Civic Intelligence

Als Association Conn Chapter Inc

EIN 04-3417472 • 501(c)3 • Milford, CT

Profile

The ALS Association CT Chapter shares a dual mission with our peer organizations. Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrigs Disease and their families to live fuller lives by providing them with essential services and support.

4 Oxford RoadMilford, CT 06460

www.alsact.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

41st percentile

0.03x

Higher debt load relative to assets than 41% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

43rd percentile

0.05x

Higher debt load relative to revenue than 43% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

68th percentile

15%

Higher net margin than 68% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

82nd percentile

$126,325

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 7.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Asset Growth

72nd percentile

14%

Faster asset growth than 72% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

56th percentile

10%

Faster revenue growth than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Assets

Up

$2,850,683

Up $349,224 (+14%) from 2024

Liabilities

Down

$87,471

Down $16,826 (-16%) from 2024

Net Assets

Up

$2,763,212

Up $366,050 (+15%) from 2024

Revenue

Up

$1,797,027

Up $170,458 (+10%) from 2024

Expenses

Up

$1,523,311

Up $28,097 (+1.9%) from 2024

Net Income

Up

$273,716

Up $142,361 (+108%) from 2024

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2011: $813,652Liabilities 2011: $41,503Net Assets 2011: $772,1492011Assets 2012: $789,255Liabilities 2012: $31,011Net Assets 2012: $758,2442012Assets 2013: $883,154Liabilities 2013: $62,481Net Assets 2013: $820,6732013Assets 2014: $870,682Liabilities 2014: $78,816Net Assets 2014: $791,8662014Assets 2015: $1,229,003Liabilities 2015: $120,608Net Assets 2015: $1,108,3952015Assets 2016: $1,103,798Liabilities 2016: $100,654Net Assets 2016: $1,003,1442016Assets 2017: $1,113,124Liabilities 2017: $60,621Net Assets 2017: $1,052,5032017Assets 2018: $1,418,555Liabilities 2018: $102,245Net Assets 2018: $1,316,3102018Assets 2019: $1,549,136Liabilities 2019: $103,977Net Assets 2019: $1,445,1592019Assets 2020: $1,839,532Liabilities 2020: $165,135Net Assets 2020: $1,674,3972020Assets 2021: $2,442,239Liabilities 2021: $81,715Net Assets 2021: $2,360,5242021Assets 2022: $2,655,935Liabilities 2022: $115,925Net Assets 2022: $2,540,0102022Assets 2023: $2,442,059Liabilities 2023: $233,095Net Assets 2023: $2,208,9642023Assets 2024: $2,501,459Liabilities 2024: $104,297Net Assets 2024: $2,397,1622024Assets 2025: $2,850,683Liabilities 2025: $87,471Net Assets 2025: $2,763,2122025

Highlighted filing

2025

Assets$2,850,683
Liabilities$87,471
Net Assets$2,763,212

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $727,9792011Expenses 2012: $786,2762012Revenue 2013: $833,832Expenses 2013: $781,458Net Income 2013: $52,3742013Revenue 2014: $871,214Expenses 2014: $844,824Net Income 2014: $26,3902014Revenue 2015: $1,266,190Expenses 2015: $947,260Net Income 2015: $318,9302015Revenue 2016: $873,232Expenses 2016: $936,994Net Income 2016: -$63,7622016Revenue 2017: $934,780Expenses 2017: $925,091Net Income 2017: $9,6892017Revenue 2018: $1,114,924Expenses 2018: $901,701Net Income 2018: $213,2232018Revenue 2019: $1,140,150Expenses 2019: $953,717Net Income 2019: $186,4332019Revenue 2020: $1,195,447Expenses 2020: $1,026,691Net Income 2020: $168,7562020Revenue 2021: $1,786,511Expenses 2021: $1,190,099Net Income 2021: $596,4122021Revenue 2022: $1,541,822Expenses 2022: $1,382,807Net Income 2022: $159,0152022Revenue 2023: $1,255,316Expenses 2023: $1,444,510Net Income 2023: -$189,1942023Revenue 2024: $1,626,569Expenses 2024: $1,495,214Net Income 2024: $131,3552024Revenue 2025: $1,797,027Expenses 2025: $1,523,311Net Income 2025: $273,7162025

Highlighted filing

2025

Revenue$1,797,027
Expenses$1,523,311
Net Income$273,716

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.85$0.09$2.76$1.80$1.52$0.27
2024Detailed filing. Detailed filing data is available for this year.$2.50$0.10$2.40$1.63$1.50$0.13
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.44$0.23$2.21$1.26$1.44$0.19
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.66$0.12$2.54$1.54$1.38$0.16
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.44$0.08$2.36$1.79$1.19$0.60
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.84$0.17$1.67$1.20$1.03$0.17
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.55$0.10$1.45$1.14$0.95$0.19
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.42$0.10$1.32$1.11$0.90$0.21
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.11$0.06$1.05$0.93$0.93$0.01
2016Detailed filing. Detailed filing data is available for this year.$1.10$0.10$1.00$0.87$0.94$0.06
2015Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.23$0.12$1.11$1.27$0.95$0.32
2014Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.87$0.08$0.79$0.87$0.84$0.03
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.88$0.06$0.82$0.83$0.78$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.79$0.03$0.76$0.79
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.81$0.04$0.77$0.73
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Feb 1, 2024 to Jan 31, 2025
Signed
Jun 10, 2025
Return Version
2024v5.1
Gross Receipts
$1,821,741
Mission and Program Overview

Mission

The ALS Association CT Chapter shares a dual mission with our peer organizations. Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrigs Disease and their families to live fuller lives by providing them with essential services and support.

The mission of the als united connecticut f/k/a als association ct chapter is to provide comprehensive support to improve quality of life for people with als and their families, while advocating for increased support and advancing innovative research for new treatments and an end to als.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,142,364$2,497,020▲ $354,656
Cash and Non-Interest-Bearing Accounts$135,565$156,564▲ $20,999
Land, Buildings, and Equipment, Net$150,252$136,176▼ $14,076
Pledges and Grants Receivable$15,675$41,534▲ $25,859
Prepaid Expenses and Deferred Charges$5,782$5,165▼ $617
Savings and Temporary Cash Investments$-150--
Total Assets$2,501,459$2,850,683▲ $349,224
Other Assets Total$51,971$14,224▼ $37,747
Liabilities
Accounts Payable and Accrued Expenses$52,387$74,291▲ $21,904
Other Liabilities$51,910$13,180▼ $38,730
Total Liabilities$104,297$87,471▼ $16,826
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,380,774$2,693,748▲ $312,974
Net Assets With Donor Restrictions$16,388$69,464▲ $53,076
Total Net Assets Fund Balance$2,397,162$2,763,212▲ $366,050
Total Liabilities and Net Assets / Fund Balance$2,501,459$2,850,683▲ $349,224

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$136,176$537,900$674,076
Other Land Buildings$0$45,760$45,760
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jacky RoseExecutive DirectorFT$118,525$7,800$126,325

Board Members and Trustees

NameTitle
Peter CorbettPresident/chair
Maura TancrediVice President/chair
Brett KeatingDirector
Brian SavoDirector
Cheryl SmithDirector
Dave WhiteDirector
Judd McarthurDirector
Sean KeatingDirector
Maureen LahiffSecretary
Todd MarcyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,697,072
Program Service Revenue
$0
Investment Income
$93,855
Other Revenue
$6,100
All Other Contributions
$1,002,917
Change in Net Assets
$273,716

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$108,228Fair Market Value (FMV)
Other Non Cash Contri Table26$68,000Fair Market Value (FMV)
Total Noncash Contributions30$176,228-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,797,027
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$92,334
Total Revenue per Audited Statements
$1,889,361
Total Revenue per Form 990
$1,797,027
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$851,797
Salaries, Compensation, and Employee Benefits$671,514
Total Fundraising Expense$138,063
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$370,880$44,310$46,177$461,367
Current Officers, Directors, Trustees, and Key Employees$59,396$29,698$29,698$118,792
Depreciation Depletion$51,826--$51,826
All Other Expenses$28,939$7,323$15,550$51,812
Information Technology$39,178-$9,796$48,974
Payroll Taxes$33,201$6,456$6,456$46,113
Other Employee Benefits$38,865$3,938$2,439$45,242
Other Expenses$30,250$5,746$7,661$30,250
Insurance$16,703$3,855$5,139$25,697
Office Expenses$16,071$3,783$4,964$24,818
Fees for Services Other-$16,179-$16,179
Advertising$4,970-$7,455$12,425
Occupancy$6,212$1,434$1,911$9,557
Travel$1,554$264$817$2,635
Total Functional Expenses$1,262,262$122,986$138,063$1,523,311

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,523,311
Total Expenses per Audited Statements$1,523,311
Total Expenses per Form 990$1,523,311
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$24,714
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk to Defeat Als$619,239-$24,714-
Total Events$619,239-$24,714$-24,714
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$13,180
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

A copy of form 990 will be provided to all board members prior to filing.

Form 990, Part VI, Section B, Line 12C

On an annual basis, all officers and directors, as well as key employees, are required to review, and sign a conflict of interest policy. They are reminded at that time that they must notify als management at any time throughout the year if they feel there is even a question of conflict of interest.

Form 990, Part VI, Section B, Line 15

The executive director's salary is determined by the independent members of the board. The board reviews and approves all compensation packages for key employees. Salaries for similarly titled employees at other organizations are researched. The executive director annually reviews the performance of all staff members to determine compensation.

Form 990, Part VI, Section C, Line 19

The organization makes it governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Als United Connecticut
EIN
04-3417472
Phone
2038745050
Address
4 OXFORD ROAD, MILFORD, CT 06460

Signing Officer

Name
Todd Marcy
Title
Treasurer
Phone
2038745050
Signed
2025-06-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Todd Marcy
Formed
1988
Legal Domicile
Ct
Voting Board Members
10
Independent Board Members
10
Employees
7
Volunteers
0

Preparer

Firm
Simione Macca & Larrow Llp
Address
900 NORTHROP RD STE 2F, WALLINGFORD, CT 06492
Preparer
Rocco Guerrera CPA
Phone
2032810540
Supplemental Narrative

Additional Explanations

Part XII, Line 2C

No change from prior year.

Financial Statement Notes

PART X, LINE 2:

Management has determined that the organization does not have any uncertain tax positions and associated unrecognized benefits that materially impact the financial statements or related disclosures. Since tax matters are subject to some degree of uncertainty, there can be no assurance that the organization's tax returns will not be challenged by the taxing authorities and that the organization will not be subject to additional tax, penalties, and interest as a result of such challenge. As of january 31, 2025, the organization's tax returns generally remain subject to examination by major tax jurisdictions for the last three years.

Raw XML AppendixShowing 400 of 489 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDesc0THE MISSION OF THE ALS UNITED CONNECTICUT F/K/A ALS ASSOCIATION CT CHAPTER IS TO PROVIDE COMPREHENSIVE SUPPORT TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVOCATING FOR INCREASED SUPPORT AND ADVANCING INNOVATIVE RESEARCH FOR NEW TREATMENTS AND AN END TO ALS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10EXECUTIVE DIRECTOR
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IRS990/FormationYr01988
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0THE MISSION OF THE ALS UNITED CONNECTICUT IS TO PROVIDE COMPREHENSIVE SUPPORT TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH ALS AND THEIR FAMILIES, WHILE ADVOCATING FOR INCREASED SUPPORT AND ADVANCING INNOVATIVE RESEARCH FOR NEW TREATMENTS AND AN END TO ALS.
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IRS990/RegularMonitoringEnfrcInd01
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IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt0136176
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0537900
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt0674076
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01523311
IRS990ScheduleD/FootnoteTextInd0X
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IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0OPERATING LEASE LIABILITY
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS AND ASSOCIATED UNRECOGNIZED BENEFITS THAT MATERIALLY IMPACT THE FINANCIAL STATEMENTS OR RELATED DISCLOSURES. SINCE TAX MATTERS ARE SUBJECT TO SOME DEGREE OF UNCERTAINTY, THERE CAN BE NO ASSURANCE THAT THE ORGANIZATION'S TAX RETURNS WILL NOT BE CHALLENGED BY THE TAXING AUTHORITIES AND THAT THE ORGANIZATION WILL NOT BE SUBJECT TO ADDITIONAL TAX, PENALTIES, AND INTEREST AS A RESULT OF SUCH CHALLENGE. AS OF JANUARY 31, 2025, THE ORGANIZATION'S TAX RETURNS GENERALLY REMAIN SUBJECT TO EXAMINATION BY MAJOR TAX JURISDICTIONS FOR THE LAST THREE YEARS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
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IRS990ScheduleD/TotalExpensesPerForm990Amt01523311
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IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0WALK TO DEFEAT ALS
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IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt04
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IRS990ScheduleM/ThirdPartiesUsedInd00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A COPY OF FORM 990 WILL BE PROVIDED TO ALL BOARD MEMBERS PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ON AN ANNUAL BASIS, ALL OFFICERS AND DIRECTORS, AS WELL AS KEY EMPLOYEES, ARE REQUIRED TO REVIEW, AND SIGN A CONFLICT OF INTEREST POLICY. THEY ARE REMINDED AT THAT TIME THAT THEY MUST NOTIFY ALS MANAGEMENT AT ANY TIME THROUGHOUT THE YEAR IF THEY FEEL THERE IS EVEN A QUESTION OF CONFLICT OF INTEREST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS DETERMINED BY THE INDEPENDENT MEMBERS OF THE BOARD. THE BOARD REVIEWS AND APPROVES ALL COMPENSATION PACKAGES FOR KEY EMPLOYEES. SALARIES FOR SIMILARLY TITLED EMPLOYEES AT OTHER ORGANIZATIONS ARE RESEARCHED. THE EXECUTIVE DIRECTOR ANNUALLY REVIEWS THE PERFORMANCE OF ALL STAFF MEMBERS TO DETERMINE COMPENSATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION MAKES IT GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NO CHANGE FROM PRIOR YEAR.

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