783
Total Fundraising Expense$122,377
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$419,636$41,446$56,987$518,069
Current Officers, Directors, Trustees, and Key Employees$106,312$10,500$14,437$131,249
Fees for Services Other$14,078$58,386$10,003$82,467
Occupancy$48,121$4,724$6,495$59,340
Payroll Taxes$42,854$4,230$5,820$52,904
Other Employee Benefits$26,316$2,599$3,574$32,489
All Other Expenses$17,365$1,857$800$20,022
Office Expenses$9,320$3,083$3,257$15,660
Other Expenses$9,492$2,402$1,289$13,183
Pension Plan Contributions$6,920$683$940$8,543
Insurance$5,687$562$772$7,021
Depreciation Depletion$2,729$465$555$3,749
Total Functional Expenses$846,027$145,633$122,377$1,114,037

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,164,260
Expenses per Audited Statements$1,114,037
Total Expenses per Form 990$1,114,037
Expenses Not Reported on Form 990$50,223
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$166,660
Fundraising Direct Expenses$50,223
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Events-mo$106,290$106,290$22,569$83,721
Golf Events-ne$60,370$60,370$27,654$32,716
Total Events$166,660$166,660$50,223$116,437
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease liability$42,266
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Review by Finance Committee and Executive Directors”

Form 990, Part VI, Section B, Line 12C

“Executive director and board of directors meet to review and take appropriate action to monitor and enforce the conflict of interest policy”

Form 990, Part VI, Section B, Line 15B

“Annual Written evaluation and leadership forms completed by officers and board members”

Form 990, Part VI, Section C, Line 19

“Posted on Guidestar.org, the Foundation's website CdLSUSA.org and the annual report.”

Filing and Contact Details

Filer

Filer Name
Cornelia De Lange Syndrome Foundation
EIN
06-1057497
Phone
8606768166
Address
30 Tower Lane 400, AVON, CT 06001

Signing Officer

Name
Bonnie Royster
Title
Exec. Director
Signed
2025-10-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bonnie Royster
Formed
1981
Legal Domicile
Ma
Voting Board Members
10
Independent Board Members
10
Employees
12
Volunteers
250

Preparer

Firm
Bottaro Morrill & Co LLC
Address
207 Pitkin Street, East Hartford, CT 06108
Preparer
Douglas Morrill CPA
Phone
8602892766
Supplemental Narrative

Financial Statement Notes

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Direct Events expenses $50223”

Part XII, Line 2D: Other expenses and losses per audited F/S

“Direct Events expenses $50223”

Raw XML AppendixShowing 400 of 636 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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