Civic Intelligence

Sanfilippo Research Foundation Inc

EIN 04-3565765 • 501(c)3 • Wellesley, MA

Profile

To promote awareness of sanfilippo syndrome and raise funds to support research aimed at finding a cure.

225 Oakland StreetWellesley, MA 02481

www.bensdream.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

99th percentile

97%

Higher net margin than 99% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

7th percentile

-29%

Faster asset growth than 7% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

100th percentile

2295%

Faster revenue growth than 100% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets19th percentile

Assets

Down

$1,359,721

Down $550,742 (-29%) from 2017

Liabilities

Flat

$0

Flat from 2017

Net Assets

Down

$1,359,721

Down $550,742 (-29%) from 2017

Operations
Liabilities / Revenue20th percentileNet Margin99th percentile

Revenue

Up

$932,440

Up $893,504 (+2295%) from 2017

Expenses

Up

$26,696

Up $21,359 (+400%) from 2017

Net Income

Up

$905,744

Up $872,145 (+2596%) from 2017

Trend Graphs

Balance Sheet Trend

Asset Growth7th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2010: $100,159Liabilities 2010: $0Net Assets 2010: $100,1592010Assets 2011: $161,370Liabilities 2011: $0Net Assets 2011: $161,3702011Assets 2012: $232,286Liabilities 2012: $0Net Assets 2012: $232,2862012Assets 2013: $76,241Liabilities 2013: $0Net Assets 2013: $76,2412013Assets 2014: $249,930Liabilities 2014: $0Net Assets 2014: $249,9302014Assets 2015: $296,244Liabilities 2015: $0Net Assets 2015: $296,2442015Assets 2016: $250,408Liabilities 2016: $0Net Assets 2016: $250,4082016Assets 2017: $1,910,463Liabilities 2017: $0Net Assets 2017: $1,910,4632017Assets 2018: $1,359,721Liabilities 2018: $0Net Assets 2018: $1,359,7212018

Highlighted filing

2018

Assets$1,359,721
Liabilities$0
Net Assets$1,359,721
Open 2018 Filing

Operations Trend

Revenue Growth100th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $11,765Expenses 2010: $204,682Net Income 2010: -$192,9172010Expenses 2011: $165,9092011Expenses 2012: $7,0582012Revenue 2013: $68,126Expenses 2013: $224,171Net Income 2013: -$156,0452013Revenue 2014: $178,718Expenses 2014: $3,077Net Income 2014: $175,6412014Revenue 2015: $76,761Expenses 2015: $4,950Net Income 2015: $71,8112015Revenue 2016: $55,909Expenses 2016: $101,745Net Income 2016: -$45,8362016Revenue 2017: $38,936Expenses 2017: $5,337Net Income 2017: $33,5992017Revenue 2018: $932,440Expenses 2018: $26,696Net Income 2018: $905,7442018

Highlighted filing

2018

Revenue$932,440
Expenses$26,696
Net Income$905,744
Open 2018 Filing

Filings

Most recent year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,359,721
Liabilities
$0
Net assets
$1,359,721
Revenue
$932,440
Expenses
$26,696
Net income
$905,744
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2018Detailed filing. Detailed filing data is available for this year.$1.36$0.00$1.36$0.93$0.03$0.91
2017Detailed filing. Detailed filing data is available for this year.$1.91$0.00$1.91$0.04$0.01$0.03
2016Detailed filing. Detailed filing data is available for this year.$0.25$0.00$0.25$0.06$0.10$0.05
2015Detailed filing. Detailed filing data is available for this year.$0.30$0.00$0.30$0.08$0.00$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.25$0.00$0.25$0.18$0.00$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.07$0.22$0.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.23$0.00$0.23$0.01
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.16$0.00$0.16$0.17
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.10$0.00$0.10$0.01$0.20$0.19
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Dec 4, 2019
Return Version
2018v3.1
Gross Receipts
$932,440
Mission and Program Overview

Mission

To promote awareness of sanfilippo syndrome and raise funds to support research aimed at finding a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,910,463$1,359,721▼ $550,742
Investments Other Securities$1,799,007$1,267,407▼ $531,600
Savings and Temporary Cash Investments$106,258$86,742▼ $19,516
Cash and Non-Interest-Bearing Accounts$5,198$5,572▲ $374
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$1,910,463$1,359,721▼ $550,742
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,910,463$1,359,721▼ $550,742
Total Liabilities and Net Assets / Fund Balance$1,910,463$1,359,721▼ $550,742
Compensation and Service Providers
Top Officer Pay40th percentile

Board Members and Trustees

NameTitle
Jennifer SiedmanPresident
Dr David Louis MdAdvisor
Edward Bokhour PhdAdvisor
Leonard Zon PhdAdvisor
Sarah Shelby PhdAdvisor
Thomas Fitzgerald MdAdvisor
Sarah Shelby PhdSecretary
Stuart SiedmanVP/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$932,410
Program Service Revenue
$0
Investment Income
$30
Other Revenue
$0
All Other Contributions
$932,410
Change in Net Assets
$905,744

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded64,006$924,887Stock Exch
Total Noncash Contributions64,006$924,887-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$25,000
Other Expenses$1,696
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$25,000--$25,000
Fees for Services Other$160--$160
Office Expenses$139--$139
Other Expenses$11--$11
Total Functional Expenses$26,696$0$0$26,696
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cure Sanfilippo FoundationColumbia, SC--$25,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“MARITAL RELATIONSHIP”

Form 990, Part VI, Line 11B: Form 990 Review Process

“Form 990 is reviewed by the president of the organization before it is filed.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Sanfilippo Research Foundation Inc
EIN
04-3565765
Phone
6178994158
Address
225 OAKLAND STREET, WELLESLEY, MA 02481

Signing Officer

Name
Jennifer Siedman
Title
President
Signed
2019-12-04
Discuss with paid preparer
Yes

Organization Details

Formed
2001
Legal Domicile
Ny
Voting Board Members
8
Independent Board Members
1
Employees
0

Preparer

Firm
Walsh & Associates PC
Address
9 Damonmill Square Suite 5C, Concord, MA 01742
Preparer
Michael J Walsh
Phone
9783692151
Supplemental Narrative

Additional Explanations

Other Changes In Net Assets Or Fund Balances - Other Decreases

“Unrealized losses = -$1456486”

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IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0true
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt07523
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt01910463
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt01359721
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0106258
IRS990/SavingsAndTempCashInvstGrp/EOYAmt086742
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0932410
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt038907
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt055881
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt076739
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0178676
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01282613
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt030
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt029
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt028
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt022
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt042
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0151
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt030
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt029
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt028
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt022
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt042
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0151
IRS990ScheduleA/InvestmentIncomeCYPct00.00010
IRS990ScheduleA/InvestmentIncomePYPct00.00050
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99990
IRS990ScheduleA/PublicSupportPY509Pct00.99950
IRS990ScheduleA/PublicSupportTotal509Amt01282613
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0932410
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt038907
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt055881
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt076739
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0178676
IRS990ScheduleA/Total509Grp/TotalAmt01282613
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0932440
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt038936
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt055909
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt076761
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0178718
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01282764
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/TotalBookValueSecuritiesAmt01267407
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CURE SANFILIPPO FOUNDATION
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO BOX 6901
IRS990ScheduleI/RecipientTable/USAddress/CityNm0COLUMBIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0SC
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd029260
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt01
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd0false
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0false
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt064006
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/MethodOfDeterminingRevenuesTxt0STOCK EXCH
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NonCashCheckboxInd0X
IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NoncashContributionsRptF990Amt0924887
IRS990ScheduleM/ThirdPartiesUsedInd0false
IRS990/ScheduleORequiredInd0false
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0MARITAL RELATIONSHIP
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1FORM 990 IS REVIEWED BY THE PRESIDENT OF THE ORGANIZATION BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3UNREALIZED LOSSES = -$1456486
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Other Changes In Net Assets Or Fund Balances - Other Decreases
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0MA
IRS990/StatesWhereCopyOfReturnIsFldCd1NY
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01910463
IRS990/TotalAssetsEOYAmt01359721
IRS990/TotalAssetsGrp/BOYAmt01910463
IRS990/TotalAssetsGrp/EOYAmt01359721
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0932410
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt00
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt026696
IRS990/TotalFunctionalExpensesGrp/TotalAmt026696
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01910463
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01359721
IRS990/TotalProgramServiceExpensesAmt026696
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt030
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0932440
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01910463
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01359721

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