Civic Intelligence

Childrens Fund for Glycogen Storage Disease Research Inc

EIN 04-3638491 • 501(c)3 • Cheshire, CT

Profile

The exempt purpose of the organization is to raise and disburse funds to support individuals and laboratories and or corporate entities who are involved in activities that will aid in the diagnosis, treatment and eventual cure of glycogen storage disease type 1a. One hundred percent of the organizations time, monetary and human resources are utilized toward this activity.

20 Sherwood LaneCheshire, CT 06410

www.curegsd.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

96th percentile

81%

Higher net margin than 96% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

77th percentile

18%

Faster asset growth than 77% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

15th percentile

-21%

Faster revenue growth than 15% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$1,592,478

Up $238,371 (+18%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$1,592,478

Up $238,371 (+18%) from 2023

Revenue

Down

$231,044

Down $61,869 (-21%) from 2023

Expenses

Down

$44,219

Down $40,449 (-48%) from 2023

Net Income

Down

$186,825

Down $21,420 (-10%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2010: $270,676Liabilities 2010: $0Net Assets 2010: $270,6762010Assets 2011: $174,506Liabilities 2011: $117,508Net Assets 2011: $56,9982011Assets 2012: $245,432Liabilities 2012: $98,996Net Assets 2012: $146,4362012Assets 2013: $460,103Liabilities 2013: $0Net Assets 2013: $460,1032013Assets 2014: $800,664Liabilities 2014: $20,000Net Assets 2014: $780,6642014Assets 2015: $1,182,180Liabilities 2015: $0Net Assets 2015: $1,182,1802015Assets 2016: $1,391,114Liabilities 2016: $0Net Assets 2016: $1,391,1142016Assets 2017: $1,193,759Liabilities 2017: $0Net Assets 2017: $1,193,7592017Assets 2018: $725,720Liabilities 2018: $0Net Assets 2018: $725,7202018Assets 2019: $312,562Liabilities 2019: $0Net Assets 2019: $312,5622019Assets 2020: $522,385Liabilities 2020: $0Net Assets 2020: $522,3852020Assets 2021: $833,459Liabilities 2021: $5,319Net Assets 2021: $828,1402021Assets 2022: $1,108,745Liabilities 2022: $6,500Net Assets 2022: $1,102,2452022Assets 2023: $1,354,107Liabilities 2023: $0Net Assets 2023: $1,354,1072023Assets 2024: $1,592,478Liabilities 2024: $0Net Assets 2024: $1,592,4782024

Highlighted filing

2024

Assets$1,592,478
Liabilities$0
Net Assets$1,592,478

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $375,6522010Revenue 2011: $338,977Expenses 2011: $545,864Net Income 2011: -$206,8872011Expenses 2012: $319,0482012Revenue 2013: $500,805Expenses 2013: $192,439Net Income 2013: $308,3662013Revenue 2014: $594,540Expenses 2014: $274,718Net Income 2014: $319,8222014Revenue 2015: $513,576Expenses 2015: $116,584Net Income 2015: $396,9922015Revenue 2016: $370,150Expenses 2016: $165,086Net Income 2016: $205,0642016Revenue 2017: $234,982Expenses 2017: $446,570Net Income 2017: -$211,5882017Revenue 2018: $387,103Expenses 2018: $853,767Net Income 2018: -$466,6642018Revenue 2019: $412,759Expenses 2019: $839,875Net Income 2019: -$427,1162019Revenue 2020: $235,881Expenses 2020: $58,818Net Income 2020: $177,0632020Revenue 2021: $610,420Expenses 2021: $291,418Net Income 2021: $319,0022021Revenue 2022: $552,956Expenses 2022: $214,144Net Income 2022: $338,8122022Revenue 2023: $292,913Expenses 2023: $84,668Net Income 2023: $208,2452023Revenue 2024: $231,044Expenses 2024: $44,219Net Income 2024: $186,8252024

Highlighted filing

2024

Revenue$231,044
Expenses$44,219
Net Income$186,825

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.59$0.00$1.59$0.23$0.04$0.19
2023Detailed filing. Detailed filing data is available for this year.$1.35$0.00$1.35$0.29$0.08$0.21
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.11$0.01$1.10$0.55$0.21$0.34
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.01$0.83$0.61$0.29$0.32
2020Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.52$0.24$0.06$0.18
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.31$0.00$0.31$0.41$0.84$0.43
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.73$0.00$0.73$0.39$0.85$0.47
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.19$0.00$1.19$0.23$0.45$0.21
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.39$0.00$1.39$0.37$0.17$0.21
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.00$1.18$0.51$0.12$0.40
2014Detailed filing. Detailed filing data is available for this year.$0.80$0.02$0.78$0.59$0.27$0.32
2013Detailed filing. Detailed filing data is available for this year.$0.46$0.00$0.46$0.50$0.19$0.31
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.10$0.15$0.32
2011Summary only. Only limited summary data is available for this year.$0.17$0.12$0.06$0.34$0.55$0.21
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.27$0.00$0.27$0.38
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 10, 2025
Return Version
2024v5.0
Gross Receipts
$240,219
Mission and Program Overview

Mission

The exempt purpose of the organization is to raise and disburse funds to support individuals and laboratories and or corporate entities who are involved in activities that will aid in the diagnosis, treatment and eventual cure of glycogen storage disease type 1a. One hundred percent of the organizations time, monetary and human resources are utilized toward this activity.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$112,421$1,190,057▲ $1,077,636
Cash and Non-Interest-Bearing Accounts$1,200,615$402,421▼ $798,194
Savings and Temporary Cash Investments$41,071--
Total Assets$1,354,107$1,592,478▲ $238,371
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,354,107$1,592,478▲ $238,371
Total Net Assets Fund Balance$1,354,107$1,592,478▲ $238,371
Total Liabilities and Net Assets / Fund Balance$1,354,107$1,592,478▲ $238,371
Compensation and Service Providers

Board Members and Trustees

NameTitle
Wendy-becker FeldmanPresident
Fran ReedDirector
Harriet BonelliDirector
Meri GussinDirector
Michael JuliusDirector
Sanford HodesDirector
Teri ReedDirector
Valarie RosenDirector
David FeldmanSectry/treas
Lisa HodesVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$140,668
Program Service Revenue
$0
Investment Income
$26,110
Other Revenue
$64,266
All Other Contributions
$140,668
Change in Net Assets
$186,825

Audited Revenue Reconciliation

Revenue per Audited Statements
$231,044
Total Revenue per Audited Statements
$231,044
Total Revenue per Form 990
$231,044
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$28,184
Other Expenses$16,035
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$28,184--$28,184
Fees for Services Accounting$2,500--$2,500
Other Expenses$1,554--$1,554
All Other Expenses$260--$260
Total Functional Expenses$44,219$0$0$44,219

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$44,219
Total Expenses per Audited Statements$44,219
Total Expenses per Form 990$44,219
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Uconn HealthFarmington, CTGov-$28,184
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$73,441
Fundraising Direct Expenses$9,175
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Super Bowl Raff$73,441$73,441$9,175$64,266
Total Events$73,441$73,441$9,175$64,266
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

Wendy becker feldman david feldman president treasurer wife/husband teri reed fran reed director director wife/husband lisa hodes sanford hodes vice pres. Director wife/husband

Form 990, Page 6, Part VI, Line 11B

The foundations board of directors has been assigned the duty of reviewing the annual 990. The annual 990 is prepared by the foundations accounting firm working closely with the board. Copies of the completed return are provided to the board members for review before filing. Upon review and approval by the board members the return is then filed with the internal revenue service as required.

Form 990, Page 6, Part VI, Line 19

Governing documents are made available to the general public by the receipt of a written request for a particular document.

Filing and Contact Details

Filer

Filer Name
Childrens Fund for Glycogen Storage
EIN
04-3638491
Phone
2032727744
Address
20 SHERWOOD LANE, CHESHIRE, CT 06410

Signing Officer

Name
David Feldman
Title
Sectry/treas
Phone
2032727744
Signed
2025-07-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Feldman
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
10

Preparer

Firm
Budwitz & Meyerjack Pc
Address
1122 HIGHLAND AVE, CHESHIRE, CT 06410-1654
Preparer
David a Pelletier CPA
Phone
2032721621
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

The exempt purpose of the organization is to raise and disburse funds to support individuals and laboratories and or corporate entities who are involved in activities that will aid in the diagnosis, treatment and eventual cure of glycogen storage disease type 1a. One hundred percent of the organizations time, monetary and human resources are utilized toward this activity.

Form 990, Page 1, Part I, Line 6

Description of the foundations volunteers and their activities: the majority of the foundations volunteers are members of the foundations board of directors that attend meetings of the full board and various meetings for any committee that a board member serves on.

Raw XML Appendix389 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION OF THE FOUNDATIONS VOLUNTEERS AND THEIR ACTIVITIES: THE MAJORITY OF THE FOUNDATIONS VOLUNTEERS ARE MEMBERS OF THE FOUNDATIONS BOARD OF DIRECTORS THAT ATTEND MEETINGS OF THE FULL BOARD AND VARIOUS MEETINGS FOR ANY COMMITTEE THAT A BOARD MEMBER SERVES ON.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2WENDY BECKER FELDMAN DAVID FELDMAN PRESIDENT TREASURER WIFE/HUSBAND TERI REED FRAN REED DIRECTOR DIRECTOR WIFE/HUSBAND LISA HODES SANFORD HODES VICE PRES. DIRECTOR WIFE/HUSBAND
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE FOUNDATIONS BOARD OF DIRECTORS HAS BEEN ASSIGNED THE DUTY OF REVIEWING THE ANNUAL 990. THE ANNUAL 990 IS PREPARED BY THE FOUNDATIONS ACCOUNTING FIRM WORKING CLOSELY WITH THE BOARD. COPIES OF THE COMPLETED RETURN ARE PROVIDED TO THE BOARD MEMBERS FOR REVIEW BEFORE FILING. UPON REVIEW AND APPROVAL BY THE BOARD MEMBERS THE RETURN IS THEN FILED WITH THE INTERNAL REVENUE SERVICE AS REQUIRED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE GENERAL PUBLIC BY THE RECEIPT OF A WRITTEN REQUEST FOR A PARTICULAR DOCUMENT.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 2
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IRS990/USAddress/CityNm0CHESHIRE
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IRS990/WebsiteAddressTxt0WWW.CUREGSD.ORG
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ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0DAVID FELDMAN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0SECTRY/TREAS
ReturnHeader/BusinessOfficerGrp/PhoneNum02032727744
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-07-10
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CHILDRENS FUND FOR GLYCOGEN STORAGE
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0DISEASE RESEARCH INC
ReturnHeader/Filer/BusinessNameControlTxt0CHIL
ReturnHeader/Filer/EIN0043638491
ReturnHeader/Filer/PhoneNum02032727744
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BUDWITZ & MEYERJACK PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01122 HIGHLAND AVE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CHESHIRE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0064101654
ReturnHeader/PreparerPersonGrp/PhoneNum02032721621
ReturnHeader/PreparerPersonGrp/PreparationDt02025-07-11
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0DAVID A PELLETIER CPA
ReturnHeader/ReturnTs02025-07-23T12:51:32-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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