Liabilities / Assets
82nd percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2014 • EIN 03-0436723
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
82nd percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
81st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
67th percentile
Higher net margin than 67% of similar nonprofits.
Top Officer Pay
89th percentile
Higher top officer pay than 89% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
72nd percentile
Faster asset growth than 72% of similar nonprofits.
Revenue Growth
75th percentile
Faster revenue growth than 75% of similar nonprofits.
Assets
Up$379,052
Up $36,437 (+11%) from 2013
Net Assets
Up$379,052
Up $36,437 (+11%) from 2013
Liabilities
Flat$0
Flat from 2013
Revenue
Up$154,766
Up $51,325 (+50%) from 2013
Expenses
Up$118,329
Up $82,216 (+228%) from 2013
Net Income
Down$36,437
Down $30,891 (-46%) from 2013
The foundation raises money to foster and advance medical and scientific research to find a cure for duchenne's muscular dystrophy. In addition, the foundation seeks to prevent and alleviate suffering & promote education & awareness of duchenne's muscular dystrophy.
Funding research to find a cure for and promote education of duchenne's muscular dystrophy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $342,615 | $379,052 | ▲ $36,437 |
| Savings and Temporary Cash Investments | $318,269 | $319,086 | ▲ $817 |
| Cash and Non-Interest-Bearing Accounts | $24,346 | $59,966 | ▲ $35,620 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $342,615 | $379,052 | ▲ $36,437 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $342,615 | $379,052 | ▲ $36,437 |
| Total Liabilities and Net Assets / Fund Balance | $342,615 | $379,052 | ▲ $36,437 |
| Name | Title |
|---|---|
| Stephen Szymanski | President |
| Kenneth a Manning | Vice President |
| Anita Ballow | Director |
| Barry Maloney | Director |
| Benjamin B Roberts | Director |
| Brendan Rich Esq | Director |
| David J Korzak | Director |
| Dr Neera Gulati | Director |
| Dr Raju Gulati | Director |
| Gary Bichler | Director |
| George Hajduczok | Director |
| Peter Vito | Director |
| Robert S Jellinick Cfm | Director |
| Paul a Richardson | Treasurer/secretary |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $107,715 |
| Other Expenses | $10,078 |
| Salaries, Compensation, and Employee Benefits | $536 |
| Total Fundraising Expense | $536 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $100,000 | - | - | $100,000 |
| Grants to Domestic Individuals | $7,715 | - | - | $7,715 |
| Advertising | - | $2,430 | - | $2,430 |
| Conferences and Meetings | - | $2,408 | - | $2,408 |
| Fees for Services Accounting | - | $2,000 | - | $2,000 |
| Insurance | - | $1,080 | - | $1,080 |
| Office Expenses | - | $574 | - | $574 |
| Other Expenses | - | $478 | - | $478 |
| Payroll Taxes | - | - | $465 | $465 |
| Other Salaries and Wages | - | - | $71 | $71 |
| Total Functional Expenses | $107,715 | $10,078 | $536 | $118,329 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Halo Therapeutics LLC | Cambridge, MA | - | Research and Drug Development | $100,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $45,929 |
| Fundraising Direct Expenses | $41,126 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Celebrity Dance Gala | $89,251 | $45,929 | $20,352 | $25,577 |
| Total Events | $89,251 | $45,929 | $41,126 | $4,803 |
“Kenneth a. Manning and dr. Neera gulati are spouses; dr. Neera gulati and dr. Raju gulati are siblings.”
“Once the form 990 is reviewed and approved by the organization's treasurer, a copy of the return is provided to the full board of directors for review for completeness and accuracy prior to submission.”
“The organization will make all applicable documents available upon request at their main office.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | FUNDING RESEARCH TO FIND A CURE FOR AND PROMOTE EDUCATION OF DUCHENNE'S MUSCULAR DYSTROPHY. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2430 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2430 |
| IRS990/AllOtherContributionsAmt | 0 | 106347 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | PAUL RICHARDSON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7166302482 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 45 BRYANT WOODS NORTH |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AMHERST |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 14228 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
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| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 24346 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 59966 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 2408 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2408 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 43322 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 149669 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 107715 |
| IRS990/CYInvestmentIncomeAmt | 0 | 294 |
| IRS990/CYOtherExpensesAmt | 0 | 10078 |
| IRS990/CYOtherRevenueAmt | 0 | 4803 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 36437 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 536 |
| IRS990/CYTotalExpensesAmt | 0 | 118329 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 536 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 154766 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | 0 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE ORGANIZATION FUNDS RESEARCH ACTIVITIES TO FIND A CURE FOR DUCHENNES MUSCULAR DYSTROPHY (DMD). CURRENTLY, THERE ARE MORE THAN 15 CLINICAL TRIALS UNDERWAY FOR DRUGS DEVELOPED TO TREAT VARIOUS ASPECTS OF DMD. MANY ARE EXPECTED TO BE ON THE MARKET WITHIN THE NEXT COUPLE OF YEARS AND CLINICIANS HAVE EXPRESSED A GREAT AMOUNT OF HOPE AND CONFIDENCE IN MANY OF THESE DRUGS AND THEIR POTENTIAL TO CORRECT DETRIMENTAL ASPECTS OF THE DISEASE. SOME OF THE MOST PROMISING RESEARCH IS BEING CONDUCTED BY A GROUP CALLED THE MDEX CONSORTIUM, WHICH IS FOCUSING ON MORPHOLINOS (EXON SKIPPING COMPOUND). THE FDA PREVIOUSLY APPROVED THE USE OF MORPHOLINOS IN THE TREATMENT OF CERTAIN TYPES OF CANCER.THE ORGANIZATION HAS ENABLED LOCAL WESTERN NEW YORK PHYSICIANS AND RESEARCHERS TO CONNECT WITH OTHERS AROUND THE WORLD THROUGH FUNDING PARTICIPATION IN PARENTS PROJECT FOR MUSCULAR DYSTROPHY AND ACTION DUCHENNE CONFERENCE TO FACILITATE KNOWLEDGE SHARING AND ADVOCACY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DistributionToDonorInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 107715 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 2000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form1098CFiledInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form8899Filedind | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DAVID J KORZAK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KENNETH A MANNING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PAUL A RICHARDSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ANITA BALLOW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DR NEERA GULATI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DR RAJU GULATI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | GARY BICHLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | ROBERT S JELLINICK CFM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BRENDAN RICH ESQ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | BENJAMIN B ROBERTS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | PETER VITO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | GEORGE HAJDUCZOK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | STEPHEN SZYMANSKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | BARRY MALONEY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER/SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
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| IRS990/FundraisingAmt | 0 | 43322 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 41126 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 45929 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 107715 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 7715 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 7715 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 100000 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 195892 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1080 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1080 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 294 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 294 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE FOUNDATION RAISES MONEY TO FOSTER AND ADVANCE MEDICAL AND SCIENTIFIC RESEARCH IN ORDER TO FIND A CURE, PREVENT AND ALLEVIATE SUFFERING AND PROMOTE EDUCATION OF DUCHENNE'S MUSCULAR DYSTROPHY. ADDITIONALLY, THE FOUNDATION WILL CONDUCT CLINICAL TRIALS OF AAV VECTOR TECHNOLOGY AND GENE THERAPY TO TREAT AND CURE DUCHENNES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 342615 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 379052 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 4803 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 4803 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 574 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 574 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | TELEPHONE |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1108 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 478 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1108 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 478 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 71 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 71 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 465 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 465 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | STEVEN SZYMANSKI |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 100792 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 12897 |
| IRS990/PYInvestmentIncomeAmt | 0 | 240 |
| IRS990/PYOtherExpensesAmt | 0 | 10968 |
| IRS990/PYOtherRevenueAmt | 0 | 2409 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 67328 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 12248 |
| IRS990/PYTotalExpensesAmt | 0 | 36113 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 103441 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 36437 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 154766 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 342615 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 379052 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 318269 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 319086 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 149669 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 100792 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 60670 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 43987 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 49833 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 404951 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 294 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 240 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 327 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 782 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 880 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 2523 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 175750 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.76120 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.96930 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 310149 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 94802 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 149669 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 100792 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 60670 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 43987 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 49833 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 404951 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 407474 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 43322 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 43322 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 41126 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 2000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 2000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | CELEBRITY DANCE GALA |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 18774 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 18774 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 89251 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 89251 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 45929 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 45929 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 4803 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 20352 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 20352 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 7715 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | COST OF RESEARCH CONFERENCES |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt | 0 | 3 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 100000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH AND DRUG DEVELOPMENT |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | HALO THERAPEUTICS LLC |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 245 FIRST STREET 18TH FLOOR |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | CAMBRIDGE |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02142 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | ANNUALLY THE FOUNDATION FUNDS THE COSTS FOR TWO RESEARCHERS TO ATTEND A CONFERENCE WHERE CURRENT DEVELOPMENTS AND TECHNIQUES RELATED TO THE DISEASE ARE DISCUSSED AND WHICH PROVIDES AN OPPORTUNITY TO INTERFACE WITH THE OTHER RESEARCHERS FROM AROUND THE WORLD TO SHARE IDEAS AND ADVANCEMENTS. THE PURPOSE OF THE CONFERENCE DIRECTLY ALIGNS WITH THE MISSION AND PURPOSE OF THE FOUNDATION. ALL AMOUNTS PAID MUST BE APPROVED BY THE FOUNDATION GOVERNING BODY BEFORE THE MONIES ARE DISTRIBUTED FROM THE FOUNDATION. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | KENNETH A. MANNING AND DR. NEERA GULATI ARE SPOUSES; DR. NEERA GULATI AND DR. RAJU GULATI ARE SIBLINGS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ONCE THE FORM 990 IS REVIEWED AND APPROVED BY THE ORGANIZATION'S TREASURER, A COPY OF THE RETURN IS PROVIDED TO THE FULL BOARD OF DIRECTORS FOR REVIEW FOR COMPLETENESS AND ACCURACY PRIOR TO SUBMISSION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE ORGANIZATION WILL MAKE ALL APPLICABLE DOCUMENTS AVAILABLE UPON REQUEST AT THEIR MAIN OFFICE. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 19 |
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| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | NY |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/TaxableDistributionsInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 342615 |
| IRS990/TotalAssetsEOYAmt | 0 | 379052 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 342615 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 379052 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 149669 |
| IRS990/TotalEmployeeCnt | 0 | 1 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 536 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 10078 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 107715 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 118329 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 342615 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 379052 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 107715 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 5097 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 154766 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 40 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 342615 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 379052 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 6245 SHERIDAN DR SUITE 300 |
| IRS990/USAddress/CityNm | 0 | WILLIAMSVILLE |
| IRS990/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/USAddress/ZIPCd | 0 | 14221 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 14 |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.