Civic Intelligence

Spastic Paraplegia Foundation Inc.

EIN 04-3594491 • 501(c)3 • O Fallon, MO

Pub. 78 Eligible

Profile

The foundation is dedicated to finding a cure and providing information and support services for two closely related upper motor neuron disorders; primary lateral sclerosis and hereditary spactic paraplegia

6952 Clayborne DriveO Fallon, MO 63368

www.sp-foundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

78th percentile

0.39x

Higher debt load relative to assets than 78% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

84th percentile

0.70x

Higher debt load relative to revenue than 84% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

89th percentile

48%

Higher net margin than 89% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

19th percentile

-6.6%

Faster asset growth than 19% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

77th percentile

31%

Faster revenue growth than 77% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets78th percentile

Assets

Down

$3,089,987

Down $218,455 (-6.6%) from 2023

Liabilities

Down

$1,210,040

Down $1,067,045 (-47%) from 2023

Net Assets

Up

$1,879,947

Up $848,590 (+82%) from 2023

Operations
Liabilities / Revenue84th percentileNet Margin89th percentile

Revenue

Up

$1,730,780

Up $405,935 (+31%) from 2023

Expenses

Down

$899,593

Down $1,029,021 (-53%) from 2023

Net Income

Up

$831,187

Up $1,434,956 (+238%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth19th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,229,024Liabilities 2010: $538,308Net Assets 2010: $690,7162010Assets 2011: $1,291,366Liabilities 2011: $853,797Net Assets 2011: $437,5692011Assets 2012: $1,656,663Liabilities 2012: $525,617Net Assets 2012: $1,131,0462012Assets 2013: $1,501,874Liabilities 2013: $487,594Net Assets 2013: $1,014,2802013Assets 2014: $1,486,103Liabilities 2014: $800,001Net Assets 2014: $686,1022014Assets 2015: $1,536,668Liabilities 2015: $1,049,206Net Assets 2015: $487,4622015Assets 2016: $1,728,340Liabilities 2016: $721,706Net Assets 2016: $1,006,6342016Assets 2017: $1,571,804Liabilities 2017: $687,892Net Assets 2017: $883,9122017Assets 2018: $1,741,894Liabilities 2018: $1,003,035Net Assets 2018: $738,8592018Assets 2019: $1,940,022Liabilities 2019: $1,034,975Net Assets 2019: $905,0472019Assets 2020: $2,291,149Liabilities 2020: $1,448,859Net Assets 2020: $842,2902020Assets 2021: $2,650,188Liabilities 2021: $1,370,285Net Assets 2021: $1,279,9032021Assets 2022: $2,855,492Liabilities 2022: $1,331,690Net Assets 2022: $1,523,8022022Assets 2023: $3,308,442Liabilities 2023: $2,277,085Net Assets 2023: $1,031,3572023Assets 2024: $3,089,987Liabilities 2024: $1,210,040Net Assets 2024: $1,879,9472024

Highlighted filing

2024

Assets$3,089,987
Liabilities$1,210,040
Net Assets$1,879,947
Open 2024 Filing

Operations Trend

Revenue Growth77th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2010: $817,808Expenses 2010: $599,030Net Income 2010: $218,7782010Revenue 2011: $463,705Expenses 2011: $715,472Net Income 2011: -$251,7672011Revenue 2012: $830,036Expenses 2012: $138,384Net Income 2012: $691,6522012Revenue 2013: $568,518Expenses 2013: $685,284Net Income 2013: -$116,7662013Revenue 2014: $668,799Expenses 2014: $996,977Net Income 2014: -$328,1782014Revenue 2015: $565,708Expenses 2015: $764,349Net Income 2015: -$198,6412015Revenue 2016: $643,367Expenses 2016: $124,195Net Income 2016: $519,1722016Revenue 2017: $596,943Expenses 2017: $719,664Net Income 2017: -$122,7212017Revenue 2018: $789,105Expenses 2018: $934,158Net Income 2018: -$145,0532018Revenue 2019: $987,011Expenses 2019: $820,823Net Income 2019: $166,1882019Revenue 2020: $929,060Expenses 2020: $991,817Net Income 2020: -$62,7572020Revenue 2021: $1,153,340Expenses 2021: $715,727Net Income 2021: $437,6132021Revenue 2022: $1,249,081Expenses 2022: $748,401Net Income 2022: $500,6802022Revenue 2023: $1,324,845Expenses 2023: $1,928,614Net Income 2023: -$603,7692023Revenue 2024: $1,730,780Expenses 2024: $899,593Net Income 2024: $831,1872024

Highlighted filing

2024

Revenue$1,730,780
Expenses$899,593
Net Income$831,187
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,089,987
Liabilities
$1,210,040
Net assets
$1,879,947
Revenue
$1,730,780
Expenses
$899,593
Net income
$831,187
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.09$1.21$1.88$1.73$0.90$0.83
2023Detailed filing. Detailed filing data is available for this year.$3.31$2.28$1.03$1.32$1.93$0.60
2022Detailed filing. Detailed filing data is available for this year.$2.86$1.33$1.52$1.25$0.75$0.50
2021Detailed filing. Detailed filing data is available for this year.$2.65$1.37$1.28$1.15$0.72$0.44
2020Detailed filing. Detailed filing data is available for this year.$2.29$1.45$0.84$0.93$0.99$0.06
2019Summary only. Only limited summary data is available for this year.$1.94$1.03$0.91$0.99$0.82$0.17
2018Summary only. Only limited summary data is available for this year.$1.74$1.00$0.74$0.79$0.93$0.15
2017Summary only. Only limited summary data is available for this year.$1.57$0.69$0.88$0.60$0.72$0.12
2016Summary only. Only limited summary data is available for this year.$1.73$0.72$1.01$0.64$0.12$0.52
2015Summary only. Only limited summary data is available for this year.$1.54$1.05$0.49$0.57$0.76$0.20
2014Summary only. Only limited summary data is available for this year.$1.49$0.80$0.69$0.67$1.00$0.33
2013Summary only. Only limited summary data is available for this year.$1.50$0.49$1.01$0.57$0.69$0.12
2012Summary only. Only limited summary data is available for this year.$1.66$0.53$1.13$0.83$0.14$0.69
2011Summary only. Only limited summary data is available for this year.$1.29$0.85$0.44$0.46$0.72$0.25
2010Summary only. Only limited summary data is available for this year.$1.23$0.54$0.69$0.82$0.60$0.22
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 13, 2025
Return Version
2024v5.0
Gross Receipts
$1,730,780
Mission and Program Overview

Mission

The foundation is dedicated to finding a cure and providing information and support services for two closely related upper motor neuron disorders; primary lateral sclerosis and hereditary spactic paraplegia

1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$1,529,879$1,662,463▲ $132,584
Cash and Non-Interest-Bearing Accounts$1,733,763$1,424,121▼ $309,642
Prepaid Expenses and Deferred Charges$14,800$0▼ $14,800
Pledges and Grants Receivable$30,000$3,403▼ $26,597
Savings and Temporary Cash Investments-$0-
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0--
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$3,308,442$3,089,987▼ $218,455
Other Assets Total$0$0→ $0
Liabilities
Grants Payable$2,268,085$1,194,086▼ $1,073,999
Accounts Payable and Accrued Expenses$9,000$15,954▲ $6,954
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$2,277,085$1,210,040▼ $1,067,045
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,031,357$1,829,947▲ $798,590
Net Assets With Donor Restrictions$0$50,000▲ $50,000
Total Net Assets Fund Balance$1,031,357$1,879,947▲ $848,590
Total Liabilities and Net Assets / Fund Balance$3,308,442$3,089,987▼ $218,455

Asset Categories

AssetBook ValueDepreciationBasis
Closely Held Equity Interests$0--
Financial Derivatives$1,662,463--
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Lorri SteinerTreasurerPT$38,350$38,350

Board Members and Trustees

NameTitle
Greg PruittPresident/Director
Jim SheornVice President/Director
Carina ThurgoodDirector
Corey BraastadDirector
Dina LandphairDirector
Frank DavisDirector
Jackie WellmanDirector
John CobbDirector
Tina CroghanDirector
Hank ChiuppiSecretary/Director
David LewisTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,597,572
Program Service Revenue
$37,315
Investment Income
$90,207
Other Revenue
$5,686
All Other Contributions
$1,468,762
Change in Net Assets
$831,187

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$243,305fair value at sale
Total Noncash Contributions4$243,305-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,730,780
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$53,149
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$1,783,929
Total Revenue per Form 990
$1,730,780
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$609,828
Other Expenses$251,415
Salaries, Compensation, and Employee Benefits$38,350
Total Fundraising Expense$37,811
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$310,000--$310,000
Foreign Grants$299,828--$299,828
Conferences and Meetings$152,645$0$0$152,645
Current Officers, Directors, Trustees, and Key Employees$7,325$31,025$0$38,350
Information Technology$3,206$3,359$13,200$19,765
Fees for Services Accounting$0$15,780$0$15,780
Fees for Services Management$0$10,847$0$10,847
Other Expenses$0$4,902$0$4,902
Office Expenses$0$1,226$1,112$2,338
Insurance$0$1,882$0$1,882
Fees for Services Legal$0$894$0$894
All Other Expenses-$541$0$541
Total Functional Expenses$787,178$74,604$37,811$899,593

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$935,339
Expenses per Audited Statements$899,593
Total Expenses per Form 990$899,593
Expenses Not Reported on Form 990$35,746
Expenses Not Reported on Financial Statements$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Drexel UniversityPhiladelphia, PA-M1 monoclonal antibodies: A new tool for detection and treatment of SPG4-HSP. Led by Dr. Peter Baas.$150,000
Emory UniversityAtlanta, GA-Modulation of Spasticity Using a Chemogenetic Approach. Led by Dr. Anthony Donsante, PhD$150,000
Columbia UniversityNew York, NY-PLS International Conference$10,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
5K Walk Run or Roll$100,237$100,237$2,547$97,690
Golf Tournament$27,620$27,620$2,430$25,190
Total Events$127,857$127,857$4,977$122,880
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The Board of Directors was provided a complete draft of the 990 and was provided the opportunity to ask questions prior to filing with the IRS.”

Form 990, Part VI, Section B, Line 12C

“All conflict of interest language was consolidated into the Organization's by laws and the Board reviewed and approved the conflict of interest language prior to approving the by laws.”

Form 990, Part VI, Section B, Line 15

“The Organization hired an Independent Contractor to perform the Treasurer function in 2024. The full Board reviewed the proposal and the rate of the Contractor before approving the position and the hourly rate.”

Form 990, Part VI, Section C, Line 19

“On the organization's website”

Filing and Contact Details

Filer

Filer Name
Spastic Paraplegia Foundation Inc
EIN
04-3594491
Phone
8777734483
Address
6952 Clayborne Drive, O Fallon, MO 63368
Doing Business As
Spastic Paraplegia Foundation

Signing Officer

Name
Lorri Steiner
Title
Treasurer
Phone
6152600559
Signed
2025-05-13

Organization Details

Principal Officer
Greg Pruitt
Formed
2002
Legal Domicile
Ma
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
100
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Unused funds from prior grants that were returned during 2024”

Raw XML AppendixShowing 400 of 744 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm0Lorri Steiner
IRS990/Form990PartVIISectionAGrp/PersonNm1Corey Braastad
IRS990/Form990PartVIISectionAGrp/PersonNm2Hank Chiuppi
IRS990/Form990PartVIISectionAGrp/PersonNm3John Cobb
IRS990/Form990PartVIISectionAGrp/PersonNm4Tina Croghan
IRS990/Form990PartVIISectionAGrp/PersonNm5Frank Davis
IRS990/Form990PartVIISectionAGrp/PersonNm6Dina Landphair
IRS990/Form990PartVIISectionAGrp/PersonNm7David Lewis
IRS990/Form990PartVIISectionAGrp/PersonNm8Greg Pruitt
IRS990/Form990PartVIISectionAGrp/PersonNm9Jim Sheorn
IRS990/Form990PartVIISectionAGrp/PersonNm10Carina Thurgood
IRS990/Form990PartVIISectionAGrp/PersonNm11Jackie Wellman
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IRS990/MissionDesc01. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones
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IRS990/PrincipalOfficerNm0Greg Pruitt
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IRS990/ProgSrvcAccomActy2Grp/Desc0The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.
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IRS990/ProgSrvcAccomActy3Grp/Desc0The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Printing expenses to update annual report recipients of medical research status; software to facilitate advocacy of rare diseases

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