Liabilities / Assets
60th percentile
Tied with the lowest-debt nonprofits in its peer group.
Share and Care Cockayne Syndrome Network Inc
EIN 01-0557037 • 501(c)3 • Watterford, VA
Profile
Supporting children and families with cockayne syndrome.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
62nd percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
93rd percentile
Higher net margin than 93% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
86th percentile
Faster asset growth than 86% of similar nonprofits.
Revenue Growth
9th percentile
Faster revenue growth than 9% of similar nonprofits.
Balance Sheet
Assets
Up$35,462
Up $11,849 (+50%) from 2019
Liabilities
Flat$0
Flat from 2019
Net Assets
Up$35,462
Up $11,849 (+50%) from 2019
Revenue
Down$17,512
Down $71,427 (-80%) from 2019
Expenses
Down$5,663
Down $103,170 (-95%) from 2019
Net Income
Up$11,849
Up $31,743 (+160%) from 2019
Trend Graphs
Filings
Most recent year
2020 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $35,462
- Liabilities
- $0
- Net assets
- $35,462
- Revenue
- $17,512
- Expenses
- $5,663
- Net income
- $11,849
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2020 to Dec 31, 2020
- Signed
- Nov 15, 2021
- Return Version
- 2020v4.0
- Gross Receipts
- $17,512
Mission and Program Overview
Mission
Supporting children and families with cockayne syndrome.
To promote awareness of Cockayne syndrome and trichothiodystrophy, to educate and support physicians, research centers, and organizations addressing the cause of diagnosis while also collaborating with researchers and physicians to find treatments and the cure for Cockayne syndrome and Trichothiodystrophy, and to assist in support of those suffering from CS and TTD and their families.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Share and Care CS Network family services program: the purpose of SCCS Family services to is create and foster a caring community that will offer each family information, guidance, and emotional support. Since 2005 Share & Care has built and maintained the most comprehensive database of tips and tricks from parents and caregivers of individuals who have been diagnosed with Cockayne syndrome. In addition to establishing a network of the greatest doctors and researchers from around the world. We were able to create this database through our outreach program on our Facebook private medical forum, the fan page, and our website www.cocaynesyndrome.com where we are constantly engaging and sharing valuable knowledge. Our goal is to help families obtain earlier diagnosis and to share information on drugs and procedures that prove to be beneficial to children with cs. | $0 | $3,101 |
| Share and Care CS Network family services program: the purpose of SCCS Family services to is create and foster a caring community that will offer each family information, guidance, and emotional support. Since 2005 Share & Care has built and maintained the most comprehensive database of tips and tricks from parents and caregivers of individuals who have been diagnosed with Cockayne syndrome. In addition to establishing a network of the greatest doctors and researchers from around the world. | $0 | $1,183 |
| Good Grief" is a private Facebook group, facilitated by a bereaved parent who has been trained in counseling, and created for bereaved parents where they can provide peer-to-peer support. We hold grief support meetings over zoom and a live butterfly release during our conferences to remember all of the children who have passed away as well as the journey of their lives. Cockayne Syndrome and Trichothiodystrophy Awareness month of JULY is a time for all families around the world to celebrate their special children. Awareness is the common thread woven through all the SCCS Network programs. Our goal is to raise awareness and to reach out to the medical and research communities for their support and the advancement of research and clinical care that would benefit individuals affected by the Cockayne syndrome. SCCS is committed to providing information to help understand CS better and we do that using publications our website and all our social media accounts (Facebook Twitter and Instagram). | $0 | $302 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| JACQUELINE ARIAS CLARK | President/CEO | FT | $0 | - | - |
| HAYLEE CARROLL | Vice President | FT | $0 | - | - |
| VERONICA CUEVAS | Secretary | PT | $0 | - | - |
| SETH ZIMMERMAN | Board Member | - | $0 | - | - |
| BRENT SMITH | Board Member | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Share and Care Cockayne Syndrome Network Inc
- EIN
- 01-0557037
- Phone
- 7037270404
- Address
- PO BOX 282, WATTERFORD, VA 20197
Signing Officer
- Name
- Jacqueline Clark
- Title
- Executive Director
- Phone
- 7037270404
- Signed
- 2021-11-15
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 1
“Due to COVID-19 and the fragile condition of our children we were unable to have any in-person events which caused us to have a slower turnaround for 2020 compared to our other years.”
Form 990-EZ, Part I, Line 16
“Description;Amount^INTEREST EXPENSE;120|TELEPHONE EXPENSE;3101|BANK FEES;420^Total;3641^”
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Document Assets
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