Civic Intelligence

Neurofibromatosis Inc Northeast

EIN 04-3013709 • 501(c)3 • Burlington, MA

Profile

The diagnosis and treatment and to support programs intended to increase awareness of neurofibromatosis.

9 Bedford StreetBurlington, MA 01803

www.nfnortheast.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

72nd percentile

0.15x

Higher debt load relative to assets than 72% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

77th percentile

0.19x

Higher debt load relative to revenue than 77% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

37th percentile

-1.4%

Higher net margin than 37% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

93rd percentile

$143,049

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 21.2% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

71st percentile

15%

Faster asset growth than 71% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

67th percentile

21%

Faster revenue growth than 67% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets72nd percentile

Assets

Up

$900,101

Up $115,571 (+15%) from 2023

Liabilities

Up

$131,594

Up $106,141 (+417%) from 2023

Net Assets

Up

$768,507

Up $9,430 (+1.2%) from 2023

Operations
Liabilities / Revenue77th percentileNet Margin37th percentile

Revenue

Up

$675,651

Up $116,675 (+21%) from 2023

Expenses

Up

$685,189

Up $42,742 (+6.7%) from 2023

Net Income

Up

-$9,538

Up $73,933 (+89%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth71st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.0M$500K$0Assets 2010: $485,700Liabilities 2010: $18,536Net Assets 2010: $467,1642010Assets 2011: $532,212Liabilities 2011: $70,469Net Assets 2011: $461,7432011Assets 2012: $507,821Liabilities 2012: $66,619Net Assets 2012: $441,2022012Assets 2013: $444,904Liabilities 2013: $61,540Net Assets 2013: $383,3642013Assets 2014: $533,747Liabilities 2014: $67,250Net Assets 2014: $466,4972014Assets 2015: $556,488Liabilities 2015: $70,677Net Assets 2015: $485,8112015Assets 2016: $658,223Liabilities 2016: $74,592Net Assets 2016: $583,6312016Assets 2017: $755,528Liabilities 2017: $113,265Net Assets 2017: $642,2632017Assets 2018: $671,681Liabilities 2018: $64,926Net Assets 2018: $606,7552018Assets 2019: $708,938Liabilities 2019: $45,959Net Assets 2019: $662,9792019Assets 2020: $701,178Liabilities 2020: $42,418Net Assets 2020: $658,7602020Assets 2021: $973,512Liabilities 2021: $18,798Net Assets 2021: $954,7142021Assets 2022: $842,757Liabilities 2022: $19,830Net Assets 2022: $822,9272022Assets 2023: $784,530Liabilities 2023: $25,453Net Assets 2023: $759,0772023Assets 2024: $900,101Liabilities 2024: $131,594Net Assets 2024: $768,5072024

Highlighted filing

2024

Assets$900,101
Liabilities$131,594
Net Assets$768,507
Open 2024 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $352,6022010Revenue 2011: $544,587Expenses 2011: $550,008Net Income 2011: -$5,4212011Expenses 2012: $580,4372012Revenue 2013: $541,707Expenses 2013: $604,509Net Income 2013: -$62,8022013Revenue 2014: $780,259Expenses 2014: $696,031Net Income 2014: $84,2282014Revenue 2015: $743,683Expenses 2015: $719,406Net Income 2015: $24,2772015Revenue 2016: $789,902Expenses 2016: $691,395Net Income 2016: $98,5072016Revenue 2017: $780,879Expenses 2017: $734,348Net Income 2017: $46,5312017Revenue 2018: $679,566Expenses 2018: $688,256Net Income 2018: -$8,6902018Revenue 2019: $687,701Expenses 2019: $676,597Net Income 2019: $11,1042019Revenue 2020: $439,880Expenses 2020: $484,116Net Income 2020: -$44,2362020Revenue 2021: $737,666Expenses 2021: $451,337Net Income 2021: $286,3292021Revenue 2022: $616,977Expenses 2022: $651,825Net Income 2022: -$34,8482022Revenue 2023: $558,976Expenses 2023: $642,447Net Income 2023: -$83,4712023Revenue 2024: $675,651Expenses 2024: $685,189Net Income 2024: -$9,5382024

Highlighted filing

2024

Revenue$675,651
Expenses$685,189
Net Income-$9,538
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$900,101
Liabilities
$131,594
Net assets
$768,507
Revenue
$675,651
Expenses
$685,189
Net income
-$9,538
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.00$1.32$7.69$6.76$6.85$0.10
2023Detailed filing. Detailed filing data is available for this year.$7.85$0.25$7.59$5.59$6.42$0.83
2022Detailed filing. Detailed filing data is available for this year.$8.43$0.20$8.23$6.17$6.52$0.35
2021Detailed filing. Detailed filing data is available for this year.$9.74$0.19$9.55$7.38$4.51$2.86
2020Detailed filing. Detailed filing data is available for this year.$7.01$0.42$6.59$4.40$4.84$0.44
2019Detailed filing. Detailed filing data is available for this year.$7.09$0.46$6.63$6.88$6.77$0.11
2018Detailed filing. Detailed filing data is available for this year.$6.72$0.65$6.07$6.80$6.88$0.09
2017Detailed filing. Detailed filing data is available for this year.$7.56$1.13$6.42$7.81$7.34$0.47
2016Detailed filing. Detailed filing data is available for this year.$6.58$0.75$5.84$7.90$6.91$0.99
2015Detailed filing. Detailed filing data is available for this year.$5.56$0.71$4.86$7.44$7.19$0.24
2014Detailed filing. Detailed filing data is available for this year.$5.34$0.67$4.66$7.80$6.96$0.84
2013Detailed filing. Detailed filing data is available for this year.$4.45$0.62$3.83$5.42$6.05$0.63
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.08$0.67$4.41$5.80
2011Summary only. Only limited summary data is available for this year.$5.32$0.70$4.62$5.45$5.50$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.86$0.19$4.67$3.53
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.0
Gross Receipts
$910,829
Mission and Program Overview

Mission

The mission of neurofibromatosis, inc., northeast is to raise funds to support research of the causes, cure and treatment of a disease described as neurofibromatosis, to promote and provide support services to patients and their families, to support clinics dedicated to diagnosis and treatment and to support programs intended to increase awareness of the disease.

Neurofibromatosis, inc. Northeast is committed to advancing research into the causes, treatment, and cure of neurofibromatosis. The organization raises funds to support scientific research, provides vital support services to individuals living with the condition and their families, and helps sustain clinics dedicated to the diagnosis and care of neurofibromatosis patients. Through education and outreach, the organization also works to increase public awareness and understanding of the disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$324,903$351,565▲ $26,662
Savings and Temporary Cash Investments$177,144$293,550▲ $116,406
Cash and Non-Interest-Bearing Accounts$242,846$109,352▼ $133,494
Pledges and Grants Receivable-$21,052-
Prepaid Expenses and Deferred Charges$29,917$20,967▼ $8,950
Land, Buildings, and Equipment, Net$4,950$8,468▲ $3,518
Intangible Assets$4,770--
Total Assets$814,413$900,101▲ $85,688
Other Assets Total$29,883$95,147▲ $65,264
Liabilities
Other Liabilities$29,883$92,851▲ $62,968
Accounts Payable and Accrued Expenses$25,453$34,681▲ $9,228
Deferred Revenue-$4,062-
Total Liabilities$55,336$131,594▲ $76,258
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$628,619$742,027▲ $113,408
Net Assets With Donor Restrictions$130,458$26,480▼ $103,978
Total Net Assets Fund Balance$759,077$768,507▲ $9,430
Total Liabilities and Net Assets / Fund Balance$814,413$900,101▲ $85,688

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$8,468$11,658$20,126
Other Assets Org$95,147--
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sharon KleinExecutive DiFT$138,873$4,176$143,049

Board Members and Trustees

NameTitle
John ManthPresident
Alexandra CellucciDirector
Frank BuonoDirector
John SheaDirector
John ThomsonDirector
Justin JordanDirector
Karen PelusoDirector
Kristina RathDirector
Lori RyanDirector
Marybeth ShawDirector
Nicole UllrichDirector
Patrick CallahanDirector
Tamara IndianerDirector
Theresa OwhadyDirector
Benjamin ButtrickClerk
Andres LessingTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$435,686
Program Service Revenue
$0
Investment Income
$24,101
Other Revenue
$215,864
All Other Contributions
$179,595
Change in Net Assets
$-9,538
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$368,840
Other Expenses$259,550
Total Fundraising Expense$147,289
Grants and Similar Amounts Paid$56,799
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$115,574$46,437$36,022$198,033
Current Officers, Directors, Trustees, and Key Employees$83,323$27,775$27,775$138,873
Fees for Services Other--$61,691$61,691
Grants to Domestic Orgs$42,799--$42,799
Occupancy$31,032$6,408$563$38,003
Payroll Taxes$16,149$5,993$5,160$27,302
Fees for Services Lobbying$25,000--$25,000
Office Expenses$6,013$2,579$14,730$23,322
Fees for Services Accounting-$14,945-$14,945
Grants to Domestic Individuals$14,000--$14,000
Insurance-$6,972-$6,972
Depreciation Depletion-$6,876-$6,876
Other Expenses$5,143$20,857-$5,143
Other Employee Benefits$2,964$834$834$4,632
All Other Expenses$25$1,697$514$2,236
Total Functional Expenses$396,527$141,373$147,289$685,189
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Massachusetts General HospitalBoston, MA501(c)Research$40,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$319,813
Fundraising Direct Expenses$106,090
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Step2cure$180,091$123,256$16,568$106,688
Malerba/comitte$109,580$34,677$910$33,767
Total Events$552,686$303,286$98,078$205,208
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$92,851
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The form 990 is emailed to the governing body members via confirm receipt email. The organization's governing body reviews the form 990”

Form 990, Page 6, Part VI, Line 12C

“The organization requires all board members to read and sign the conflict of interest policy. They review and sign annually.”

Form 990, Page 6, Part VI, Line 15A

“The board meets annually and reviews the executive director's performance and compares the salary to other executives directors at similar organizations. Based on this analysis, the executive director's salary is determined and approved by the board of directors.”

Form 990, Page 6, Part VI, Line 19

“The organization's governing documents and form 990 are available for inspection at the organizations office.”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Inc Northeast
EIN
04-3013709
Phone
7812729936
Address
9 BEDFORD STREET, BURLINGTON, MA 01803

Signing Officer

Name
Sharon Klein
Title
Executive Director
Phone
7812729936
Signed
2025-11-13

Organization Details

Principal Officer
John Manth
Voting Board Members
16
Independent Board Members
16
Employees
8

Preparer

Firm
King Mcnamara Moriarty Llp
Address
473 WASHINGTON STREET, NORWOOD, MA 02062-2330
Preparer
Joseph B Moriarty CPA
Phone
7817696300
Supplemental Narrative

Financial Statement Notes

Schedule D, Page 3, Part X

“Management has evaluated significant tax positions against the criteria established by professional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Any changes in tax positions will be recorded when the ultimate outcome becomes known.”

Raw XML AppendixShowing 400 of 575 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0NEUROFIBROMATOSIS, INC. NORTHEAST IS COMMITTED TO ADVANCING RESEARCH INTO THE CAUSES, TREATMENT, AND CURE OF NEUROFIBROMATOSIS. THE ORGANIZATION RAISES FUNDS TO SUPPORT SCIENTIFIC RESEARCH, PROVIDES VITAL SUPPORT SERVICES TO INDIVIDUALS LIVING WITH THE CONDITION AND THEIR FAMILIES, AND HELPS SUSTAIN CLINICS DEDICATED TO THE DIAGNOSIS AND CARE OF NEUROFIBROMATOSIS PATIENTS. THROUGH EDUCATION AND OUTREACH, THE ORGANIZATION ALSO WORKS TO INCREASE PUBLIC AWARENESS AND UNDERSTANDING OF THE DISEASE.
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IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
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IRS990/ProgSrvcAccomActy2Grp/Desc0THE ORGANIZATION SERVES AS A VALUABLE RESOURCE FOR INDIVIDUALS AFFECTED BY NEUROFIBROMATOSIS, HELPING PATIENTS LOCATE EXPERIENCED PHYSICIANS AND SPECIALISTS. IT PROMOTES VOLUNTEER INVOLVEMENT AT EVENTS WHERE PATIENTS CAN CONNECT WITH OTHERS WHO SHARE SIMILAR EXPERIENCES. THROUGH ORGANIZED GATHERINGS, THE ORGANIZATION BRINGS TOGETHER PATIENTS, FAMILIES, AND FRIENDS TO SHARE MEDICAL UPDATES, RESEARCH DEVELOPMENTS, AND COMMUNITY SUPPORT. ADDITIONALLY, IT PROVIDES SCHOLARSHIPS FOR PERSONS WITH NEOUROFIBROMATOSIS TO CONTINUE THEIR EDUCATION AFTER HIGH SCHOOL AND TO PURSUE AN UNDERGRADUATE DEGREE.
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IRS990/ProgSrvcAccomActy3Grp/Desc0LOBBYING: THE ORGANIZATION LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTE OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH PROGRAM.
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