Civic Intelligence

Cystinosis Research Network Incorporated

990 • Fiscal year 2011 • EIN 04-3323789

Jan 01, 2011 to Dec 31, 2011 • Filed on Nov 13, 2012

Organization ProfileWWW.CYSTINOSIS.ORG
302 Whytegate Court60045
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

76th percentile

0.11x

Higher debt load relative to assets than 76% of similar nonprofits.

2011 filings • 501(c)3 • <$500k nonprofits • Source year 2011

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2011

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2011

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2011

Asset Growth

8th percentile

-56%

Faster asset growth than 8% of similar nonprofits.

2011 filings • 501(c)3 • <$500k nonprofits • Annualized from 2010 to 2011

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets76th percentile

Assets

Down

$214,241

Down $276,487 (-56%) from 2010

Net Assets

Down

$190,635

Down $163,289 (-46%) from 2010

Liabilities

Down

$23,606

Down $113,198 (-83%) from 2010

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Up

$493,276

Up $81,969 (+20%) from 2010

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth8th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $490,728Liabilities 2010: $136,804Net Assets 2010: $353,9242010Assets 2011: $214,241Liabilities 2011: $23,606Net Assets 2011: $190,6352011Assets 2012: $128,654Liabilities 2012: $35,783Net Assets 2012: $92,8712012Assets 2013: $198,264Liabilities 2013: $100,310Net Assets 2013: $97,9542013Assets 2014: $430,403Liabilities 2014: $38,144Net Assets 2014: $392,2592014Assets 2015: $331,344Liabilities 2015: $14,843Net Assets 2015: $316,5012015Assets 2016: $480,370Liabilities 2016: $33,096Net Assets 2016: $447,2742016Assets 2017: $205,041Liabilities 2017: $28,112Net Assets 2017: $176,9292017Assets 2018: $391,665Liabilities 2018: $46,239Net Assets 2018: $345,4262018Assets 2019: $215,527Liabilities 2019: $30,528Net Assets 2019: $184,9992019Assets 2020: $540,033Liabilities 2020: $28,326Net Assets 2020: $511,7072020Assets 2021: $679,647Liabilities 2021: $36,787Net Assets 2021: $642,8602021Assets 2022: $505,368Liabilities 2022: $53,677Net Assets 2022: $451,6912022Assets 2023: $298,290Liabilities 2023: $26,085Net Assets 2023: $272,2052023Assets 2024: $604,986Liabilities 2024: $43,460Net Assets 2024: $561,5262024

Highlighted filing

2011

Assets$214,241
Liabilities$23,606
Net Assets$190,635
Open 2011 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $411,3072010Expenses 2011: $493,2762011Revenue 2012: $370,984Expenses 2012: $468,748Net Income 2012: -$97,7642012Revenue 2013: $510,293Expenses 2013: $505,210Net Income 2013: $5,0832013Revenue 2014: $652,835Expenses 2014: $358,530Net Income 2014: $294,3052014Revenue 2015: $617,319Expenses 2015: $693,077Net Income 2015: -$75,7582015Revenue 2016: $412,415Expenses 2016: $281,642Net Income 2016: $130,7732016Revenue 2017: $395,493Expenses 2017: $665,838Net Income 2017: -$270,3452017Revenue 2018: $537,875Expenses 2018: $369,378Net Income 2018: $168,4972018Revenue 2019: $408,570Expenses 2019: $568,997Net Income 2019: -$160,4272019Revenue 2020: $527,497Expenses 2020: $200,789Net Income 2020: $326,7082020Revenue 2021: $543,210Expenses 2021: $412,057Net Income 2021: $131,1532021Revenue 2022: $346,267Expenses 2022: $537,436Net Income 2022: -$191,1692022Revenue 2023: $511,051Expenses 2023: $690,537Net Income 2023: -$179,4862023Revenue 2024: $646,021Expenses 2024: $356,700Net Income 2024: $289,3212024

Highlighted filing

2011

Revenue-
Expenses$493,276
Net Income-
Open 2011 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2011 to Dec 31, 2011
Signed
Nov 13, 2012
Return Version
2011v1.2
Gross Receipts
$329,987
Mission and Program Overview

Mission

The cystinosis research network is an all volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis.

Major Activities

Activity 2
The organization raises awareness and reinforces strong relationships through representation at national medical conferences, affiliation with other organizations, publication of periodic newsletters and awards or educational scholarships to individuals with cystinosis and their siblings.
Activity 3
The organization provides information and opportunities to network for individuals with cystinosis and their families through participation in a biennial conference on cystinosis. It also supports newly diagnosed and existing families by providing access to world experts via advisory boards, moderation of an email support group and information packets.
Filing and Contact Details

Filer

EIN
04-3323789
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IRS990ScheduleA/PublicSupportTotal17001607146
IRS990ScheduleA/ThirtyThreePercntTestsCY1700X
IRS990ScheduleA/Total170/CurrentTaxYear0323360
IRS990ScheduleA/Total170/CurrentTaxYearMinus1Year0294213
IRS990ScheduleA/Total170/CurrentTaxYearMinus2Years0444207
IRS990ScheduleA/Total170/CurrentTaxYearMinus3Years0357784
IRS990ScheduleA/Total170/CurrentTaxYearMinus4Years0313363
IRS990ScheduleA/Total170/Total01732927
IRS990ScheduleA/TotalSupport01757387
IRS990ScheduleB/ContributorInfo/AggregateContributions0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/City0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/State0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorAddressUS/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNameBusiness/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInfo/ContributorNumber0RESTRICTED
IRS990/ScheduleBRequired01
IRS990ScheduleD/DonatedServicesUseOfFacilities040550
IRS990ScheduleD/DonatedSrvcAndUseOfFacilities040550
IRS990ScheduleD/ExcessOrDeficitForYear0-163289
IRS990ScheduleD/ExcessOrDeficitPerFS0-163289
IRS990ScheduleD/ExpensesNotRptdF990040550
IRS990ScheduleD/ExpensesNotRptdOnFinStmt00
IRS990ScheduleD/ExpensesSubtotal0493276
IRS990ScheduleD/RevenueNotRptdF990040550
IRS990ScheduleD/RevenueNotRptdOnFinStmt00
IRS990ScheduleD/RevenueSubtotal0329987
IRS990ScheduleD/TotalExpenses0493276
IRS990ScheduleD/TotalExpensesPerForm9900493276
IRS990ScheduleD/TotalOfBookValueLandBuildings00
IRS990ScheduleD/TotalRevenue0329987
IRS990ScheduleD/TotalRevenuePerForm9900329987
IRS990ScheduleD/TotExpensesEtcAuditedFinclStmt0533826
IRS990ScheduleD/TotRevenueEtcAuditedFinclStmt0370537
IRS990ScheduleF/AcctsActvsOutUSTable/NumberOfEmployees00
IRS990ScheduleF/AcctsActvsOutUSTable/NumberOfOffices00

Document Assets

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Filings

Displayed year

2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$214,241
Liabilities
$23,606
Net assets
$190,635
Revenue
-
Expenses
$493,276
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.05$0.43$5.62$6.46$3.57$2.89
2023Detailed filing. Detailed filing data is available for this year.$2.98$0.26$2.72$5.11$6.91$1.79
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.05$0.54$4.52$3.46$5.37$1.91
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.80$0.37$6.43$5.43$4.12$1.31
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.40$0.28$5.12$5.27$2.01$3.27
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.16$0.31$1.85$4.09$5.69$1.60
2018Detailed filing. Detailed filing data is available for this year.$3.92$0.46$3.45$5.38$3.69$1.68
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.05$0.28$1.77$3.95$6.66$2.70
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.80$0.33$4.47$4.12$2.82$1.31
2015Detailed filing. Detailed filing data is available for this year.$3.31$0.15$3.17$6.17$6.93$0.76
2014Detailed filing. Detailed filing data is available for this year.$4.30$0.38$3.92$6.53$3.59$2.94
2013Detailed filing. Detailed filing data is available for this year.$1.98$1.00$0.98$5.10$5.05$0.05
2012Summary only. Only limited summary data is available for this year.$1.29$0.36$0.93$3.71$4.69$0.98
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.14$0.24$1.91$4.93
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.91$1.37$3.54$4.11