Civic Intelligence

National Brain Tumor Society Inc

EIN 04-3068130 • 501(c)3 • Newton, MA

View Organization Page

Profile

National brain tumor society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.we have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings. It's time to build on progress and transform tomorrow, today.

55 Chapel Street 006Newton, MA 02458

www.braintumor.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

31st percentile

0.05x

Higher debt load relative to assets than 31% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

25th percentile

0.07x

Higher debt load relative to revenue than 25% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

51st percentile

4.6%

Higher net margin than 51% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

82nd percentile

$344,060

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 2.6% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

57th percentile

6.6%

Faster asset growth than 57% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

31st percentile

-1.1%

Faster revenue growth than 31% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets31st percentile

Assets

Up

$17,010,470

Up $1,048,499 (+6.6%) from 2023

Liabilities

Up

$912,822

Up $237,681 (+35%) from 2023

Net Assets

Up

$16,097,648

Up $810,818 (+5.3%) from 2023

Operations
Liabilities / Revenue25th percentileNet Margin51st percentile

Revenue

Down

$13,202,037

Down $147,328 (-1.1%) from 2023

Expenses

Up

$12,600,569

Up $350,229 (+2.9%) from 2023

Net Income

Down

$601,468

Down $497,557 (-45%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth57th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20M$15M$10M$5.0M$0Assets 2010: $7,571,085Liabilities 2010: $2,004,266Net Assets 2010: $5,566,8192010Assets 2011: $7,392,862Liabilities 2011: $1,927,528Net Assets 2011: $5,465,3342011Assets 2012: $7,941,767Liabilities 2012: $2,833,423Net Assets 2012: $5,108,3442012Assets 2013: $6,921,834Liabilities 2013: $3,031,590Net Assets 2013: $3,890,2442013Assets 2014: $4,293,080Liabilities 2014: $3,333,834Net Assets 2014: $959,2462014Assets 2015: $2,830,581Liabilities 2015: $2,643,913Net Assets 2015: $186,6682015Assets 2016: $2,335,945Liabilities 2016: $2,168,681Net Assets 2016: $167,2642016Assets 2017: $3,243,078Liabilities 2017: $2,040,617Net Assets 2017: $1,202,4612017Assets 2018: $3,968,943Liabilities 2018: $1,734,007Net Assets 2018: $2,234,9362018Assets 2019: $7,787,968Liabilities 2019: $1,023,668Net Assets 2019: $6,764,3002019Assets 2020: $10,033,142Liabilities 2020: $1,478,031Net Assets 2020: $8,555,1112020Assets 2021: $13,088,308Liabilities 2021: $1,701,739Net Assets 2021: $11,386,5692021Assets 2022: $15,423,168Liabilities 2022: $1,240,860Net Assets 2022: $14,182,3082022Assets 2023: $15,961,971Liabilities 2023: $675,141Net Assets 2023: $15,286,8302023Assets 2024: $17,010,470Liabilities 2024: $912,822Net Assets 2024: $16,097,6482024

Highlighted filing

2024

Assets$17,010,470
Liabilities$912,822
Net Assets$16,097,648
Open 2024 Filing

Operations Trend

Revenue Growth31st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $6,909,1692010Expenses 2011: $7,377,0392011Expenses 2012: $8,387,6052012Revenue 2013: $8,343,730Expenses 2013: $9,530,666Net Income 2013: -$1,186,9362013Revenue 2014: $8,081,757Expenses 2014: $10,997,198Net Income 2014: -$2,915,4412014Revenue 2015: $7,247,633Expenses 2015: $7,921,409Net Income 2015: -$673,7762015Revenue 2016: $8,069,095Expenses 2016: $7,245,544Net Income 2016: $823,5512016Revenue 2017: $9,567,859Expenses 2017: $8,536,282Net Income 2017: $1,031,5772017Revenue 2018: $10,033,247Expenses 2018: $9,001,032Net Income 2018: $1,032,2152018Revenue 2019: $14,164,709Expenses 2019: $9,637,844Net Income 2019: $4,526,8652019Revenue 2020: $8,931,225Expenses 2020: $7,153,205Net Income 2020: $1,778,0202020Revenue 2021: $11,776,482Expenses 2021: $8,948,424Net Income 2021: $2,828,0582021Revenue 2022: $13,224,585Expenses 2022: $10,400,422Net Income 2022: $2,824,1632022Revenue 2023: $13,349,365Expenses 2023: $12,250,340Net Income 2023: $1,099,0252023Revenue 2024: $13,202,037Expenses 2024: $12,600,569Net Income 2024: $601,4682024

Highlighted filing

2024

Revenue$13,202,037
Expenses$12,600,569
Net Income$601,468
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$17,010,470
Liabilities
$912,822
Net assets
$16,097,648
Revenue
$13,202,037
Expenses
$12,600,569
Net income
$601,468
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$17.0$0.91$16.1$13.2$12.6$0.60
2023Detailed filing. Detailed filing data is available for this year.$16.0$0.68$15.3$13.3$12.3$1.10
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.4$1.24$14.2$13.2$10.4$2.82
2021Detailed filing. Detailed filing data is available for this year.$13.1$1.70$11.4$11.8$8.95$2.83
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.0$1.48$8.56$8.93$7.15$1.78
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.79$1.02$6.76$14.2$9.64$4.53
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.97$1.73$2.23$10.0$9.00$1.03
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.24$2.04$1.20$9.57$8.54$1.03
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.34$2.17$0.17$8.07$7.25$0.82
2015Detailed filing. Detailed filing data is available for this year.$2.83$2.64$0.19$7.25$7.92$0.67
2014Detailed filing. Detailed filing data is available for this year.$4.29$3.33$0.96$8.08$11.0$2.92
2013Detailed filing. Detailed filing data is available for this year.$6.92$3.03$3.89$8.34$9.53$1.19
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.94$2.83$5.11$8.39
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.39$1.93$5.47$7.38
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.57$2.00$5.57$6.91
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jun 26, 2025
Return Version
2024v5.2
Gross Receipts
$13,614,569
Mission and Program Overview

Mission

National brain tumor society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.we have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings. It's time to build on progress and transform tomorrow, today.

National brain tumor society unrelentingly invests in, mobilizes, andunites our community to discover a cure, deliver effective treatments,and advocate for patients and care partners.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$10,642,998$7,613,041▼ $3,029,957
Investments in Publicly Traded Securities$883,467$6,400,510▲ $5,517,043
Cash and Non-Interest-Bearing Accounts$1,826,609$738,571▼ $1,088,038
Other Notes and Loans Receivable, Net$677,955$690,647▲ $12,692
Investments Other Securities$709,224$650,014▼ $59,210
Pledges and Grants Receivable$473,750$343,000▼ $130,750
Prepaid Expenses and Deferred Charges$280,305$321,815▲ $41,510
Land, Buildings, and Equipment, Net$155,168$74,556▼ $80,612
Intangible Assets$52,091$34,728▼ $17,363
Total Assets$15,961,971$17,010,470▲ $1,048,499
Other Assets Total$260,404$143,588▼ $116,816
Liabilities
Accounts Payable and Accrued Expenses$398,767$509,434▲ $110,667
Grants Payable-$250,000-
Other Liabilities$276,374$153,388▼ $122,986
Total Liabilities$675,141$912,822▲ $237,681
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$10,148,462$10,577,674▲ $429,212
Net Assets With Donor Restrictions$5,138,368$5,519,974▲ $381,606
Total Net Assets Fund Balance$15,286,830$16,097,648▲ $810,818
Total Liabilities and Net Assets / Fund Balance$15,961,971$17,010,470▲ $1,048,499

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$39,921$139,723$179,644
Leasehold Improvements$16,102$23,792$39,894
Other Land Buildings$18,533$10,804$29,337

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$565,448-▲ $47,098-$612,546
2023$565,448---$565,448
2022$565,448---$565,448
2021$565,448---$565,448
2020$565,448---$565,448
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
David AronsCEOFT$300,444$43,616$344,060
Ashley BrennanVice President, DevelopmentFT$220,534$34,269$254,803
Kirk TannerChief Scientific OfficerFT$234,411$19,201$253,612
John HigginsManaging Director, BtifFT$216,980$26,471$243,451
Marisa PetrilloChief People OfficerFT$162,556$33,895$196,451
Katie GermainChief of Marketing & Communications OfficerFT$176,480$7,767$184,247
Katie GermainChief of Marketing & Communications-$176,480$7,767$184,247
Richard LescarbeauVP of Finance (as of 3/24)FT$143,208$36,667$179,875
Elizabeth RyuDirector of ResearchFT$148,416$22,827$171,243
Gary HeimbergVP and Counsel, Government RelationsFT$130,056$19,443$149,499
Anne StameshkinSenior Director of CommunicationsFT$137,160$8,520$145,680
Noel TwiggSenior Director of DevelopmentFT$127,953$17,289$145,242
Dorothy WhalenChief Financial Officer (until 6/24)FT$98,561$10,946$109,507

Board Members and Trustees

NameTitle
Edjah NduomChair
Erica BirkeVice Chair
Adam HaydenBoard Member
Allison BishofBoard Member
Chris BrownBoard Member
Corie YutkinBoard Member
Dr Joohee SulBoard Member
Frank MacchiarolaBoard Member
Jigar RaythathaBoard Member
Jonathan WeinbergBoard Member
Kabir SethiBoard Member
Karen TurnerBoard Member
Ryan LangBoard Member (until 9/24)
Leah Recht JdClerk
Mil ParekhTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Alston & BirdDirect Lobbying90 PARK AVE, New York, NY 10016$155,162
Tech Super PowersIt Support500 HARRISON AVE SUITE 108, Boston, MA 02118$120,045
Revenue and Support

Revenue Composition

Contributions and Grants
$12,526,004
Program Service Revenue
$0
Investment Income
$606,892
Other Revenue
$69,141
All Other Contributions
$12,526,004
Change in Net Assets
$601,468

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$72,872Fair Market Value (FMV)
Food Inventory79$9,679Fair Market Value (FMV)
Other Non Cash Contri Table8$3,675Fair Market Value (FMV)
Other Non Cash Contri Table1$150Fair Market Value (FMV)
Other Non Cash Contri Table2$132Fair Market Value (FMV)
Total Noncash Contributions91$86,508-

Audited Revenue Reconciliation

Revenue per Audited Statements
$13,176,897
Revenue Not Reported on Financial Statements
$25,140
Revenue Not Reported on Form 990
$209,350
Total Revenue per Audited Statements
$13,386,247
Total Revenue per Form 990
$13,202,037
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$6,337,628
Other Expenses$4,357,941
Grants and Similar Amounts Paid$1,905,000
Total Fundraising Expense$1,233,459
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$3,087,219$352,169$598,745$4,038,133
Grants to Domestic Orgs$1,605,000--$1,605,000
Current Officers, Directors, Trustees, and Key Employees$1,177,555$63,345$281,655$1,522,555
Fees for Services Lobbying$557,655--$557,655
Information Technology$401,218$65,323$76,117$542,658
Payroll Taxes$310,233$30,553$63,264$404,050
Advertising$329,469-$19,652$349,121
Travel$300,916$24,717$10,507$336,140
Other Employee Benefits$211,839$33,666$28,914$274,419
Foreign Grants$200,000--$200,000
Fees for Services Other$115,655-$13,565$129,220
Occupancy$67,536$39,545$18,897$125,978
Grants to Domestic Individuals$100,000--$100,000
Pension Plan Contributions$74,519$8,783$15,169$98,471
Depreciation Depletion$84,488$2,977$10,510$97,975
Office Expenses$27,973$43,558$3,671$75,202
Fees for Services Accounting$14,038$48,812-$62,850
Insurance$22,281$12,153$6,077$40,511
Other Expenses$36,130$1,003$2,265$39,398
All Other Expenses$1,270$37,524$15$38,809
Fees for Services Legal-$31,982-$31,982
Fees for Service Investment Mgmnt Fees-$25,140-$25,140
Total Functional Expenses$10,442,772$924,338$1,233,459$12,600,569

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$12,600,569
Expenses per Audited Statements$12,575,429
Total Expenses per Audited Statements$12,575,429
Expenses Not Reported on Financial Statements$25,140
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Yale UniversityNew Haven, CT501 (c) 3Research$875,000
The Brigham and Womens Hospital IncBoston, MA501 (c) 3Research$250,000
Baptist Health South Florida Foundation IncCoral Gables, FL501 (c) 3Research$100,000
University of North Carolina at WilmingtonWilmington, NC501 (c) 3Research$100,000
Virginia Commonwealth UniversityRichmond, VA501 (c) 3Research$100,000
Regents of the University of CA LaLos Angeles, CA501 (c) 3Research$80,000
Health Research AllianceRaleigh, NC501 (c) 3Research$50,000
Massachusetts General HospitalBoston, MA501 (c) 3Research$25,000
Mayo ClinicRochester, MN501 (c) 3Research$25,000

International Summary

Offices
0
Employees
0
Spending
$200,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrantmaking-00$150,000
East Asia and the PacificGrantmaking-00$50,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$153,388
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“A board member is the ceo of an organization where another board member is employed.”

Form 990, Part VI, Section B, Line 11B

“A copy of the federal form 990 is emailed to the full board of directors for review and comment prior to filing.”

Form 990, Part VI, Section B, Line 12C

“The board requires that all members conduct an annual review for any conflicts of interest and should any arise, that they be disclosed to the board and management.”

Form 990, Part VI, Section B, Line 15

“The executive committee of the board determines the ceo's salary. Comparability figures representing comparable positions, scope of responsibility, size of organization and budget and similar industry were provided to the executive committee. In regard to other officers and key employees, the chief operating officer reviews comparable data for job responsibilities and reviews with the ceo to verify compensation.”

Form 990, Part VI, Section C, Line 19

“The financial statements are available on the organization's website. All other documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
National Brain Tumor Society Inc
EIN
04-3068130
Phone
6179249997
Address
55 CHAPEL STREET 006, NEWTON, MA 02458

Signing Officer

Name
David Arons
Title
CEO
Phone
6179249997
Signed
2025-06-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Arons
Formed
1989
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
52
Volunteers
45,237

Preparer

Firm
Aafcpas Inc
Address
50 WASHINGTON STREET, WESTBOROUGH, MA 01581
Preparer
John Buckley CPA
Phone
5083669100
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Impairment loss on convertible notes and interest receivable -15,000. Impairment loss on non-marketable investments in life science companies -155,633. Ertc write-off -13,594.”

Form 990, Part XI, Line 2C

“The finance committee is responsible for oversight and selection of the independent auditor”

Financial Statement Notes

PART V, LINE 4:

“The organization has endowment net assets in which the principal and any current contributions are permanently donor restricted. The balance as of december 31, 2024 was invested in bond funds and money markets. Income and appreciation earned on the permanently restricted net assets are restricted to support the costs of producing and distributing the essential guide to brain tumors and to fund research projects. The information is updated on an annual basis and made available through the organization's website.”

PART X, LINE 2:

“The organization accounts for uncertainty in income taxes in accordance with asc topic, income taxes. This standard clarifies the accounting for uncertainty in tax positions and prescribes a recognition threshold and measurement attribute for the consolidated financial statements regarding a tax position taken or expected to be taken in a tax return. The organization has determined that there are no uncertain tax positions which qualify for either recognition or disclosure in the consolidated financial statements at december 31, 2024. The organization's information returns are subject to examination by federal and state jurisdictions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Impairment loss on convertible notes and interest receivable -15,000. Impairment loss on non-marketable investments in life science companies -155,633. Ertc write-off -13,594.”

Raw XML AppendixShowing 400 of 1,047 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0398767
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0509434
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.
IRS990/AdvertisingGrp/FundraisingAmt019652
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IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt055 CHAPEL STREET 006
IRS990/BooksInCareOfDetail/USAddress/CityNm0NEWTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd002458
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IRS990/ContractorCompensationGrp/ServicesDesc1IT SUPPORT
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IRS990/Desc0OUR DEFEAT STRATEGY DRIVES AND INFLUENCES BEST-IN-CLASS MEDICAL RESEARCH TO DEVELOP AND DELIVER NEW INNOVATIVE TREATMENTS AND POTENTIAL CURES TO PATIENTS WITH BRAIN TUMORS AS QUICKLY AS POSSIBLE. PATIENTS AND CAREGIVERS ARE OUR PRIORITY. WE FOCUS ON GROUNDBREAKING RESEARCH INITIATIVES WITH THE POTENTIAL TO TRANSLATE PROMISING SCIENCE FROM THE LAB INTO TREATMENTS THAT IMPROVE SURVIVAL AND QUALITY OF LIFE. WE'RE ACCELERATING BREAKTHROUGHS THAT WILL HAVE A PROFOUND IMPACT ON THE BRAIN TUMOR COMMUNITY. OUR RESEARCH INITIATIVES ADVANCE TREATMENTS FOR PATIENTS OF ALL AGES ACROSS BRAIN TUMOR TYPES. WE INCENTIVIZE AND FACILITATE COLLABORATION BETWEEN PHARMACEUTICAL COMPANIES, INVESTORS, AND WORLD-CLASS SCIENTISTS TO GET RESULTS FOR PATIENTS.
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IRS990/MissionDesc0NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.
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IRS990/OtherExpensesGrp/Desc0SPECIAL EVENTS

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