Civic Intelligence

Amyotrophic Lateral Sclerosis Association Ri Chapter

990 • Fiscal year 2019 • EIN 05-0460482

Feb 01, 2018 to Jan 31, 2019 • Filed on Aug 30, 2019

2374 Post Road No 103Warwick, RI 02886-2270

(401) 732-1609

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Down

$640,176

Down $57,269 (-8.2%) from 2018

Net Assets

Down

$590,686

Down $71,929 (-11%) from 2018

Liabilities

Up

$49,490

Up $14,660 (+42%) from 2018

Revenue And Expenses

Revenue

Down

$378,061

Down $27,939 (-6.9%) from 2018

Expenses

Up

$449,990

Up $24,954 (+5.9%) from 2018

Net Income

Down

-$71,929

Down $52,893 (-278%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2010: $485,427Liabilities 2010: $21,297Net Assets 2010: $464,1302010Assets 2011: $496,610Liabilities 2011: $20,680Net Assets 2011: $475,9302011Assets 2012: $448,993Liabilities 2012: $24,979Net Assets 2012: $424,0142012Assets 2013: $589,204Liabilities 2013: $29,516Net Assets 2013: $559,6882013Assets 2014: $585,245Liabilities 2014: $31,828Net Assets 2014: $553,4172014Assets 2015: $822,014Liabilities 2015: $27,265Net Assets 2015: $794,7492015Assets 2016: $771,348Liabilities 2016: $32,884Net Assets 2016: $738,4642016Assets 2017: $720,472Liabilities 2017: $37,111Net Assets 2017: $683,3612017Assets 2018: $697,445Liabilities 2018: $34,830Net Assets 2018: $662,6152018Assets 2019: $640,176Liabilities 2019: $49,490Net Assets 2019: $590,6862019Assets 2020: $557,457Liabilities 2020: $35,157Net Assets 2020: $522,3002020Assets 2021: $537,020Liabilities 2021: $34,650Net Assets 2021: $502,3702021Assets 2022: $693,876Liabilities 2022: $127,133Net Assets 2022: $566,7432022Assets 2023: $522,459Liabilities 2023: $106,887Net Assets 2023: $415,5722023Assets 2024: $754,049Liabilities 2024: $72,772Net Assets 2024: $681,2772024Assets 2025: $672,752Liabilities 2025: $46,209Net Assets 2025: $626,5432025

Highlighted filing

2019

Assets$640,176
Liabilities$49,490
Net Assets$590,686

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $300,732Expenses 2010: $351,219Net Income 2010: -$50,4872010Expenses 2011: $337,9652011Expenses 2012: $331,9662012Revenue 2013: $507,358Expenses 2013: $371,684Net Income 2013: $135,6742013Revenue 2014: $366,287Expenses 2014: $372,558Net Income 2014: -$6,2712014Revenue 2015: $704,820Expenses 2015: $463,488Net Income 2015: $241,3322015Revenue 2016: $380,758Expenses 2016: $437,043Net Income 2016: -$56,2852016Revenue 2017: $388,956Expenses 2017: $444,059Net Income 2017: -$55,1032017Revenue 2018: $406,000Expenses 2018: $425,036Net Income 2018: -$19,0362018Revenue 2019: $378,061Expenses 2019: $449,990Net Income 2019: -$71,9292019Revenue 2020: $407,470Expenses 2020: $475,856Net Income 2020: -$68,3862020Revenue 2021: $401,263Expenses 2021: $421,193Net Income 2021: -$19,9302021Revenue 2022: $531,853Expenses 2022: $461,562Net Income 2022: $70,2912022Revenue 2023: $379,498Expenses 2023: $530,669Net Income 2023: -$151,1712023Revenue 2024: $844,803Expenses 2024: $579,098Net Income 2024: $265,7052024Revenue 2025: $422,201Expenses 2025: $476,935Net Income 2025: -$54,7342025

Highlighted filing

2019

Revenue$378,061
Expenses$449,990
Net Income-$71,929
Jump To
Filing Snapshot
Filing Period
Feb 1, 2018 to Jan 31, 2019
Signed
Aug 30, 2019
Return Version
2018v3.1
Gross Receipts
$428,714
Mission and Program Overview

Mission

Public awareness of als disease and patient and family support

Public awareness of ALS and patient and family support

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$442,533$494,608▲ $52,075
Land, Buildings, and Equipment, Net$83,606$70,273▼ $13,333
Savings and Temporary Cash Investments$161,263$56,441▼ $104,822
Prepaid Expenses and Deferred Charges$7,110$16,118▲ $9,008
Accounts Receivable$725$528▼ $197
Total Assets$697,445$640,176▼ $57,269
Other Assets Total$2,208$2,208→ $0
Liabilities
Accounts Payable and Accrued Expenses$34,830$42,690▲ $7,860
Deferred Revenue-$6,800-
Total Liabilities$34,830$49,490▲ $14,660
Net Assets / Fund Balance
Unrestricted Net Assets$662,615$590,686▼ $71,929
Total Net Assets Fund Balance$662,615$590,686▼ $71,929
Total Liabilities and Net Assets / Fund Balance$697,445$640,176▼ $57,269

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$70,273$96,700$166,973
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Nancy FeroldiExecutive DirectorFT$55,126$739$55,865

Board Members and Trustees

NameTitle
John R PagliariniPresident
Kenneth F McGunagle JrPresident Emeritus
Thomas May1st Vice President
PJ Prokop2nd Vice President
Beatrice LanziBoard Member
Carol M FlanaganBoard Member
Craig StenningBoard Member
Dr Judith A PrattBoard Member
Gonzalo A CuervoBoard Member
Jeff RamosBoard Member
John SoucyBoard Member
Joseph J DeAngelisBoard Member
Kristen MadonneBoard Member
Lauren FatseBoard Member
Madeline ParmenterBoard Member
Matthew CateBoard Member
R Andrew PelletierBoard Member
Susan HenriksonBoard Member
Terrance MartiesianBoard Member
Richard F HentzBOR Voting Representative
John FinnertyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$160,849
Program Service Revenue
$0
Investment Income
$2,674
Other Revenue
$214,538
All Other Contributions
$74,524
Change in Net Assets
$-71,929

Audited Revenue Reconciliation

Revenue per Audited Statements
$378,061
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$378,061
Total Revenue per Form 990
$378,061
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$256,215
Salaries, Compensation, and Employee Benefits$193,775
Total Fundraising Expense$37,547
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$96,555$12,158$12,859$121,572
Current Officers, Directors, Trustees, and Key Employees$43,549$5,512$6,065$55,126
All Other Expenses$33,642$943$2,842$37,427
Occupancy$27,049$3,380$3,380$33,809
Depreciation Depletion$15,764$1,970$1,970$19,704
Payroll Taxes$11,789$1,487$1,591$14,867
Other Expenses$14,375$21,403$6,926$14,375
Fees for Services Other-$11,100-$11,100
Conferences and Meetings$7,108$889$889$8,886
Office Expenses$4,509$564$564$5,637
Insurance$956$120$120$1,196
Other Employee Benefits$898$113$118$1,129
Pension Plan Contributions$854$108$119$1,081
Travel$836$104$104$1,044
Total Functional Expenses$348,657$63,786$37,547$449,990

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$449,990
Total Expenses per Audited Statements$449,990
Total Expenses per Form 990$449,990
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$265,191
Fundraising Direct Expenses$50,653
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk to Defeat ALS$135,035$135,035$4,832$130,203
Evening of Hope$79,643$58,418$3,757$54,661
Total Events$298,216$265,191$50,653$214,538
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

The Executive Director, Board President, Office Manager, and Bookkeeper review Form 990 prior to filing. After review, a copy of Form 990 is then distributed to the Board of Directors.

Form 990, Part VI, Section B, line 12C

Board members are required to reveiw and sign the Association's conflict of interest policy annually and disclose any conflicts should they exist.

Form 990, Part VI, Section B, line 15A

After comparison efforts with other non-profit entities and Board review, the Board of Directors meets to deliberate and approve the Executive Director's salary each year. Deliberations and discussions are evidenced by contemporaneous Board meeting minutes.

Form 990, Part VI, Section C, line 19

The Association makes its governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Amyotrophic Lateral Sclerosis Assoc
EIN
05-0460482
Phone
4017321609
Address
2374 Post Road No 103, Warwick, RI 02886-2270

Signing Officer

Name
John Pagliarini
Title
Board President
Phone
4017321609
Signed
2019-08-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
John Pagliarini
Formed
1985
Legal Domicile
Ri
Voting Board Members
21
Independent Board Members
21
Employees
7
Volunteers
125

Preparer

Firm
Aaronson Lavoie Streitfeld Diaz & Co PC
Address
1604 Broad Street, Cranston, RI 02905
Preparer
Adam Diaz
Phone
4012230205
Supplemental Narrative

Financial Statement Notes

Part X, Line 2:

Income tax status: The Chapter is a Rhode Island nonprofit corporation exempt from income taxes as a public charity under Section 501(c)(3) of the Internal Revenue Code. Other significant tax positions include its determination of whether any amounts are subject to unrelated business income tax (UBIT). Management has determined the Chapter had no activities subject to UBIT in the year ended January 31, 2019. All significant tax positions have been considered by management and it has determined that it is more likely than not that all tax positions would be sustained upon examination by taxing authorities.

Raw XML AppendixShowing 400 of 554 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt034830
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt042690
IRS990/AccountsReceivableGrp/BOYAmt0725
IRS990/AccountsReceivableGrp/EOYAmt0528
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0Public awareness of ALS and patient and family support
IRS990/AllOtherContributionsAmt074524
IRS990/AllOtherExpensesGrp/FundraisingAmt02842
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0943
IRS990/AllOtherExpensesGrp/ProgramServicesAmt033642
IRS990/AllOtherExpensesGrp/TotalAmt037427
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0Nancy Feroldi
IRS990/BooksInCareOfDetail/PhoneNum04017321609
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt02374 Post Road Unit 103
IRS990/BooksInCareOfDetail/USAddress/CityNm0Warwick
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0RI
IRS990/BooksInCareOfDetail/USAddress/ZIPCd002889
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0442533
IRS990/CashNonInterestBearingGrp/EOYAmt0494608
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt06065
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt05512
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt043549
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt055126
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/FundraisingAmt0889
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0889
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt07108
IRS990/ConferencesMeetingsGrp/TotalAmt08886
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt033025
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0160849
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt02674
IRS990/CYOtherExpensesAmt0256215
IRS990/CYOtherRevenueAmt0214538
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-71929
IRS990/CYSalariesCompEmpBnftPaidAmt0193775
IRS990/CYTotalExpensesAmt0449990
IRS990/CYTotalFundraisingExpenseAmt037547
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0378061
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/EOYAmt06800
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/FundraisingAmt01970
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt01970
IRS990/DepreciationDepletionGrp/ProgramServicesAmt015764
IRS990/DepreciationDepletionGrp/TotalAmt019704
IRS990/Desc0The Amyotrophic Lateral Sclerosis Association Chapter of RI reached more than 300 patients and patient's families through information and referrals, home visits, support groups as well as providing equipment loans, handicapped transportation and respite care at no cost to the patient. Our Chapter also funds an ALS specific multi-disciplinary medical clinic that provides the services in the area of neurology, pulmonology, physical, occupational and speech therapy and nutrition in one location.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt07
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0243926
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt011100
IRS990/FeesForServicesOtherGrp/TotalAmt011100
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt131.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt141.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt151.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt161.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt171.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt181.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt191.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt201.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2140.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd20X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt21739
IRS990/Form990PartVIISectionAGrp/PersonNm0John R Pagliarini
IRS990/Form990PartVIISectionAGrp/PersonNm1Thomas May
IRS990/Form990PartVIISectionAGrp/PersonNm2PJ Prokop
IRS990/Form990PartVIISectionAGrp/PersonNm3John Finnerty
IRS990/Form990PartVIISectionAGrp/PersonNm4Kenneth F McGunagle Jr
IRS990/Form990PartVIISectionAGrp/PersonNm5Gonzalo A Cuervo
IRS990/Form990PartVIISectionAGrp/PersonNm6Joseph J DeAngelis
IRS990/Form990PartVIISectionAGrp/PersonNm7Carol M Flanagan
IRS990/Form990PartVIISectionAGrp/PersonNm8Susan Henrikson
IRS990/Form990PartVIISectionAGrp/PersonNm9Beatrice Lanzi
IRS990/Form990PartVIISectionAGrp/PersonNm10Kristen Madonne
IRS990/Form990PartVIISectionAGrp/PersonNm11Terrance Martiesian
IRS990/Form990PartVIISectionAGrp/PersonNm12Madeline Parmenter
IRS990/Form990PartVIISectionAGrp/PersonNm13R Andrew Pelletier
IRS990/Form990PartVIISectionAGrp/PersonNm14Dr Judith A Pratt
IRS990/Form990PartVIISectionAGrp/PersonNm15Jeff Ramos
IRS990/Form990PartVIISectionAGrp/PersonNm16John Soucy
IRS990/Form990PartVIISectionAGrp/PersonNm17Craig Stenning
IRS990/Form990PartVIISectionAGrp/PersonNm18Richard F Hentz
IRS990/Form990PartVIISectionAGrp/PersonNm19Matthew Cate
IRS990/Form990PartVIISectionAGrp/PersonNm20Lauren Fatse
IRS990/Form990PartVIISectionAGrp/PersonNm21Nancy Feroldi
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2155126
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt11st Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt22nd Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt4President Emeritus
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt6Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt7Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt8Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt9Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt10Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt11Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt12Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt13Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt14Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt15Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt16Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt17Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt18BOR Voting Representative
IRS990/Form990PartVIISectionAGrp/TitleTxt19Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt20Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt21Executive Director
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr01985
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt033025
IRS990/FundraisingDirectExpensesAmt050653
IRS990/FundraisingGrossIncomeAmt0265191
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt021
IRS990/GovernmentGrantsAmt053300
IRS990/GrantAmt00
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0428714
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt021
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt0120
IRS990/InsuranceGrp/ManagementAndGeneralAmt0120
IRS990/InsuranceGrp/ProgramServicesAmt0956
IRS990/InsuranceGrp/TotalAmt01196
IRS990/InvestmentIncomeGrp/ExclusionAmt02674
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02674
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt096700
IRS990/LandBldgEquipBasisNetGrp/BOYAmt083606
IRS990/LandBldgEquipBasisNetGrp/EOYAmt070273
IRS990/LandBldgEquipCostOrOtherBssAmt0166973
IRS990/LegalDomicileStateCd0RI
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0Public awareness of ALS and patient and family support.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0662615
IRS990/NetAssetsOrFundBalancesEOYAmt0590686
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0214538
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0214538
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03380
IRS990/OccupancyGrp/ManagementAndGeneralAmt03380
IRS990/OccupancyGrp/ProgramServicesAmt027049
IRS990/OccupancyGrp/TotalAmt033809
IRS990/OfficeExpensesGrp/FundraisingAmt0564
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0564
IRS990/OfficeExpensesGrp/ProgramServicesAmt04509
IRS990/OfficeExpensesGrp/TotalAmt05637
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02208
IRS990/OtherAssetsTotalGrp/EOYAmt02208
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0118
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0113
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0898
IRS990/OtherEmployeeBenefitsGrp/TotalAmt01129
IRS990/OtherExpensesGrp/Desc0Revenue sharing
IRS990/OtherExpensesGrp/Desc1Patient assistance
IRS990/OtherExpensesGrp/Desc2Service charges
IRS990/OtherExpensesGrp/Desc3Patient transportation
IRS990/OtherExpensesGrp/FundraisingAmt06926
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03935
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt121403
IRS990/OtherExpensesGrp/ProgramServicesAmt048055
IRS990/OtherExpensesGrp/ProgramServicesAmt142718
IRS990/OtherExpensesGrp/ProgramServicesAmt214375
IRS990/OtherExpensesGrp/TotalAmt058916
IRS990/OtherExpensesGrp/TotalAmt142718
IRS990/OtherExpensesGrp/TotalAmt221403
IRS990/OtherExpensesGrp/TotalAmt314375
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt012859
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt012158
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt096555
IRS990/OtherSalariesAndWagesGrp/TotalAmt0121572
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt01591
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01487
IRS990/PayrollTaxesGrp/ProgramServicesAmt011789
IRS990/PayrollTaxesGrp/TotalAmt014867
IRS990/PensionPlanContributionsGrp/FundraisingAmt0119
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0108
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0854
IRS990/PensionPlanContributionsGrp/TotalAmt01081
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt07110
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt016118
IRS990/PrincipalOfficerNm0John Pagliarini
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0There are numerous programs that support professional and public awareness outreach. ALS Awareness Day is held annually at the Rhode Island State House during May. While this program is attended by our constituents, there is also a greater outreach to any members of the general public that are at the State House on that day. The annual ALS Symposium includes speakers who provide ALS research updates and general coping skills in dealing with the devastation of an ALS diagnosis. These programs are communicated by mailings, social media and our website to over 1,200 constituents including patients, families, caregivers, medical professionals and supporters. We also conduct inservice programs to educate medical staff about dealing with ALS patients at hospice and other care facilities.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0104731
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0151819
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt01094
IRS990/PYOtherExpensesAmt0235211
IRS990/PYOtherRevenueAmt0253087
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-19036
IRS990/PYSalariesCompEmpBnftPaidAmt0189825
IRS990/PYTotalExpensesAmt0425036
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0406000
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0-71929
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0161263
IRS990/SavingsAndTempCashInvstGrp/EOYAmt056441
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0160849
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0151819
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0159044
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0167848
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0308952
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0948512
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt02674
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01094
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01084
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01027
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01021
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt06900
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01607957
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0116
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0116
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.79750
IRS990ScheduleA/PublicSupportPY170Pct00.77180
IRS990ScheduleA/PublicSupportTotal170Amt0761991

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.73$0.46$6.27$4.22$4.77$0.55
2024Detailed filing. Detailed filing data is available for this year.$7.54$0.73$6.81$8.45$5.79$2.66
2023Detailed filing. Detailed filing data is available for this year.$5.22$1.07$4.16$3.79$5.31$1.51
2022Detailed filing. Detailed filing data is available for this year.$6.94$1.27$5.67$5.32$4.62$0.70
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.37$0.35$5.02$4.01$4.21$0.20
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.57$0.35$5.22$4.07$4.76$0.68
2019Detailed filing. Detailed filing data is available for this year.$6.40$0.49$5.91$3.78$4.50$0.72
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.97$0.35$6.63$4.06$4.25$0.19
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.20$0.37$6.83$3.89$4.44$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.71$0.33$7.38$3.81$4.37$0.56
2015Detailed filing. Detailed filing data is available for this year.$8.22$0.27$7.95$7.05$4.63$2.41
2014Detailed filing. Detailed filing data is available for this year.$5.85$0.32$5.53$3.66$3.73$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.89$0.30$5.60$5.07$3.72$1.36
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$0.25$4.24$3.32
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.97$0.21$4.76$3.38
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.85$0.21$4.64$3.01$3.51$0.50